| 1. |
- Ahnlund, Petra, 1973-, et al.
(författare)
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Perceptions of intimacy and integrity in formal home care : [Föreställningar om intimitet och integritet i hemtjänst och personlig assistans]
- 2023
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Ingår i: European Journal of Social Work. - : Taylor & Francis Group. - 1369-1457 .- 1468-2664. ; 26:5, s. 828-839
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Tidskriftsartikel (refereegranskat)abstract
- Sweden has a long tradition of providing social care and support to its citizens in their own homes through formal home care, delivered either by home care services or personal assistance. A majority of people given support by formal home care need assistance with personal and intimate care. The focus of this interview study was on exploring care recipients’, care workers’, personal assistants’ and care unit managers’ perceptions and experiences of intimate and personal care in the context of formal home care in Sweden. In total, 57 interviews were conducted with 42 persons. Three themes emerged in the analysis: Personal Hygiene, Personal Sphere, and The Contextual Variability of Intimacy. Interviewees described intimate care as being inseparable from a person’s service needs as a whole. Highlighted was how caring for and washing intimate body parts, intrusion into recipients’ personal spheres, and the need to preserve integrity vary depending on situational, temporal and relational aspects. To safeguard the care recipient’s influence, integrity and dignity in the reception/provision of care work, home care services and personal assistance, it is important to raise awareness of the variation in perceptions of intimate and personal care in education and inhouse training.
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| 2. |
- Andersson, Katarina, 1963-, et al.
(författare)
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Empathetic attuning : 'How would i feel if i had to expose myself all the time?'—strategies for managing personal and intimate care in swedish formal home care
- 2023
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Ingår i: British Journal of Social Work. - : Oxford University Press. - 0045-3102 .- 1468-263X. ; 53:2, s. 921-938
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Tidskriftsartikel (refereegranskat)abstract
- Sweden, as a welfare state, has a long tradition of providing formal home care and support to their citizens in their own homes, either through home care services or personal assistance. A large percentage of frail elderly and persons with disability who receive formal home care require personal and intimate care, such as help with eating, showering, getting dressed and personal hygiene. Managing intimacy and safeguarding the care recipient’s integrity pose particular challenges for staff. The aim of this qualitative interview study is to describe and analyse care workers’ (CWs) and personal assistants’ (PAs) strategies for managing situations and challenges related to provision of personal and intimate care in the context of formal home care. Semi-structured interviews with eleven CWs and nine PAs were conducted. Our analysis reveals a complex repertoire of relational and communicative strategies, within an overall approach - which we labelled 'empathetic attuning'—of relating to the current situation and task at hand whilst safeguarding integrity. These strategies were intertwined with dimensions of time. The possibility to accomplish satisfactory personal and intimate care rests on structural and organisational conditions that promote sustainable working conditions, where relations characterised by continuity, integrity and respect can be realised.
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| 3. |
- Bertilsdotter Rosqvist, Hanna, 1976-, et al.
(författare)
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Doing adulthood through parenthood : notions of parenthood among people with cognitive disabilities
- 2013
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Ingår i: Alter;European Journal of Disability Research ;Journal Europeen de Recherche Sur le Handicap. - : Elsevier. - 1875-0672 .- 1875-0680. ; 7:1, s. 56-68
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Tidskriftsartikel (refereegranskat)abstract
- Perspectives on reproduction and developmental disabilities are gradually changing in Sweden. Through this change parents with developmental disabilities are gradually being included within an emergent discourse of “good enough parenting” on certain conditions. The present article explores discourses of reproduction and parenting among adults with developmental disabilities in two Swedish contexts: in a Swedish magazine, “Empowerment”, produced by and aimed at adults with autism, and interviews with people with intellectual disabilities in Sweden. Common to the materials from both studies are a normative reprosexual discourse of parenting and an underlying assumption that parenthood relates to adulthood in the sense that it requires maturity. The stories in the magazine “Empowerment” can be seen as expressing an emergent counter-hegemonic conditional discourse of “good enough parenting” which regards some people with autism as “good enough” parents. In general terms, the stories about parenting in the interview study depict parenting as related to age awareness and, unlike what is found in the material from “Empowerment”, there is no discussion of or reflection on whether or how impairment affects one's opportunity/ability to become a parent.
