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Sökning: onr:"swepub:oai:lup.lub.lu.se:0049ea4e-3ee4-40a0-b58e-155426716759" > Coding practice in ...

Coding practice in national and regional kidney biopsy registries

Dendooven, Amélie (författare)
Ghent University Hospital,University of Antwerp
Peetermans, Han (författare)
ZNA Middelheim Hospital
Helbert, Mark (författare)
ZNA Middelheim Hospital
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Nguyen, Tri Q. (författare)
University Medical Center Utrecht
Marcussen, Niels (författare)
Odense University Hospital
Nagata, Michio (författare)
University of Tsukuba Hospital
Gesualdo, Loreto (författare)
University of Bari Aldo Moro
Perkowska-Ptasinska, Agnieszka (författare)
Medical University of Warsaw
Capusa, Cristina (författare)
Carol Davila University of Medicine and Pharmacy
López-Gómez, Juan M. (författare)
Hospital Gregorio Maranon
Geddes, Colin (författare)
Glasgow Renal and Transplant Unit
Abdul-Hamid, Myrurgia A. (författare)
Maastricht University Medical Centre
Segelmark, Mårten (författare)
Lund University,Lunds universitet,Njurmedicin,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Nephrology,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine
Yahya, Rosnawati (författare)
Kuala Lumpur Hospital
Garau, Mariela (författare)
University of the Republic
Villanueva, Russell (författare)
National Kidney and Transplant Institute Philippines
Dorman, Anthony (författare)
Beaumont Hospital, Dublin
Barbour, Sean (författare)
University of British Columbia
Cornet, Ronald (författare)
Academic Medical Center of University of Amsterdam (AMC)
Hopfer, Helmut (författare)
University Hospital Basel
Amann, Kerstin (författare)
University Hospital Erlangen
Leh, Sabine (författare)
Haukeland University Hospital
visa färre...
 (creator_code:org_t)
 
BioMed Central (BMC), 2021
2021
Engelska.
Ingår i: BMC Nephrology. - : BioMed Central (BMC). - 1471-2369. ; 22:1
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
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  • Background: Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practice. Methods: A literature search was undertaken to identify biopsy registries for medical kidney diseases. These data were supplemented with information from personal contacts and from registry websites. A questionnaire was sent to all identified registries, investigating age of registries, scope, method of coding, possible mapping to international terminologies as well as self-reported problems and suggestions for improvement. Results: Sixteen regional or national kidney biopsy registries were identified, of which 11 were older than 10 years. Most registries were located either in Europe (10/16) or in Asia (4/16). Registries most often use a proprietary coding system (12/16). Only a few of these coding systems were mapped to SNOMED CT (1), older SNOMED versions (2) or ERA-EDTA PRD (3). Lack of maintenance and updates of the coding system was the most commonly reported problem. Conclusions: There were large gaps in the global coverage of kidney biopsy registries. Limited use of international coding systems among existing registries hampers interoperability and exchange of data. The study underlines that the use of a common and uniform coding system is necessary to fully realize the potential of kidney biopsy registries.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Urologi och njurmedicin (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Urology and Nephrology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine (hsv//eng)

Nyckelord

Coding
Kidney biopsy registry
Nephropathology
Renal pathology
Systematic review

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