| 1. |
- Granrud, MD, et al.
(författare)
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Health Care Personnel's Perspectives on Quality of Palliative Care During the COVID-19 Pandemic : A Cross-Sectional Study
- 2023
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Ingår i: Journal of Multidisciplinary Healthcare. - : Dove Medical Press. - 1178-2390. ; 16, s. 2893-2903
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: The provision of high-quality palliative care is challenging, especially during a pandemic like COVID-19. The latter entailed major consequences for health care systems and health care personnel (HCP) in both specialist and community health care services, in Norway and worldwide. The aim of this study was to explore how the HCP perceived the quality of palliative care in nursing homes, medical care units, and intensive care units during the COVID-19 pandemic. Methods: This study had a cross-sectional design. A total of 290 HCP from Norway participated in the study (RR = 25.8%) between October and December 2021. The questionnaire comprised items concerning respondents' demographics and quality of care, the latter measured by the short form of the Quality from the Patient's Perspective-Palliative Care instrument, adapted for HCP. The STROBE checklist was used. Results: This study shows that the HCP scored subjective importance as higher in all dimensions, items and single items than their perception of the actual care received. This could indicate a need for improvement in all areas. Information about medication, opportunity to participate in decisions about medical and nursing care and continuity regarding receiving help from the same physician and nurse are examples of areas for improvement. Conclusion: Study results indicate that HCP from nursing homes, medical care units, and intensive care units perceived that quality of palliative care provided was not in line with what they perceived to be important for the patient. This indicate that it was challenging to provide high-quality palliative care during the COVID-19 pandemic.
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| 2. |
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| 3. |
- Bergstrand, Renée, et al.
(författare)
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AKADEMISKT SÄBO
- 2023
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- I den här sessionen presenterar vi akademisk SÄBO ur olika perspektiv. Vi kommer att berätta om: (x) samskapande, utveckling och uppbyggnad av akademisk SÄBO(x) att vara kommundoktorand och vägen dit. Vi kommer även att berätta om (x) att vara forskare på SÄBO och om (x) samverkan mellan forskning, utveckling och utbildning. I sessionen knyter vi an till palliativ vård genom våra olika exempel. Bland annat kommer vi att beskriva SÄBO som arena för utveckling, följeforskning och deltagarbaserad forskning.samt SÄBO som arena för strukturerade förbättringsarbeten och ett doktorandprojekt om förberedande samtal om livet och döden på SÄBO tillsammans med personal och chefer på SÄBO i Stockholm
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| 4. |
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| 5. |
- Ek, Kristina, et al.
(författare)
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Death and caring for dying patients : exploring first-year students´descriptive experiences
- 2014
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Ingår i: International Journal of Palliative Nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 20:10, s. 509-515
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To describe first-year nursing students' experiences of witnessing death and providing end-of-life care.Methods: This study is part of a larger longitudinal project. Interviews (n=17) were conducted with nursing students at the end of their first year of education. To analyse the interviews (lived-experience descriptions), a thematic analysis, ‘a search for meaning’ (Van Manen, 1997) was applied.Results: The results are presented within the framework of four separate themes: (1) The thought of death is more frightening than the actual experience, (2) Daring to approach the dying patient and offering something of oneself, (3) The experience of not sufficing in the face of death and (4) Being confronted with one's own feelings.Conclusion: Nursing students require continuous support and opportunity to reflect and discuss their experiences about caring for dying patients and confronting death throughout the entirety of their education. In addition, teachers and clinical supervisors need to give support using reflective practice to help students to develop confidence in their capacity for caring for dying patients.
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| 6. |
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| 7. |
- Granrud, Marie, et al.
(författare)
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Health Care Personnel’s Perspectives on Quality of Palliative Care During the COVID-19 Pandemic : A Cross-Sectional Study
- 2023
-
Ingår i: Journal of Multidisciplinary Healthcare. - : Informa UK Limited. - 1178-2390 .- 1178-2390. ; 16, s. 2893-2903
-
Tidskriftsartikel (refereegranskat)abstract
- Purpose: The provision of high-quality palliative care is challenging, especially during a pandemic like COVID-19. The latter entailed major consequences for health care systems and health care personnel (HCP) in both specialist and community health care services, in Norway and worldwide. The aim of this study was to explore how the HCP perceived the quality of palliative care in nursing homes, medical care units, and intensive care units during the COVID-19 pandemic.Methods: This study had a cross-sectional design. A total of 290 HCP from Norway participated in the study (RR = 25.8%) between October and December 2021. The questionnaire comprised items concerning respondents’ demographics and quality of care, the latter measured by the short form of the Quality from the Patient’s Perspective—Palliative Care instrument, adapted for HCP. The STROBE checklist was used.Results: This study shows that the HCP scored subjective importance as higher in all dimensions, items and single items than their perception of the actual care received. This could indicate a need for improvement in all areas. Information about medication, opportunity to participate in decisions about medical and nursing care and continuity regarding receiving help from the same physician and nurse are examples of areas for improvement.Conclusion: Study results indicate that HCP from nursing homes, medical care units, and intensive care units perceived that quality of palliative care provided was not in line with what they perceived to be important for the patient. This indicate that it was challenging to provide high-quality palliative care during the COVID-19 pandemic.
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| 8. |
- Henoch, Ingela, et al.