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| 4. |
- Bortes, Cristian, 1984-
(författare)
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Growing up with poor health and managing school : Studies on ill health and young people's educational achievements
- 2022
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Aim and objectives: The overall aim of this thesis was to empirically investigate consequences of poor health for children’s educational outcomes in Sweden. A central tenet is that health problems impact not only the afflicted individual but also people in their social and emotional proximity, in particular immediate family members. More specific objectives were to study: 1. The relationship between multiple clinically diagnosed mental disorders and children’s educational achievements in Sweden. 2. The bidirectional relationship between mental health problems and academic performance among Swedish adolescents, as well as heterogeneous patterns associated with gender and socioeconomic groups. 3. The effects of parental somatic and psychiatric health problems on the probability of youths leaving upper secondary education before completion in Sweden and potential gender differences in these effects. 4. The relationship between having a sibling with health problems and a healthy sibling’s school grades in the final year of compulsory education in Sweden and how socioeconomic background modifies this relationship.Theoretical framework: Key concepts applied in the thesis are health and illness. The ability to perform things in life, the ability to act, determines whether a person is healthy or ill. Illness (or poor health, treated as a synonymous term) entails a reduced ability to act in relation to one’s life situation and its demands. Family is viewed from a systems theory perspective. Poor health of a parent reduces his or her ability to maintain regular roles, which may require reorganisation of the family system. Siblings’ health problems can affect other children in the family by inducing concerns and occupying and diverting parents’ time and attention. All of this could be psychosocially stressful in many ways, not least for children in the family and their ability in relation to schooling.Data and methods: The research objectives were addressed by utilising social and medical microdata from Swedish administrative registers covering the entire population in Sweden. Data pertaining to different populations, collectively covering the period from 1987 to 2017, were used in four studies designated Studies I–IV. Educational achievement was measured in terms of teacher-assigned school grades awarded by the end of compulsory school and in upper secondary school, as well as completion (or non-completion) of an upper secondary education. Poor health was measured through data on outpatient visits to specialist healthcare facilities, psychotropic drug prescriptions and admissions/discharges from Swedish hospitals. Socioeconomic background was measured by parental level of education. The data were analysed by fitting linear and logistic regression models as well as cross-lagged path models.Results and conclusions: Empirical results of Study I showed that specific diagnosed mental disorders have varying, largely disadvantageous, associations with educational achievements of students that differ between boys and girls. Documentation of this in Sweden adds to evidence that mental disorders have a negative overall association with educational achievement, despite substantial variation in support and educational systems across countries. The results of Study II provided no support for a bidirectional relationship between mental health and academic performance of students aged 15-16 to 18-19 years. However, they support a unidirectional relationship, as a negative relationship was found between school grades at graduation from compulsory school and rates of subsequent psychotropic medication use in upper secondary school. The relationship was equal in size for both boys and girls but mainly among adolescents with the highest educated parents.Study III showed that having a mother or a father with psychiatric, but not somatic, illness that necessitated hospitalisation after completing compulsory schooling was associated with an increased probability of leaving upper secondary school before completion. No significant gender-based differences in this were found. Results presented in Study IV showed that having one or more siblings with health problems that necessitated recurrent hospitalisations was associated with lower grades. Children with ill siblings were also less likely to be eligible for an upper secondary education compared to children whose siblings did not have poor health. Socioeconomic background did not affect this educational disadvantage.Results presented in this thesis clearly corroborate the importance of health for children’s education. Children’s educational achievements at the end of compulsory school are inversely related to mental health problems in their adolescence. Thus, academic competence may have positive effects on certain aspects of young people’s mental health, which underscores the importance of promoting opportunities for youth to do as well as they can in school. The reciprocal aspect of the relationship between mental health and academic performance among school-aged children remains an important issue that requires further investigation. However, health is not just an individual issue; parents’ and siblings’ health problems can affect children and have negative ‘spillover’ effects on their schooling and educational achievements. This underlines the importance of a psychosocial perspective when identifying children’s difficulties in school. Taken together, health, and thus the school’s student health task, is highly associated with academic achievement and schools’ pedagogical responsibilities.
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| 7. |
- Hillborg, Helene, et al.
