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31.
  • Dahlqvist, Vera, et al. (författare)
  • Development of the perceptions of conscience questionnaire.
  • 2007
  • Ingår i: Nursing Ethics. - : SAGE Publications. - 0969-7330 .- 1477-0989. ; 14:2, s. 181-193
  • Tidskriftsartikel (refereegranskat)abstract
    • Health care often involves ethically difficult situations that may disquiet the conscience. The purpose of this study was to develop a questionnaire for identifying various perceptions of conscience within a framework based on the literature and on explorative interviews about perceptions of conscience (Perceptions of Conscience Questionnaire). The questionnaire was tested on a sample of 444 registered nurses, enrolled nurses, nurses' assistants and physicians. The data were analysed using principal component analysis to explore possible dimensions of perceptions of conscience. The results showed six dimensions, found also in theory and empirical health care studies. Conscience was perceived as authority, a warning signal, demanding sensitivity, an asset, a burden and depending on culture. We conclude that the Perceptions of Conscience Questionnaire is valid for assessing some perceptions of conscience relevant to health care providers.
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32.
  • de Snoo-Trimp, Janine C., et al. (författare)
  • Field-testing the Euro-MCD Instrument : Experienced outcomes of moral case deliberation
  • 2020
  • Ingår i: Nursing Ethics. - : Sage Publications. - 0969-7330 .- 1477-0989. ; 27:2, s. 390-406
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND: Moral case deliberation is a form of clinical ethics support to help healthcare professionals in dealing with ethically difficult situations. There is a lack of evidence about what outcomes healthcare professionals experience in daily practice after moral case deliberations. The Euro-MCD Instrument was developed to measure outcomes, based on the literature, a Delphi panel, and content validity testing. To examine relevance of items and adequateness of domains, a field study is needed.AIM: , and to explore correlations between items to further validate the Euro-MCD Instrument.METHODS: In Sweden, the Netherlands, and Norway, healthcare institutions that planned a series of moral case deliberations were invited. Closed responses were quantitatively analyzed. The factor structure of the instrument was tested using exploratory factor analyses.ETHICAL CONSIDERATIONS: The study was approved in Sweden by a review board. In Norway and the Netherlands, data services and review boards were informed about the study.RESULTS: . The factor structure revealed four domains of outcomes, which did not confirm the six Euro-MCD domains.CONCLUSION: Field-testing the Euro-MCD Instrument showed the most frequently experienced outcomes and which outcomes correlated with each other. When revising the instrument, domains should be reconsidered, combined with theory about underlying concepts. In the future, a feasible and valid instrument will be presented to get insight into how moral case deliberation supports and improves healthcare.
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33.
  • De Vries, Bouke (författare)
  • Care-deficits and polarization : Why the time is ripe for a universal care conscription
  • 2022
  • Ingår i: Nursing Ethics. - : Sage Publications. - 0969-7330 .- 1477-0989. ; 29:3, s. 709-718
  • Tidskriftsartikel (refereegranskat)abstract
    • A large share of countries is struggling to provide adequate care to their older populations. To deal with this challenge, philosopher Ingrid Robeyns has advocated legislation that requires (most) citizens to spend 1 year of their life providing dependency care. My aim of this contribution is to strengthen the case for this proposal, which I will refer to as a ‘universal care conscription’. I do so by defending this type of conscription against various alternative ways of addressing care-deficits that have been proposed. As I show, not only is it doubtful whether pursuing these alternatives will always, or even generally, suffice to prevent and/or alleviate care-deficits at reasonable financial and moral cost, a universal care conscription has significant civic benefits in an age of polarization that count strongly in its favour.
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34.