(författare)
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De 6 S:n : Personcentrerad palliativ vård för alla åldrar
- 2022
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Konferensbidrag (populärvet., debatt m.m.)abstract
- De 6 S:n, självbild, symtomlindring, sociala relationer, sammanhang, strategier och självbestämmande, haranvänts för att bidra till personcentrerad palliativ vård i Sverige sedan 1990-talet. De 6 S:n har traditionellt använts inom specialiserad palliativ vård, men passar också för allmän palliativ vårdunder hela livsspannet. Palliativ vård av barn ställer stora krav. Ett projekt där De 6 S:n används för att bidra tillpersoncentrerad palliativ vård av barn kommer att presenteras. Inom äldreomsorg ställs stora krav på attbevara integritet och personcentrering när funktion, kognition och möjlighet till självbestämmande börjar avta.Vi presenterar forskning om hur kroppslig omvårdnad inom äldreomsorg kan bli mer personcentrerad och enmodell för att förbättra självbestämmande och därmed bidra till en personcentrerad palliativ vård inomäldreomsorgen.De 6S:n har diskuterats, preciserats och utvecklats av det nationella 6S-nätverket för att beskriva det teoretiskainnehållet och för att utveckla den praktiska användbarheten. Diskussionen är levande och ständigt fortgåendeför att förbättra personcentrerad palliativ vård för personer i olika åldrar och olika vårdkontext.
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| 9. |
- Holmberg, Bodil, 1970-, et al.
(författare)
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Assenting to exposedness : meanings of receiving assisted bodily care (RABC) in a nursing home as narrated by older persons
- 2019
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Ingår i: Presented at IAGG-ER 2019 - 9th International Association of Gerontology and Geriatrics European Region Congress, Gothenburg, May 23-25, 2019.
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Konferensbidrag (refereegranskat)abstract
- Introduction: Most older people living in nursing homes need R-ABC (assistance while dressing, undressing, eating, maintaining personal hygiene and while being transferred). This conveys to be helped with things that most people prefer to do in private, turning the older person’s body into an area, accessible to others in ways that would be unacceptable in other contexts.Aim: The aim of the study was to elucidate meanings of receiving assisted bodily care, as narrated by older persons living in a nursing home.Method: The study used a lifeworld design, focusing upon how the older persons experienced their world. Narrative interviews with 12 older persons generated 28 interviews.The transcribed interviews were analyzed by use of a phenomenological hermeneutical method, inspired by the philosophy of Ricoeur.Results: The main theme ’Assenting to exposedness’ means to be exposed to others’ glances, touch and benevolence in an organisation that limits the conditions under which one lives. The overall meaning is to be exposed. Before that, one can do nothing but assent. The theme comprised five themes.To have hope in hopelessnessMeans to recognise remaining bodily assets and receive help to practice in order to increase self-determination, while simultaneously being aware that the life journey is nearing its end.To relinquish one’s body into others’ handsMeans pleasure when experienced as soft, calm, warm, skilled and caring touch while talking about other things, which mutes the care needs. It means suffering when your wishes are neglected and the body is treated ’like a package’.To be between power and powerlessnessMeans to be able, to preserve self-determination by keeping trying to manage on one’s own. It means powerlessness when being without say, or feeling abandoned while waiting.To oscillate between one’s own responsibility and demands Means to judge situations and assent to circumstances predicted by others, but it also means uttering complaints about shortages in R-ABC, caused by organisational economic priorities.To be in an ongoing interactionMeans having an equal and mutual fellowship with ANs, tinged by a joviality and closeness that normalises otherwise embarrassing situations. On the other hand, it means loneliness and alienation when R-ABC is percieved mechanical, not attending to personal wishes about the delivery of assisted bodily care.Conclusions: The meaning of R-ABC is to be exposed, but not passively. Rather, it means to be self-determinant for as long as possible, to perceive the body as lived and avoid objectification. Further, to take on responsibility for judging the ANs work-load before asking for help.
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| 10. |
- Lundh Hagelin, Carina, et al.
(författare)
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Teaching about death and dying : A national mixed-methods survey of palliative care education provision in Swedish undergraduate nursing programmes
- 2022
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Ingår i: Scandinavian Journal of Caring Sciences. - : John Wiley & Sons. - 0283-9318 .- 1471-6712. ; 36:2, s. 545-557
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Tidskriftsartikel (refereegranskat)abstract
- Background: In coming decades, the number of people affected by illnesses who need palliative care will rise worldwide. Registered Nurses are in a central position in providing this care, and education is one of the necessary components for meeting coming requirements. However, there is a lack of knowledge about palliative care in undergraduate nursing education curricula, including the extent of the education provided and the related pedagogical methods. Aim: The aim was to investigate the extent, content and pedagogical methods used and to explore lecturers’ experiences of being responsible for teaching and learning about palliative care for undergraduate nursing students on nursing programmes at Swedish universities. Setting: All 24 universities responsible for providing undergraduate nursing education in Sweden participated. Participants: One lecturer with in-depth knowledge about palliative care or end-of-life care education participated in the quantitative (n = 24) and qualitative (n = 22) parts of the study. Method: A mixed-method research study with an explorative design was used. Descriptive statistics were used to analyse quantitative data, and content analysis for qualitative, with both also analysed integratively. Results: Few undergraduate nursing programmes included a specific course about palliative care in their curricula, however, all universities incorporated education about palliative care in some way. Most of the palliative care education was theoretical, and lecturers used a variety of pedagogical strategies and their own professional and personal experience to support students to understand the palliative care approach. Topics such as life and death were difficult to both learn and teach about. Conclusions: There is a need for substantial education about palliative care. Lecturers strive on their own to develop students’ understanding and increase the extent of palliative care education with innovative teaching strategies, but must compete with other topics. Palliative care teaching must be prioritised, not only by the universities, but also by the national authority.
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