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- Gustafsson, Christine, 1967-, et al.
(författare)
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Trust leading to hope - the signification of meaningful encounters in Swedish healthcare. The narratives of patients, relatives and healthcare staff
- 2013
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Ingår i: International Practice Development Journal. - 2046-9292. ; 3:1, s. 1-13
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Tidskriftsartikel (refereegranskat)abstract
- Background: The fact that patients and relatives experience poor healthcare encounters is evident in the number of complaints to patients’ advisory committees, and from studies and statistics. Looking at ‘the other side of the coin’, research into good caring encounters experienced as meaningful encounters in healthcare is scarce.Aim: To illuminate the signification of meaningful encounters in healthcare. 124 narratives from patients, relatives and healthcare staff regarding experiences of meaningful encounters in Swedish healthcare were analysed using a phenomenological hermeneutic research method.Conclusions: The results indicate that a meaningful encounter means gratefulness, is founded on trust, cooperation and courage, and results in self-trust through wellbeing, increased understanding and life-changing insights. The encounters have given insight into, and increased understanding of, the patient’s own life, the families’ lives, and/or healthcare professionals’ lives. With this, and awareness of the importance and power of meaningful encounters, healthcare staff might use a meaningful encounter as a powerful instrument in caring.Implications for practice:For patients and relatives, trust derived from meaningful encounters in healthcare leads to self-trustCaring within healthcare consisting of meaningful encounters, ‘the other side of the coin’ gives important knowledge that could facilitate improvements in healthcare staff’s encounters with patients and relatives, and also enrichment in their own professional developmentIncreased understanding and awareness of the power of meaningful encounters can be discussed in terms of patient safety
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- Loeb, Carina, 1967-, et al.
(författare)
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Att som vuxen leva med hjälp från en ställföreträdare : En förstudie om huvudmännens förväntningar och upplevelser i Eskilstuna och Strängnäs
- 2021
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- De som har en ställföreträdare, vilka kallas för huvudmän, är en sårbar grupp eftersom de i många fall är beroende av andra för att kunna klara sig i sin vardag. Människor som av fysiska eller psykiska orsaker inte kan föra sin egen talan i rättsliga frågor kan få hjälp i form av en ställföreträdare enligt föräldrabalken. En ställföreträdare träder in i huvudmannens ställe i en rad situationer där huvudmannen behöver hjälp. Huvudmännens relationer till ställföreträdare har stor betydelse för huvudmännens levnadsvillkor i vardagen.Syftet med denna förstudie har varit att undersöka huvudmännens förväntningar på och erfarenheter av att leva med hjälp från god man eller förvaltare för att kunna klara sig i sin vardag. Förstudiens frågeställningar är följande: Vilka förväntningar har huvudmännen på sin ställföreträdare? Vilka erfarenheter har huvudmännen av hjälp från ställföreträdare i sin vardag? Hur upplever huvudmännen tilltron till sin egen förmåga att kunna klara sig på egen hand i sin vardag? Hur upplever huvudmännen tilltron till sin egen förmåga att kunna påverka vilken hjälp de kan få av sin ställföreträdare? Vilka utvecklingsområden finns avseende hjälp genom ställföreträdarskap och huvudmännens tilltro till sin egen förmåga?Ett praktiskt och erfarenhetsbaserat lärande och utveckling har stått i centrum i förstudiens design redan från början genom ett praktiknära och deltagarbaserat forskningsperspektiv. Både tematiskt öppna frågor och slutna frågor användes vid datainsamling. Beroende på deltagarnas behov och kognitiva funktionsnedsättning gavs kompletterande förklaringar av frågorna.Huvudmännens förväntningar på och erfarenheter av att leva med hjälp från god man eller förvaltare för att kunna klara sig i sin vardag visar intressanta resultat. Likheter och skillnader om hjälp från ställföreträdare ger en bra grund för vidare utvecklingsarbeten. En generell slutsats är att det görs en del goda arbeten för huvudmännen, men det behövs en del förbättringar också. Följande rekommendationer vill vi särskilt uppmärksamma:- Goda exempel och framgångsfaktorer i ställföreträdarskap bör tas tillvara och synliggöras- Vad som ingår i ställföreträdarskap enligt bestämmelser bör tydliggöras mer både för huvudmännen och ställföreträdare- Utbildningsinsatser för ställföreträdare bör ses över och kunskaper om olika typer av funktionsnedsättning som huvudmännen har ges tillräckligt- En heterogen grupp framträder där tilltron till förmågan och förväntningar och erfarenheter varierar till en viss del, vilket är ett tecken på att dialog, samråd och lyhördhet bör prioriteras i fortsatt utvecklingsarbeten
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- Talman, Lena, et al.
(författare)
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Staff members and managers’ views of the conditions for the participation of adults with profound intellectual disability or profound intellectual and multiple disabilities
- 2019
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Ingår i: JARID. - : Wiley. - 1360-2322 .- 1468-3148. ; 32:1, s. 143-151
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundParticipation is a central aspect of quality of life, and it is indicative of high‐quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities.AimTo describe staff members’ perceptions of what participation means for adults with profound intellectual and multiple disabilities.MethodUsing a phenomenographic approach, 27 interviews were analysed resulting in variations in the conditions for participation.ResultsThe interviews revealed conditions for participation at individual, staff and organisational levels.ConclusionParticipation appears to be an un‐reflected phenomenon, and several conditions must be met to achieve it. The conditions are experienced being fundamental for adults within the target group to achieve any kind of participation. The staff members and managers’ perceptions of participation as conditional can make it more difficult for adults within the target group to achieve the Swedish disability policy goal of participation.
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- Talman, Lena, et al.