  • Dwyer, Lise-Lotte, et al. (författare)
  • Three nursing home residents speak about meaning at the end of life
  • 2008
  • Ingår i: Nursing Ethics. - : SAGE Publications. - 0969-7330 .- 1477-0989. ; 15:1, s. 97-109
  • Tidskriftsartikel (refereegranskat)abstract
    • This article provides a deeper understanding of how meaning can be created in everyday life at a nursing home. It is based on a primary study concerning dignity involving 12 older people living in two nursing homes in Sweden. A secondary analysis was carried out on data obtained from three of the primary participants interviewed over a period of time (18-24 months), with a total of 12 interviews carried out using an inductive hermeneutic approach. The study reveals that sources of meaning were created by having a sense of: physical capability, cognitive capability, being needed, and belonging. Meaning was created through inner dialogue, communication and relationships with others. A second finding is that the experience of meaning can sometimes be hard to realize.
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35.
  • Edlund, Margareta, et al. (författare)
  • Concept determination of human dignity
  • 2013
  • Ingår i: Nursing Ethics. - : Sage Publications. - 0969-7330 .- 1477-0989. ; 20:8, s. 851-860
  • Tidskriftsartikel (refereegranskat)abstract
    • This study presents findings from an ontological and contextual determination of the concept of dignity. Thestudy had a caritative and caring science perspective and a hermeneutical design. The aim of this studywas to increase caring science knowledge of dignity and to gain a determination of dignity as a concept.Eriksson’s model for conceptual determination is made up of five part-studies. The ontological and contex-tual determination indicates that dignity can be understood as absolute dignity, the spiritual dimension char-acterized by responsibility, freedom, duty, and service, and relative dignity, characterized by the bodily,external aesthetic dimension and the psychical, inner ethical dimension. Dignity exists in human beings bothas absolute and relative dignity.
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36.
  • Eklund, Anna Josse, 1968-, et al. (författare)
  • Swedish nurses’ perceptions of influencers on patient advocacy – a phenomenographic study
  • 2014
  • Ingår i: Nursing Ethics. - : Sage Publications. - 0969-7330 .- 1477-0989. ; 21:6, s. 673-683
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: A limited number of studies have shown that patient advocacy can be influenced by both facilitators and barriers which can encourage and discourage nurses to act as patient advocates. Objective: This study’s aim was to describe Swedish nurses’ perceptions of influencers on patient advocacy.Research design and context: Interviews with 18 registered nurses from different Swedish clinical contexts were analysed using the phenomenographic method.Ethical considerations: Ethical revisions were made in accordance with national legislation and guidelines by committees for research ethics at Karlstad University. Findings: Three levels of hierarchically related influencers on patient advocacy were found in the descriptive categories. The fundamental influencer, the nurse’s character traits, was described in the perceptions that advocacy is influenced by nurse’s having a moral compass, having control over the care situation, being protective and feeling secure as a nurse. The second most vital influencer, the nurse’s bond with the patient, was expressed in the perceptions of knowing the patient and feeling empathy for the patient. The third level of influencers, the organisational conditions, was described in the perceptions that the organisational structures and organisational culture influence patient advocacy.Discussion: The results correspond with findings from earlier research but add an understanding that influencers on patient advocacy exist at three hierarchically related levels. Conclusion: The nurse’s character traits are the fundamental influencer to patient advocacy, but in order to be comfortable and secure when advocating for patients, nurses also need to be familiar with both the patient and the situation. A supposition could be that all influencers interact, which needs to be further addressed in future studies.
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37.
  • Eklund Saksberg, My, et al. (författare)
  • Nurses’ priority-setting for older nursing home residents during COVID-19
  • 2024
  • Ingår i: Nursing Ethics. - : Sage Publications. - 0969-7330 .- 1477-0989.
