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Experiences of secu...
Experiences of security and continuity of care : patients' and families' narratives about the work of specialized palliative home care teams
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- Klarare, Anna (författare)
- Sophiahemmet University,Sophiahemmet Högskola,Karolinska institutet; Sophiahemmet Högskola
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- Rasmussen, Birgit H. (författare)
- Lund University,Lunds universitet,Äldres hälsa och personcentrerad vård,Forskargrupper vid Lunds universitet,Palliativt Utvecklingscentrum,Older people's health and Person-Centred care,Lund University Research Groups,The Institute for Palliative Care
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- Fossum, Bjöörn (författare)
- Karolinska Institute,Sophiahemmet Högskola,Sophiahemmet Högskola; Karolinska institutet
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- Fürst, Carl Johan (författare)
- Lund University,Lunds universitet,Bröstcancer-genetik,Sektion I,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,Breastcancer-genetics,Section I,Department of Clinical Sciences, Lund,Faculty of Medicine,The Institute for Palliative Care,Lund University Research Groups,Lunds universitet; Karolinska institutet
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- Hansson, Johan (författare)
- Karolinska Institutet,Karolinska Institute,Karolinska institutet
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- Lundh Hagelin, Carina (författare)
- Karolinska Institutet,Karolinska Institute,Sophiahemmet Högskola,Sophiahemmet Högskola; Stiftelsen Stockholms sjukhem; Karolinska institutet
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(creator_code:org_t)
- Cambridge : Cambridge University Press, 2017
- 2017
- Engelska.
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Ingår i: Palliative & Supportive Care. - Cambridge : Cambridge University Press. - 1478-9515 .- 1478-9523. ; 15:2, s. 181-189
- Relaterad länk:
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http://urn.kb.se/res...
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https://shh.diva-por... (primary) (Raw object)
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http://dx.doi.org/10...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://lup.lub.lu.s...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- BACKGROUND: Those who are seriously ill and facing death are often li ing with physical, emotional, social, and spiritual suffering. Teamwork is considered to be necessary to holistically meet the diverse needs of patients in palliative care. Reviews of studies regarding palliative care team outcomes have concluded that teams provide benefits, especially regarding pain and symptom management. Much of the research concerning palliative care teams has been performed from the perspective of the service providers and has less often focused on patients' and families' experiences of care.OBJECTIVE: Our aim was to investigate how the team's work is manifested in care episodes narrated by patients and families in specialized palliative home care (SPHC).METHOD: A total of 13 interviews were conducted with patients and families receiving specialized home care. Six patients and seven family members were recruited through SPHC team leaders. Interviews were transcribed verbatim and the transcripts qualitatively analyzed into themes.RESULTS: Two themes were constructed through thematic analysis: (1) security ("They are always available," "I get the help I need quickly"); and (2) continuity of care ("They know me/us, our whole situation and they really care"). Of the 74 care episodes, 50 were descriptions of regularly scheduled visits, while 24 related to acute care visits and/or interventions.SIGNIFICANCE OF RESULTS: Patients' and family members' descriptions of the work of SPHC teams are conceptualized through experiences of security and continuity of care. Experiences of security are fostered through the 24/7 availability of the team, sensitivity and flexibility in meeting patients' and families' needs, and practical adjustments to enable care at home. Experiences of continuity of care are fostered through the team's collective approach, where the individual team member knows the patients and family members, including their whole situation, and cares about the little things in life as well as caring for the family unit.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- Patients
- Family
- Health care teams
- Home care services
- Palliative care
- Family
- Healthcare teams
- Home care services
- Palliative care
- Patients
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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