| 81. |
- Norberg, Astrid
(författare)
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Sense of self among persons with advanced dementia
- 2019
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Ingår i: Alzheimer's Disease. - Brisbane : Codon Publications. - 9780646809687 ; , s. 205-221
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Bokkapitel (refereegranskat)abstract
- As humans, we have a sense of self, and at best, we are proud of our abilities and feel respected by other persons. Persons with dementia have been regarded losing their self. Quantitative research has shown that this is true, while qualitative research has shown that parts of self are severely affected while other parts remain even among persons with advanced dementia. These persons sometimes keep feeling “still the same” as before getting dementia. Their memory deficits help as does support from other persons. The theory of three aspects of self by the psychologists Rom Harré and Steven Sabat are presented, that is, the feeling that we are, who we are, and who we are together with other persons. Based on empirical research, suggestions will be given about how by promoting experiences of at-homeness, dignity, and being oneself related to others we can help persons with advanced dementia experience themselves as valuable persons.
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| 82. |
- Normann, Hans Ketil, et al.
(författare)
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People with severe dementia exhibit episodes of lucidity : A population-based study
- 2006
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Ingår i: Journal of Clinical Nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 15:11, s. 1413-1417
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Tidskriftsartikel (refereegranskat)abstract
- Aims and objectives. To describe frequency and characteristics of people with severe dementia who according to care providers, exhibit ELs in a population of those with dementia in institutional care.Background. There are reports in the literature concerning episodes when the resident unexpectedly says or acts in a way that surprises the care provider because the resident seems to be much more aware of her/his situation than usual. This is labelled ‘episodes of lucidity’ (ELs).Design. The study is based on data from a point prevalence study from institutions for the older people in northern Sweden in May 2000.Methods. Out of 3804 residents, assessed by key care providers, by means of the Multi-Dimensional Dementia Assessment Scale (MDDAS) with questions about ELs added, 92 residents were found to have severe dementia and difficulties with verbal communication. The key care providers’ competence in assessing severe dementia was not evaluated. An ethics committee approved the study.Results. Fifty-two residents (57%) were assessed as exhibiting ELs. Residents who showed ELs had higher orientation scores and expressed more emotions than residents who did not show ELs. More residents who exhibited ELs took outdoor walks with their care providers exhibited ELs than those who did not (P = 0·001).Conclusions. Every second resident with severe dementia and difficulties with verbal communication showed ELs.Relevance for clinical practice. The fact that every second resident with severe dementia and difficulties with verbal communication showed ELs and that this was noticed especially when care providers took outdoor walks with the residents imply that closer contact between care providers and residents with severe dementia could change the care providers’ expectations and enhance communication between the parties.
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| 83. |
- Nygren, Björn, et al.
(författare)
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Inner strength as disclosed in narratives of the oldest old.
- 2007
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Ingår i: Qualitative Health Research. - : SAGE Publications. - 1049-7323 .- 1552-7557. ; 17:8, s. 1060-73
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to illuminate the meaning of inner strength when very old as narrated by women and men 85 and 90 years old. The authors used a phenomenological hermeneutical method to analyze interviews from 11 women and 7 men, aged either 85 or 90, who scored high on scales measuring phenomena related to inner strength. The following themes emerged from the analysis: feeling competent in oneself yet having faith in others, looking on the bright side of life without hiding from the dark, feeling eased and also being active, being the same yet growing into a new garment, and living in a connected present but also in the past and the future. The authors understood the meaning as Life Goes On—Living It All. To illuminate this meaning further, the authors related the findings to the Aristotelian virtues and the golden mean, and to developmental theory.
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| 84. |
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| 85. |
- Paulson, Margareta, et al.
(författare)
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Men's descriptions of their experience of nonmalignant pain of fibromyalgia type
- 2001
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 15:1, s. 54-59
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this study was to gather men's descriptions of their experience of nonmalignant pain of fibromyalgia (FM) type in order to to gain a deeper understanding of this phenomenon. Fourteen men participated in the study. A qualitative method with narrative interviews and content analysis were used. The findings showed that the men's experience of pain fell within two major themes: "perceptions of diversified bodily pain" and "perceptions of fluctuating pain". The pain had progressed from being local to being widespread. Characteristic was that the men described both pain that worried them and pain that did not worry them and also that the pain passed through both calm and difficult phases. This study highlights the importance of acknowledgement that men had specific experiences and used metaphorical expressions to make the pain visible. The clinical indication in this study is that health care staff need to listen intently to each man's experience of long-term pain that involve a great variety of both bodily and emotional symptoms. These findings are a crucial prerequisite for the health care staff's possibility to offer support and relief to men with pain of FM type.
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| 86. |
- Paulson, Margareta, et al.