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Ethical principles behind prioritization in healthcare are continuously relevant. However, applying ethical principles during times of increased need, such as during the COVID-19 pandemic, is challenging. Also, little is known about nursing home nurses’ prioritizations in their work to achieve well-being and health for nursing home residents. Aim: The aim of this study was to explore nursing home nurses’ priority-setting for older nursing home residents in Sweden during the COVID-19 pandemic. Research design, participants, and research context: We conducted a qualitative interview study. Data were collected through in-depth interviews (retrospective self-reports) between February and May 2021 with 21 nursing home nurses. To help respondents to recall their memories, we used the critical incident technique (CIT). We analyzed data within the theoretical framework and the methodological orientation of content analysis. Ethical considerations: Written and verbal consent was obtained before the interviews, and information was given to participants informing them that participation was entirely voluntary. The Swedish Ethical Review Agency gave an advisory opinion stating that there were no ethical objections to the research project (Dnr. 2020-05649). Findings: We identified an overarching theme—nursing home nurses struggling on multiple fronts, “just do it”—and seven categories: striving for survival and caring about a dignified death; responding sensitively to relatives’ expectations; ranking the urgency of needed care; responding to input from different actors; combating the spread of infection in unconventional ways; taking the lead and doing what is required; and following the ideals of person-centered nursing. Conclusions: Nurses’ priority-setting for older nursing homes residents during the COVID-19 pandemic meant strain and struggle. In some cases, nurses had taken responsibility for priorities falling outside their statutory powers. Different demands and interests affected nurses’ priorities. Nursing home nurses need organizational and managerial support to prioritize.
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38.
  • Eldh, Ann Catrine, et al. (författare)
  • Conditions for patient participation and non-participation in health care
  • 2006
  • Ingår i: Nursing Ethics. - Malden, USA : SAGE Publications. - 0969-7330 .- 1477-0989. ; 13:5, s. 503-514
  • Tidskriftsartikel (refereegranskat)abstract
    • This study explored patients' experiences of participation and non-participation in their health care. A questionnaire-based survey method was used. Content analysis showed that conditions for patient participation occurred when information was provided not by using standard procedures but based on individual needs and accompanied by explanations, when the patient was regarded as an individual, when the patient's knowledge was recognized by staff, and when the patient made decisions based on knowledge and needs, or performed self-care. Thus, to provide conditions for true patient participation, professionals need to recognize each patient's unique knowledge and respect the individual's description of his or her situation rather than just inviting the person to participate in decision making.
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39.
  • Eliasson, Margareta, et al. (författare)
  • Uncaring Midwives
  • 2008
  • Ingår i: Nursing Ethics. - : Sage journals. - 0969-7330 .- 1477-0989. ; 15:4, s. 500-511
  • Tidskriftsartikel (refereegranskat)abstract
    • The aim of this study was to understand how mothers experiencedmidwives' uncaring behaviour and actions during birth. Sixty-sevenfirst-time mothers took part in the study, in which data werecollected through interview. The interview text was analysedusing hermeneutic text analysis. Nearly half of the mothersinterviewed (n = 32) said that midwives did not care for them.The findings show that midwives' behaviour was humiliating whenthey ignored mothers and held them in contempt. The mothersfelt further humiliated when the midwives did not believe them,treated their bodies in a careless manner and tended to putblame on them. Through their behaviour and actions, some midwiveshave shown that they no longer have a caring attitude as anelement of their professional practice and that they have ignoredethics by offending mothers' sense of dignity.
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40.
  • Elmberger, Eva, et al. (författare)
  • Experience of dealing with moral responsibility as a mother with cancer
  • 2005
  • Ingår i: Nursing Ethics. - : SAGE Publications. - 0969-7330 .- 1477-0989. ; 12:3, s. 253-262
  • Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
    • This study explored how women with a diagnosis of cancer (lymphoma) deal with moral concerns related to their responsibility as parents. Ten women with cancer and who had children living at home were interviewed. The interviews were analysed according to the constant comparative method used in grounded theory. In order to provide a focus for the analysis, the ethics of care and the concept of mothering were used as sensitizing concepts. The core concept ‘experience of dealing with moral responsibility of being a parent with cancer by redefining oneself as a mother’ was identified. The processes involved were: interrupted mothering; facing the life-threatening illness and children’s reactions; striving to be a good mother; attempting to deal with moral responsibility; and coming to terms with being a mother.
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