| 11. |
- Björk, Maria, et al.
(författare)
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An Everyday Struggle - Swedish Families' Lived Experiences During a Child's Cancer Treatment
- 2009
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Ingår i: Journal of Pediatric Nursing. - : Elsevier. - 0882-5963 .- 1532-8449. ; 24:5, s. 423-432
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to elucidate families' lived experience during a child's cancer treatment. Interviews were conducted with members of 11 affected families. A hermeneutical phenomenological approach was chosen. "Focus on the ill child-An everyday struggle" emerged as an essential theme. The families' lived experience of daily life was described as "feeling drained," "disrupting family life," "feeling locked up and isolated," "retaining normality," "becoming experts," and "changing perspectives." The result indicates that life during a child's cancer treatment is a taxing period and that the entire family is in need of support to ease their burdens. © 2009 Elsevier Inc. All rights reserved.
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| 12. |
- Björk, Maria, et al.
(författare)
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Needs of young children with cancer during their initial hospitalization : An observational study
- 2006
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Ingår i: Journal of Pediatric Oncology Nursing. - : Sage Publications. - 1043-4542 .- 1532-8457. ; 23:4, s. 210-219
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe young (under the age of 7) children's needs as expressed by their behavior, body language and verbal expression through observations during their initial hospitalization after being diagnosed with cancer. Twelve children under the age of seven were followed during 26 hours with non-participant unstructured observations. Field notes were written after each observation and transcribed into a narrative text, which was analyzed by content analysis at both manifest and latent level. Five themes were identified, of which "need to have the parent close by" was the most prominent. The other themes were "need to play and feel joy," "need for participation in care and treatment," "need for a good relationship with the staff," and "need for physical and emotional satisfaction." The results indicate that the children needed their parents and the parents' presence helped the children to express other needs. Professionals need to support the child and his or her parents so that the parents in their turn can support and alleviate their child's hospitalization and cancer treatment. © 2006 by Association of Pediatric Oncology Nurses.
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| 13. |
- Björk, Mathilda, 1977-, et al.
(författare)
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Sick Leave Before and After Diagnosis of Rheumatoid Arthritis - A Report from the Swedish TIRA Project
- 2009
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Ingår i: JOURNAL OF RHEUMATOLOGY. - : The Journal of Rheumatology. - 0315-162X .- 1499-2752. ; 36:6, s. 1170-1179
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Tidskriftsartikel (refereegranskat)abstract
- Our study describes sick leave during 3 years before and 3 years after diagnosis of rheumatoid arthritis (RA) in relation to referents and identifies predictors for sick leave during the third year after diagnosis of RA.Methods.One hundred twenty patients (76% women) from the Swedish early RA study TIRA were included. Disease activity and disability were registered regularly during 3 years in TIRA. Referents were matched for sex, age, and home town. Sick leave data were obtained for patients 3 years before and 3 years after diagnosis and for the referents for the corresponding 6 years.Results.No differences were seen between patients and referents regarding sick leave during the first 2 years, whereas sick leave increased in patients 6 months before diagnosis, from 30% to 53%. During the 3 years after diagnosis, sick leave among patients was rather stable, varying between 50% and 60%, even though disability pension increased and sickness benefit decreased. Sick leave before diagnosis, disability 1 year after diagnosis, and type of work were identified as predictors for sick leave during the third year after diagnosis.Conclusion.Not surprisingly, sick leave in patients increased the year before diagnosis. Although disease activity and disability diminished after diagnosis, the patients’ sick leave remained essentially unchanged. Sick leave 3 years after diagnosis was foremost predicted by earlier sick leave, disability, and type of work.
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| 14. |
- Björk, Maria, et al.
(författare)
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Striving to survive : Families' lived experiences when a child is diagnosed with cancer
- 2005
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Ingår i: Journal of Pediatric Oncology Nursing. - : Sage Publications. - 1043-4542 .- 1532-8457. ; 22:5, s. 265-275
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Tidskriftsartikel (refereegranskat)abstract
- When a child is ill with cancer, this affects the whole family for long periods. The aim of this study was to elucidate the family's lived experience when a child in the family was diagnosed with cancer. A descriptive inductive design with a hermeneutic phenomenological approach including interviews with 17 families (parents, children, and siblings) was chosen. The families' lived experience was described as a 2-fold essential theme comprising "a broken life world" and an immediate "striving to survive." The families' secure everyday life disappeared and was replaced by fear, chaos, and loneliness. When striving to make the child and the family survive, family members strove to feel hope and have a positive focus, to gain control, and to feel close to other people. Phenomenological human science research can deepen the understanding of the meaning of being a family with a child who is ill with cancer and can help pediatric oncology staff become increasingly thoughtful, and thus better prepared to take action to diminish the chaos occurring in the family. © 2005 by Association of Pediatric Oncology Nurses.
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| 15. |
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| 16. |
- Coenen, Lars, et al.
