| 1. |
- Werkander Harstäde, Carina, et al.
(författare)
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Feelings of guilt - Experiences of next-of-kin in end-of-life care
- 2013
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Ingår i: Journal of Hospice and Palliative Nursing. - Philadelphia : Wolters Kluwer. - 1522-2179 .- 1539-0705. ; 15:1, s. 33-40
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to gain a greater understanding of the experiences of guilt of the next-of-kin in end-of-life care. Seventeen next-of-kin who had lost a loved one were interviewed with a focus on possible experiences of guilt. A Gadamerian-based hermeneutic approach to interpret these experiences was used. The interpretation showed that next-of-kin’s experiences of guilt emanated from a situation where the next-of-kin had a moral view on what was the right thing to do, it could also originate from a wish to do the best possible for the dying person out of love for this person. The situation could also involve both these aspects. The way in which the situation was handled, could, if the next-of-kin felt that s/he did not fulfill her/his commitments, omitted or neglected the dying person or was the cause of something, lead to experiences of guilt. The situation of being next-of-kin in end-of-life care is complex and demanding, something that health professionals are and should be aware of. Acknowledgement of experiences of guilt can help the next-of-kin in their adaptation to the end-of-life situation as a whole and maybe also give useful tools to support next-of-kin through bereavement.
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| 2. |
- Werkander Harstäde, Carina, et al.
(författare)
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Guilt and shame – a semantic concept analysis of two concepts related to palliative care
- 2012
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Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 26:4, s. 787-795
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundThe theoretical viewpoint of the study was based on the fundamental motive in caring science; the suffering person and his/her health and life situation, which according to the philosophy of palliative care also includes the next-of-kin. The latter often wish to participate in the care of their loved ones and it is thus important for them to be able to make decisions that can generate a meaningful participation. Unfulfilled obligations or wrong decisions, concerning their dying relative, can result in experiences of guilt and shame in relation to the care of the loved one. A semantic concept analysis can provide a deeper understanding of these concepts and create a deeper insight into what the concepts mean for the individual.AimThe aim of the study was to elucidate the meaning of and the distinction between the concepts of guilt and shame.MethodsSemantic concept analysis based on Koort and Eriksson.FindingsThe findings show that guilt and shame are two separate concepts. Guilt contains meaning dimensions of being the cause of and sin. Shame contains meaning dimensions of something that gives rise to shame and ability to experience shame. The synonyms for each concept do not overlap each other ConclusionThe semantic analysis creates an understanding of the concepts ontologically and provides a basis for theoretical, contextual and clinical understanding and development. © 2012 Nordic College of Caring Science.
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| 3. |
- Werkander Harstäde, Carina, et al.
(författare)
-
Next of Kin's Experiences of Shame in End-of-Life Care
- 2014
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Ingår i: Journal of Hospice and Palliative Nursing. - Philadelphia, PA : Lippincott Williams & Wilkins. - 1522-2179 .- 1539-0705. ; 16:2, s. 86-92
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to gain a greater understanding of the experiences of shame of next of kin in end-of-life care. Seventeen next of kin who had lost a family member were interviewed. A method inspired by Gadamer's hermeneutic approach was used to interpret possible experiences of shame and to discuss these interpretations. The result showed that next of kin's experiences of shame are linked to their perception of the remaining time and are guided by views on morality and what is right and wrong. Shame can occur when the next of kin are involved and actually cause harm to the family member as well as in situations that are beyond their control. Shame can also involve actions that have nothing to do with what they have actually done but is instead a shame that is placed on them by others, for example, health professionals or relatives. Shame is interpreted as experiences of ignominy, humiliation, and disgrace. Second-order shame is also found. It is important that health professionals are aware of these experiences of unhealthy shame when they meet and support next of kin in end-of-life care.
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