(författare)
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Integrating Interventions That Can Support a Career-Oriented Recovery for Young Adults : Building on the Supported Education Knowledge Base
- 2021
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Ingår i: Journal of Psychosocial Rehabilitation and Mental Health. - : Springer Science and Business Media LLC. - 2198-9834 .- 2198-963X. ; 8:1, s. 35-60
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Tidskriftsartikel (refereegranskat)abstract
- Young adults experiencing mental health problems are less educated than their peers, putting them in a more vulnerable position for employment and career possibilities. While Supported employment models have been widely implemented, educational supports may be necessary in order to contribute to longer term and sustainable employment. The aim of this study was to describe the state of current research regarding Supported education services for individuals with mental health problems, with a particular focus on studies that address both educational and vocational goals. A scoping review of articles published between 2000 and July 2020 was conducted. Eight databases were searched, titles/abstracts and full-text articles were reviewed for inclusion. The results, which built on 56 included articles, were analysed both descriptively and thematically. The results suggest that the focus in the literature has primarily been on adapting and implementing models for the needs of different populations and contexts. Many of these build on integrated models focusing on both vocational and educational needs. Despite addressing varied populations and working in varied contexts, it is possible to identify a number of essential components when delivering educational support. The review suggests a need to look at work and studies as equally important from a career development perspective. The knowledge base developed through studying supported education services and the educational components of newly emerging services, can contribute to the further development of integrated models for young adults.
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| 8. |
- Hillborg, Helene, et al.
(författare)
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Supporting education with IPS : advancing a career-oriented model for integrating work and study support for young adults in Sweden
- 2024
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Ingår i: Psychiatric rehabilitation journal. - : American Psychological Association (APA). - 1095-158X .- 1559-3126. ; 47:1, s. 37-45
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Tidskriftsartikel (refereegranskat)abstract
- Objective: Supported education (SEd) provides individualized support to people with mental health problems to achieve their educational goals. Individual placement and support (IPS) has emerged as a model through which SEd may be efficiently delivered. However, the components and characteristics of educational support for these employment-focused services have not been fully explored. Building on earlier studies, we constructed a preliminary model of SEd components that integrated with the IPS model. The SEd model included the eight original principles of IPS, developed to reflect the SEd component, and two new principles were suggested. The aim of the study is to investigate these adapted principles by exploring the feasibility of applying them within established IPS programs providing both employment and educational services.Methods: An organizational learning approach was taken, involving five IPS programs providing both employment and educational services to young adults with mental health problems. Data were collected through focus groups, interviews, and workshops with 19 IPS specialists.Results: The results suggest that while the IPS principles provide a feasible and relevant structure for the development and provision of integrated services, adaptations that reflect the educational context were considered valuable when supporting young adults in pursuing their career-related goals. Conclusions andImplications for Practice: The respondents confirmed that the SEd principles and the focus on support in educational contexts helped them to further develop their knowledge and strategies. While challenging, integrating SEd in IPS models shows good potential for supporting young adults as they struggle to reach longer term career-oriented goals.
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| 9. |
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| 10. |
- Kalman, Hildur, 1955-, et al.
(författare)
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Epistemic injustice and conditioned experience : the case of intellectual disability
- 2016
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Ingår i: Wagadu. - Bloomington, Indiana, US : State University of New York College at Cortland. - 2150-2226 .- 1545-6196. ; 15, s. 63-81, s. 137-174
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Tidskriftsartikel (refereegranskat)abstract
- People with intellectual disabilities are commonly seen as "nonadult others" and as persons of limited credibility, and this view has implications in a number of areas. In this paper, the empirical findings from an interview study focused on lived experience are analyzed in relation to the intersections of intellectual disability and gender. In light of Fricker's (2007) work on epistemic injustice, and in recognition of Anderson's (2012) emphasis on the importance of transactional and structural injustice, a novel aspect of epistemic injustice is provided: as a consequence of conditioned lived space. The social identity of intellectual disability position persons thus identified to belong to a segregated and marginalized group. Although guided by the ambition to care for and protect this vulnerable group, structural transactions provided by the welfare system run the risk of simultaneously depriving individuals of both the experiences and the hermeneutical resources necessary to interpretatively frame and make sense of their limited situation and lack of possibilities – and thus from interacting epistemically in fruitful ways. A key structural feature of the epistemic injustice towards the group is shown to be a lived experience that to a large extent is conditioned by the constructions of disability and gender.
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