(författare)
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Comparing a pharmaceutical and an agro-food bioregion: on the importance of knowledge bases for socio-spatial patterns of innovation
- 2006
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Ingår i: Industry and Innovation. - : Informa UK Limited. - 1366-2716 .- 1469-8390. ; 13:1, s. 393-414
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this paper is to compare the socio-spatial patterns of innovation and knowledge linkages of a biopharmaceutical and an agro-food biotech cluster. Dissimilarities can be expected based on differences in terms of historical technological regimes and sectoral innovation system dynamics between the agro-food and pharmaceutical industries in general and particularly the distinctive analytical (science-based) knowledge base of biopharmaceuticals in contrast with the more synthetic (engineering-based) knowledge base of agro-food biotechnology. Drawing on bibliometric data and case material the study compares two representative bioregions: a biopharmaceutical cluster in Scania, Sweden and an agro-food biotech cluster in Saskatoon, Canada. The empirical study supports the theoretical expectations and shows that knowledge dynamics in the agro-food cluster are more localized than in the biopharmaceuticals cluster. It is important, however, to acknowledge that these differences are relative. Both sectors display local and non-local patterns of collaboration following the general pattern for biotechnology.
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| 17. |
- Coenen, Lars, et al.
(författare)
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Putting Constructed Regional Advantage into Swedish Practice
- 2009
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Ingår i: European Planning Studies. - : Informa UK Limited. - 1469-5944 .- 0965-4313. ; 17:4, s. 587-604
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Tidskriftsartikel (refereegranskat)abstract
- This paper presents a study of the pre-history and evolution of a regional innovation system initiative supporting activities at the intersection of traditional food production and modern biotechnology. Drawing on established ideas on the triple helix of industry, university and government and its impact on innovative capacity (as they are formulated in the regional innovation systems approach) and more recently introduced ideas on differentiated industrial knowledge bases, the study illustrates how regional innovation system support initiatives are formulated and implemented in close dialogue with the actors and activities constituting the systems under support. The initiative analysed in this paper is a good example of pro-active and fine-tuned regional innovation policy, referred to as constructed regional advantage. By focusing on an initiative targeting the renewal of a mature industry in a declining phase of its life cycle, the paper fills a gap in the literature which so far has dealt mostly with emerging industries at the start of their life cycle. Two innovation trajectories that contributed to the formulation of the initiative, and now benefits from it, are used to illustrate the arguments.
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| 18. |
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| 19. |
- Eklund, Mona, et al.
(författare)
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Satisfaction with Daily Occupations : Construct validity and test-retest reliability of a screening tool for people with mental disorders
- 2007
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Ingår i: Australian Occupational Therapy Journal. - : Wiley. - 0045-0766 .- 1440-1630. ; 54:1, s. 59-65
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Tidskriftsartikel (refereegranskat)abstract
- Background/Aim: In occupational therapy research and in clinical practice there is a need for valid, reliable and easily administered measures. For research and screening purposes, the Satisfaction with Daily Occupations (SDO) instrument was developed. It addresses work, leisure, domestic tasks and self-care and generates a satisfaction and an activity level score. This study investigated its construct validity, internal consistency and test–retest reliability in 55 clients visiting occupational therapists in outpatient mental health care. Methods: The SDO was administered on two occasions with a 1-week interval, and data on the Canadian Occupational Performance Measure (COPM), psychosocial functioning and self-rated health were collected on the first of these occasions. Results: In contrast to what was expected, the relationships between the SDO scores and the COPM scores were low. The strongest relationship between the SDO satisfaction score and any other variable was to psychosocial functioning. These variables shared 23% of the variance. Internal consistency for the satisfaction score was acceptable, alpha = 0.75 on the second occasion, and the test–retest reliability was good; rs = 0.84 for the satisfaction score and rs = 0.92 for the activity level. Conclusions: The results indicated that the SDO has satisfactory reliability. The instrument targets a specific construct, as compared to the COPM and the measurements of self-rated health and psychosocial functioning. Thus, the SDO and the COPM satisfaction scale seem to assess different phenomena, probably because the SDO has predefined items, not specifically targeting a certain client's problematic occupations, whereas the COPM is based on self-defined problems. The instruments may therefore supplement each other.
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| 20. |
- Elgán, Carina, et al.
(författare)
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Being in charge of life : perceptions of lifestyle among women of retirement age
- 2009
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Ingår i: Scandinavian Journal of Caring Sciences. - : John Wiley & Sons. - 0283-9318 .- 1471-6712. ; 23:4, s. 730-735
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Tidskriftsartikel (refereegranskat)abstract
- Aim: The aim of this study was to describe the perceptions of lifestyle among women of retirement age.Background: Women go through many transitions during their lives, which impact on their lifestyle and possibly their outlook on life. Family circumstances such as motherhood and marital status change over time and the menopause is also likely to influence their view of life.Method: Data were collected through interviews with 20 women, aged 61–70, selected by means of strategic sampling. The interviews were analysed using a phenomenographic approach.Findings: Three structural aspects emerged: being healthy as life turns out, living life in their own way, and taking care of everyday life. The women described lifestyle as a means of being healthy, having an active role in society, being content with what one has and the need to adapt oneself to limiting circumstances. Lifestyle was also associated with being in charge and making one’s own choices in life based on one’s own values. They reported that they were independent and made decisions about their life. The informants considered that lifestyle was an asset that helped them to cope with everyday life and to make the most of each day.Conclusion: Lifestyle is a tool that requires independence, the right to self‐determination over everyday life and adjustment to limitations in order to ensure the psychological well‐being of women of retirement age. Further research is needed in order to delineate the possible association between lifestyle and psychological well‐being.
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