| 1. |
- Roxberg, Åsa, 1953-, et al.
(författare)
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Space and place for health and care
- 2020
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - Abingdon : Taylor and Francis Ltd.. - 1748-2623 .- 1748-2631. ; 15:sup1
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: This discussion paper aims to contribute to a greater understanding of the state of the art of research engaged with conceptual matters of space and place for health and care. Method: The authors, who represent a variety of academic disciplines, discuss and demonstrate the conceptual recognition of space and place in research in health and caring sciences building upon own work and experience. Results: To explore the concepts of space and place for health and care is a research pursuit of utmost importance, and should be made through transdisciplinary research collaborations, whereby spatial theories from various disciplines could be communicated to cultivate truly novel and well-informed research. Furthermore, engaging with relational and topological perceptions of space and place poses methodological challenges to overcome in future research on health and care. Conclusions: We argue that there is a need for accelerating spatially informed research on health and care that is informed by current theories and perspectives on space and place, and transdisciplinary research collaborations are a means to achieving this. © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
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| 2. |
- Werkander Harstäde, Carina, et al.
(författare)
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Feelings of guilt - Experiences of next-of-kin in end-of-life care
- 2013
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Ingår i: Journal of Hospice and Palliative Nursing. - Philadelphia : Wolters Kluwer. - 1522-2179 .- 1539-0705. ; 15:1, s. 33-40
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to gain a greater understanding of the experiences of guilt of the next-of-kin in end-of-life care. Seventeen next-of-kin who had lost a loved one were interviewed with a focus on possible experiences of guilt. A Gadamerian-based hermeneutic approach to interpret these experiences was used. The interpretation showed that next-of-kin’s experiences of guilt emanated from a situation where the next-of-kin had a moral view on what was the right thing to do, it could also originate from a wish to do the best possible for the dying person out of love for this person. The situation could also involve both these aspects. The way in which the situation was handled, could, if the next-of-kin felt that s/he did not fulfill her/his commitments, omitted or neglected the dying person or was the cause of something, lead to experiences of guilt. The situation of being next-of-kin in end-of-life care is complex and demanding, something that health professionals are and should be aware of. Acknowledgement of experiences of guilt can help the next-of-kin in their adaptation to the end-of-life situation as a whole and maybe also give useful tools to support next-of-kin through bereavement.
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| 3. |
- Werkander Harstäde, Carina, et al.
(författare)
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Guilt and shame – a semantic concept analysis of two concepts related to palliative care
- 2012
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Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 26:4, s. 787-795
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundThe theoretical viewpoint of the study was based on the fundamental motive in caring science; the suffering person and his/her health and life situation, which according to the philosophy of palliative care also includes the next-of-kin. The latter often wish to participate in the care of their loved ones and it is thus important for them to be able to make decisions that can generate a meaningful participation. Unfulfilled obligations or wrong decisions, concerning their dying relative, can result in experiences of guilt and shame in relation to the care of the loved one. A semantic concept analysis can provide a deeper understanding of these concepts and create a deeper insight into what the concepts mean for the individual.AimThe aim of the study was to elucidate the meaning of and the distinction between the concepts of guilt and shame.MethodsSemantic concept analysis based on Koort and Eriksson.FindingsThe findings show that guilt and shame are two separate concepts. Guilt contains meaning dimensions of being the cause of and sin. Shame contains meaning dimensions of something that gives rise to shame and ability to experience shame. The synonyms for each concept do not overlap each other ConclusionThe semantic analysis creates an understanding of the concepts ontologically and provides a basis for theoretical, contextual and clinical understanding and development. © 2012 Nordic College of Caring Science.
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| 4. |
- Werkander Harstäde, Carina, et al.
(författare)
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Next of Kin's Experiences of Shame in End-of-Life Care
- 2014
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Ingår i: Journal of Hospice and Palliative Nursing. - Philadelphia, PA : Lippincott Williams & Wilkins. - 1522-2179 .- 1539-0705. ; 16:2, s. 86-92
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to gain a greater understanding of the experiences of shame of next of kin in end-of-life care. Seventeen next of kin who had lost a family member were interviewed. A method inspired by Gadamer's hermeneutic approach was used to interpret possible experiences of shame and to discuss these interpretations. The result showed that next of kin's experiences of shame are linked to their perception of the remaining time and are guided by views on morality and what is right and wrong. Shame can occur when the next of kin are involved and actually cause harm to the family member as well as in situations that are beyond their control. Shame can also involve actions that have nothing to do with what they have actually done but is instead a shame that is placed on them by others, for example, health professionals or relatives. Shame is interpreted as experiences of ignominy, humiliation, and disgrace. Second-order shame is also found. It is important that health professionals are aware of these experiences of unhealthy shame when they meet and support next of kin in end-of-life care.
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| 5. |
- Werkander Harstäde, Carina, et al.
(författare)
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The Room as Metaphor : Next-of-Kin’s Experiences in End-of-Life Care
- 2015
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Ingår i: International Journal of Palliative Care. - New York, NY : Hindawi Publishing Corporation. - 2356-7074 .- 2314-579X. ; 2015, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- The “room” in end-of-life is a phenomenon that needs deeper understanding as it is a dimension that shows how health and suffering are shaped. Research on the concept of room was chosen as theoretical foundation in this study in order to reach a profound understanding of the next-of-kin’s “room” in end-of-life care. Lassenius’s hermeneutic interpretation in metaphorical language was used as an deductive-inductive approach to the empirical data. The data material comprised 33 interviews with next-of-kin about their experiences of end-of-life care when being close to a relative dying from a cancer disease. The analysis of the data formed four cases: the Standby, the Asylum, the Wall, and the Place. These cases lend their voices to the experiences of the next-of-kin in the study. The findings of this study explain and may well assist nurses to understand the experiences of being next-of-kin in end-of-life care as forming a room of rest from the suffering, a room of controlling the suffering, a room of hiding from the suffering, and a room of belonging.© 2015 Carina Werkander Harstäde and Åsa Roxberg
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