(författare)
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Nurses' and physicians' narratives about long-term non-malignant pain among men
- 1999
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Ingår i: Journal of Advanced Nursing. - : Wiley. - 0309-2402 .- 1365-2648. ; 30:5, s. 1097-1105
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to illuminate the meaning of skilled nurses' and physicians' lived experiences in their encounters with men suffering from long-term, non-malignant pain of at least 6 month duration. Seventeen nurses and four physicians participated in the study. A phenomenological-hermeneutic method was used. In the narratives three themes, "needing to be manly", "struggling for relief from pain" and "needing human support" emerged. The phenomenon "confirmation" of the theme "struggling to be manly" means that nurses' and physicians' must have such a relationship with theese men that they really feel respected. Confirmation of the theme "struggling for relief from pain! means thar the care givers must convince these men that they really believe each unique individual's narratives. Confirmation of the theme "needing human support" means that nurses and physicians have to behave in such a way that these men are convinced that the caregivers really care about them. When the men felt confirmation they dared to disclose their pain experiences more honestly. This is a preliminary prerequisite for nurses' and physicians' potential to help these men.
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| 87. |
- Sandman, Per-Olof, 1950-, et al.
(författare)
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Morning care of patients with Alzheimer-type dementia : A theoretical model based on direct observations
- 1986
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Ingår i: Journal of Advanced Nursing. - : John Wiley & Sons. - 0309-2402 .- 1365-2648. ; 11:4, s. 369-378
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Tidskriftsartikel (refereegranskat)abstract
- Five hospitalized patients in different stages of Alzheimer-type dementia were monitored by unstructured, direct observations during morning care. Orem's model of nursing as a compensation for the patient's lack of self-care capabilities was used as a frame of reference for an analysis of the behaviours of patients and nurses during morning care. A 12-step classification system was developed to be used as a guide to understand and determine abilities essential for performance of morning care for demented patients. The quantitative assessment showed that none of the patients was able to manage morning care independently, but there was a wide variation in their highest level of performance.
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| 88. |
- Santamäki Fischer, Regina, et al.
(författare)
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"I'm on my way" The meaning of being oldest old, as narrated by people aged 95 and over
- 2007
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Ingår i: Journal of Religion Spirituality and Aging. - : Taylor & Francis. - 1552-8049 .- 1552-8030. ; 19:2, s. 3-19
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Tidskriftsartikel (refereegranskat)abstract
- A phenomenological hermeneutic analysis of interviews with 12 persons aged between 95 and 103 years was performed to uncover the meaning of the lived experience of being oldest old. Two themes were formulated, namely, being in stillness and in movement, which involves being in one’s aged body, unable to move, and being in the stillness of the inner person occupied with an inner movement of remembering, and reconciling with, life; and being at the threshold and being ready to let go, which implies being at peace with God and feeling confidence despite the anxiety of dying. A comprehensive understanding was formulated based
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| 89. |
- Skaalvik, Mari Wolff, et al.
(författare)
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The experience of self and threats to sense of self among relatives caring for people with Alzheimer's disease
- 2016
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Ingår i: Dementia. - : Sage Publications. - 1471-3012 .- 1741-2684. ; 15:4, s. 467-480
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Tidskriftsartikel (refereegranskat)abstract
- This study explored how the relatives of people with Alzheimer's disease expressed Self 2 and Self 3 according to Harré's social constructionist theory of selfhood. Having a relative with Alzheimer's disease affects one's life. In this study, we concentrated on how close relatives of people with Alzheimer's disease experienced their sense of self. This study was descriptive and qualitative. Interviews were conducted with 20 relatives of 10 people with Alzheimer's disease from 2009 to 2011. The data were analysed according to Harré's social constructionist theory of selfhood including Selves 2 and 3. Participants reported that Alzheimer's disease challenged their personal attributes, relations and positioning. Understanding how Alzheimer's disease affects the sense of self among close relatives is important, as this knowledge is pivotal for supporting these relatives who are often informal caregivers in ways that enable a fulfilling and meaningful life.
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| 90. |
- Strandberg, Gunilla, 1957-, et al.
(författare)
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Meaning of dependency on care as narrated by 10 patients
- 2003
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Ingår i: Research and Theory for Nursing Practice. - : Springer Publishing Company. - 1541-6577 .- 1945-7286. ; 17:1, s. 65-84
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Tidskriftsartikel (refereegranskat)abstract
- This article is part of an ongoing study that aims to illuminate the meaning of dependency on care. The aim of this particular study is to disclose the meaning of dependency on care as narrated by patients. We conducted interviews with patients (six men and four women) who had been in medical or surgical wards for at least 14 days. Seven of the patients were also interviewed one week after discharge. The participants ranged in age from 41 to 84 years old. The interviews were tape-recorded and transcribed verbatim. A phenomenological-hermeneutic approach was used to interpret the resulting text. The results show that to be dependent on care is to face the inevitability of not being able to manage by oneself--it is being attached to the nurses and bound to the care they offer. Being dependent on care involves a struggle to get care without treading on the nurses' toes. The nurses are one's lifelines and getting care is essential, no matter what. It is better to receive any form of care, good or bad, than to receive nothing. Being dependent on care is to be exposed and subjected to a nurse's ability and benevolence. One comprehensive understanding of the meaning of dependency on care is simply that "one does not saw off the branch one is sitting on." Furthermore, dependency on care involves a struggle to move forward in a life that hurts. Patients lose much of their freedom of choice in daily life and grieve their loss of ability and value. Patients may be able, however, to see things they would have never noticed earlier in life. Dependency on care is understood as one kind of "limit situation." Patients who are dependent on care may reevaluate their potential in life and gain another perspective on life.
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