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Mothers’ experiences of their work as healthcare assistants for their chronic disabled child

Ranehov, Louise, (författare)
Region Skåne
Håkansson, Carita, (författare)
Forskargrupper vid Lunds universitet, Lund University Research Groups, Lunds universitet, Lund University, Medicinska fakulteten, Faculty of Medicine, Institutionen för laboratoriemedicin, Department of Laboratory Medicine, Avdelningen för arbets- och miljömedicin, Division of Occupational and Environmental Medicine, Lund University, Arbetsorganisation och hälsa, Environmental health and occupational health
Engelska 14 s.
Ingår i: Scandinavian Journal of Occupational Therapy. - Taylor & Francis. - 1103-8128. ; 26:2, s. 121-134
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Abstract Ämnesord
  • Background: To the best of our knowledge, no research of the work situation of full-time, paid, parental HC assistants has been done. Aim: To examine how parents experienced their work as HC assistants for their chronic disabled child. Methods: Semi-structured interviews based on the Work Environment Impact Scale (WEIS-S) were done with nine mothers who had a child aged 8-17 years old with a cognitive or/and physical chronic disability. Content analysis was used with the Model Of Human Occupation as a framework. Results: The studied mothers always needed to be stand-by for their child, and they highlighted physical and psychological health problems caused by their work situation. There were several difficulties working in different environments because of the child’s need of technical devices. Further they described the support from their employers as important and in general the participants perceived a lack of understanding about their work situation in the society. Conclusion: The mothers in the present study had unclear job descriptions, they often worked more than full-time, and had low occupational balance. Significance: Occupational therapists could improve the HC assistants’ work place focusing on the physical and psycho-social work environment as well as on their occupational balance.


MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper -- Arbetsterapi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Occupational Therapy (hsv//eng)


Care givers
home care agencies
home care services
occupational imbalance
work environment

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