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Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers

Holm, Maja, (författare)
Ersta Sköndal högskola, Palliativt forskningscentrum, PFC, Karolinska institutet
Carlander (Goliath), Ida, (författare)
Ersta Sköndal högskola, Palliativt forskningscentrum, PFC, Karolinska institutet
Fürst, Carl-Johan, (författare)
Lunds universitet
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Wengström, Yvonne, (författare)
Karolinska institutet, Örebro universitet
Årestedt, Kristofer, (författare)
Linköpings universitet, Linnéuniversitetet
Öhlen, Joakim, (författare)
Ersta Sköndal högskola, Palliativt forskningscentrum, PFC, Göteborgs universitet
Henriksson (Alvariza), Anette, (författare)
Ersta Sköndal högskola, Palliativt forskningscentrum, PFC, Karolinska institutet, Capio Geriatrik, Dalen, Stockholm
Carlander, Ida, (författare)
Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden; Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden
Arestedt, Kristofer, (författare)
Department of Medical Health Sciences, Linköping University, Linköping, Sweden; Center for Collaborative Palliative Care, Linnaeus University, Kalmar, Sweden
Henriksson, Anette, (författare)
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden; Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden; Capio Geriatrics, Palliative Care Unit, Dalen Hospital, Stockholm, Sweden
Furst, Carl-Johan, (författare)
Lund University, Sweden; Lund University, Sweden
Wengstrom, Yvonne, (författare)
Karolinska Institute, Sweden; University of Örebro, Sweden
Ohlen, Joakim, (författare)
Ersta Skondal University of Coll, Sweden; University of Gothenburg, Sweden; University of Gothenburg, Sweden
Öhlén, Joakim, 1958- (författare)
Göteborgs universitet, Centrum för personcentrerad vård vid Göteborgs universitet (GPCC), Institutionen för vårdvetenskap och hälsa, Gothenburg University, University of Gothenburg Centre for person-centred care (GPCC), Institute of Health and Care Sciences
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Ersta Sköndal högskola Palliativt forskningscentrum, PFC. (creator_code:org_t)
Linköpings universitet Institutionen för medicin och hälsa. Avdelningen för omvårdnad. (creator_code:org_t)
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Linköpings universitet Medicinska fakulteten. (creator_code:org_t)
Linnéuniversitetet Fakulteten för Hälso- och livsvetenskap (FHL). Institutionen för hälso- och vårdvetenskap (HV). (creator_code:org_t)
Lunds universitet Onkologi och Patologi, MV. (creator_code:org_t)
Göteborgs universitet Sahlgrenska akademin. Centrum för personcentrerad vård vid Göteborgs universitet (GPCC). 
Göteborgs universitet Sahlgrenska akademin. Institutionen för vårdvetenskap och hälsa. 
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2015
Engelska.
Ingår i: Bmc Palliative Care. - 1472-684X. ; 14
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  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
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  • Background: Family caregivers in palliative care have a need for knowledge and practical support from health professionals, resulting in the need for educational and supportive interventions. However, research has mainly focused on the experiences of family caregivers taking part in interventions. To gain an increased understanding of complex interventions, it is necessary to integrate the perspectives of health professionals and family caregivers. Hence, the aim of this study is to explore the perspectives of health professionals and family caregivers of delivering and participating in a psycho-educational intervention in specialized palliative home care.Methods: A psycho-educational intervention was designed for family caregivers based on a theoretical framework describing family caregiver’s educational, emotional and practical involvement as knowing, being and doing. The intervention was delivered over three sessions, each of which included a presentation to family caregivers by healthcare professionals from an intervention manual based on the theoretical framework. For the qualitative data collection, an interpretive descriptive design was chosen. Data were collected through focus group discussions with health professionals and individual interviews with family caregivers. Data were analysed using framework analysis.Results: From the perspectives of both health professionals and family caregivers, the delivering and participating in the intervention was described as a positive experience. Although the content was not always adjusted to the family caregivers’ individual situation, it was perceived as valuable. Consistently, the intervention was regarded as something that could make family caregivers better prepared for caregiving. Health professionals found that the work with the intervention demanded time and engagement from them and that the manual needed to be adjusted to suit group characteristics, but the experience of delivering the intervention was still something that gave them satisfaction and contributed to them finding insights into their work.Conclusions: The theoretical framework of knowing, being and doing used in this study seems appropriate to use for the design of interventions to support family caregivers. In the perspectives of health professionals and family caregivers, the psycho-educational intervention had important benefits and there was congruence between the two groups in that it provided reward and support. In order for health professionals to carry out psycho-educational interventions, they may be in need of support and supervision as well as securing appropriate time and resources in their everyday work.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences (hsv//eng)

Nyckelord

Family caregivers
Health professionals
Home care
Psycho-educational intervention
Palliative care
Support
Health and Medical Care Research
Hälso- och sjukvårdsforskning
Family caregivers; Health professionals; Home care; Palliative care; Psycho-educational intervention; Support
Family caregivers; Health professionals; Home care; Psycho-educational intervention; Palliative care; Support
Omvårdnad
Nursing
LIFE-THREATENING ILLNESS
SUPPORT GROUP PROGRAM
INFORMAL CAREGIVERS
OF-LIFE
NEEDS
END
CANCER
EXPERIENCES
FRAMEWORK
MEMBERS
Health Care Sciences & Services
Health Policy & Services

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