(författare)
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Staff’s and managers’ conceptions of participation for adults with profound intellectual disabilities or profound intellectual and multiple disabilities
- 2019
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Ingår i: Scandinavian Journal of Disability Research. - : Stockholm University Press. - 1501-7419 .- 1745-3011. ; 21:1, s. 78-88
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Tidskriftsartikel (refereegranskat)abstract
- One goal of disability policies in Sweden and other countries is to ensure that people with disabilities are afforded an equal level of daily life participation as other citizens. However, few studies have examined this in adults with profound intellectual disabilities (PID) or profound intellectual and multiple disabilities (PIMD). This study used a phenomenographic approach to interview managers and staff at a social care organisation in a medium-sized Swedish municipality. It aimed to elucidate and describe conceptions of participation to highlight conceptual variations. Divergent conceptualisations were found, reflecting a lack of organisational consensus about the meaning of participation. Trying to fulfil policy goals of daily life participation for adults with PID or PIMD without a common understanding of the meaning of participation is difficult, so people at all levels of an organisation need to have a shared understanding and definition of it. © 2019 The Author(s).
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| 7. |
- Talman, Lena, et al.
(författare)
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Staffs’ documentation of participation for adults with profound intellectual disability or profound intellectual and multiple disabilities
- 2018
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Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 40:1, s. 2527-2537
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: This study investigated what areas of International Classification of Functioning, Disability and Health were documented in implementation plans for adults with profound intellectual disability or profound intellectual and multiple disabilities with focus on participation.Methods: A document analysis of 17 implementation plans was performed and International Classification of Functioning, Disability and Health was used as an analytic tool.Results: One hundred and sixty-three different codes were identified, especially in the components Activities and participation and Environmental factors. Participation was most frequently coded in the chapters Community, social and civic life and Self-care. Overall, the results showed that focus in the implementation plans concerned Self-care and Community, social and civic life. The other life areas in Activities and participation were seldom, or not at all, documented.Conclusions: A deeper focus on participation in the implementation plans and all life areas in the component Activities and participation is needed. It is important that the documentation clearly shows what the adult wants, wishes, and likes in everyday life. It is also important to ensure that the job description for staff contains both life areas and individual preferences so that staff have the possibility to work to fulfill social and individual participation for the target group.Implications for rehabilitationThere is a need for functioning working models to increase participation significantly for adults with profound intellectual disability or profound intellectual and multiple disabilities.For these adults, participation is achieved through the assistance of others and support and services carried out must be documented in an implementation plan.The International Classification of Functioning, Disability and Health can be used to support staff and ensure that information about the most important factors in an individual’s functioning in their environment is not omitted in documentation.
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| 8. |
- Baudin, Katarina, 1971-
(författare)
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Assistive technology and welfare technology explorations : Aspects of perception, utilisation and decision-making
- 2021
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Aims: The overall aim of this thesis was to explore decision makers’ and professionals’ perceptions, utilisation, and decision-making about assistive technology (AT) and welfare technology (WT) within the interprofessional field of care for older adults. Methods: A literature review was conducted, including nine peer-reviewed scientific articles (I), analysed with a qualitative descriptive method. A web-based questionnaire, answered by 393 officials and health care providers in municipal eldercare (II and III), was analysed using content analysis of the open-ended answers (II) and descriptive and inferential statistics of the closed-ended answers (III). A semi-structured interview with 24 decision makers was also conducted and analysed with thematic reflexive analysis. Results: The studies revealed a lack of evidence-based decision models to support assistive and welfare technology decisions, partly due to the context being complex and multifaceted. The technology was perceived as progressive and cutting-edge, while organizational structure and culture were perceived as regressive and resistant to change. The results revealed personnel working with WT were generally very positive toward new technology, although there were age, gender, participation, and professional differences. Study IV results revealed that supportive aspects, technology aspects, patient aspects, and knowledge aspects influence AT-organizations' decision-making. Although AT/WT has been portrayed to have the potential to solve the challenges of an aging population, the decision-making regarding AT/WT is complex and evolving. Increased communication between government, regions, and municipalities to support the development of guidelines would enhance the goal of a person-centred care. Conclusion: This thesis contributes to knowledge of decision-making models, focusing on GATE´s model (Khasnabis et al., 2015) applicable in AT/WT. Further development and deepen knowledge in the area of AT/WT appears as needed due to results showing that there is a lack of structured knowledge about the decision-making processes and evaluations of effects of AT/WT.
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| 9. |
- Baudin, Katarina, et al.
(författare)
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Decision-Making Is in the Making! Aspects of Decision-Making in the Area of Assistive and Welfare Technology : A Qualitative Study
- 2021
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Ingår i: International Journal of Environmental Research and Public Health. - : MDPI. - 1661-7827 .- 1660-4601. ; 18:8
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Tidskriftsartikel (refereegranskat)abstract
- Assistive and welfare technology (AT/WT) has been introduced as a way of facing an ageing population and providing support for older adults in their daily lives. There is much research concerning the assessment and recommendation of AT/WT to individual end-users. However, few studies have explored AT/WT decision-making from a managerial perspective. This study explores what aspects influence decision-making in assistive technology organizations concerning new technology procurements. The study is based on interviews with 24 managers engaged in assistive technology organizations, representing 13 of 21 regions in Sweden. The interview data consisted of the participants’ experiences deciding on AT/WT procurement. A reflexive inductive thematic analysis was used to identify aspects that influenced decision-making. The main findings show that decision-making is in the making, meaning that decision-making is a constant on-going managerial process. Furthermore, the findings show that managers experience uncertainty in the decision-making, sometimes make ad hoc decisions and request an evidence-based, person-centred approach to improve decision-making. The study concludes that supportive, technology, patient, and knowledge aspects influence managers’ decisions.
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