| 1. |
- Knutes Nyqvist, Helén, et al.
(författare)
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Artistry and disability - Doing art for real? : Affordances at a day activity centre with an artistic profile
- 2017
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 32:7, s. 966-985
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Tidskriftsartikel (refereegranskat)abstract
- Taking our point of departure from critical disability studies, this study explores affordances of a day activity centre with an artistic profile. The analysis reveals that this centre has two fundamental meanings to the participants; it is a place to create art, and it is a safe haven'. Our conclusion is that the desire to belong, to be in a community and to do artwork, entails a future need for flexible institutional environments, where the social milieu is characterized by increased influence and with an engaging focus, such as that which is offered in cultural work.
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| 2. |
- Rowa-Dewar, Neneh, et al.
(författare)
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Health Risks in the Home : Children and Young People's Accounts
- 2016
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Ingår i: Families, Intergenerationality, and Peer Group Relations. - Singapore : Springer. - 9789814585927 ; , s. 1-18
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- Depending on definition and academic discipline, home can refer to a place, a space, a feeling, or certain practices. House and home are often conflated, but the physical dwelling is only one dimension. Home can be shorthand for an ideal and comfortable haven but is also recognized, by feminist researchers for example, as a place where gender and age represent key dimensions for how members of a household view the meaning of home (Saunders and Williams 1988). Home is therefore understood as a multidimensional concept (see Mallet 2004 for a review). In this chapter we discuss where children and young people localize risks, as well as how they manage risks in different settings with reference to the home in particular. Following a brief review of children and young people's understandings and management of risk in different settings, this chapter draws on two case studies involving health risks in everyday life. The case studies involve children and young people from Scotland who live with parents who smoke and those from Sweden who have a food allergy. These cases are then discussed in relation to the wider literature to illuminate issues such as gender, spatial risk management, and child–parent relations within the home.
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| 3. |
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| 4. |
- Stjerna, Marie-Louise
(författare)
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Food, risk and place : agency and negotiations of young people with food allergy.
- 2015
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Ingår i: Sociology of Health and Illness. - : Wiley. - 0141-9889 .- 1467-9566. ; 37:2, s. 284-297
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Tidskriftsartikel (refereegranskat)abstract
- Potentially life-threatening food allergies are increasing among children in the Western world. Informed by childhood studies, this article explores young people's management of food allergy risk and highlights their agency in relation to food, eating and place. Drawing on individual interviews with 10 young people who took part in a larger multi-method study of young people's experiences of food allergies, the findings demonstrate that the management of health risks means, to some extent, trying to control the uncontrollable. A reaction can occur at any time and to experience a severe reaction entails a temporarily loss of control. The strategies the young people develop to avoid allergic reactions can be understood both as responses to this uncertainty and as manifestations of their agency. Their risk experiences vary with place; at school and in other public places they face social as well as health risks. What we see is not agency as a voluntary choice but that young people with food allergies experience tensions between their own competence to manage different types of risks and their dependence on others to adjust to their needs. Thus, the relational aspects of young people's agency come to the fore.
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| 5. |
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| 6. |
- Stjerna, Marie-Louise
(författare)
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Föreställningar om mat och ätande : Risk, kropp, identitet och den "ifrågasatta" maten i vår tid
- 2007
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- In Western society, food is debated and in various ways contested. Social science research has described various cultural imperatives related to food and choices of diet, that raises questions about how people understand issues of food and eating in their everyday lives. The aim of this study is to explore everyday notions of food and eating in urban Sweden. Drawing on social representations theory, qualitative interviews were carried out with fifteen men and women about their experiences and understandings of food and eating, also using a photo-elicitation method where visual material from cookery books and dietary advice were used as a point of departure for the interview conversation.The interviewees categorize food into different sorts, such as ‘ordinary food’, ‘modern food’, ‘dangerous food’, ‘healthy food’, ‘ethic food’ and ‘festive food’, that are ascribed a meaning in relation to different arenas in time and space, for instance childhood, and related to health values as well as ethical and aesthetic values. Food is also discussed as different diets, such as mixed or vegetarian, and patterns of eating, which are in turn related to risk, health and the body. The analysis thus reveal notions about what food is and how we should eat, notions that are characterised by internal tensions and contradictions such as discipline contra pleasure, societal norms contra personal interests, everyday life contra ideals. These ‘fields of tension’ are analysed as a cultural repertoire of identity-positions. Finally, these results are discussed in terms of risk and opportunities, where the reflexive human being is depicted as able to both incorporate food imperatives and to challenge these imperatives in a process of striving for bodily and mental balance.
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| 7. |
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| 8. |
- Stjerna, Marie-Louise, et al.
(författare)
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Inter-embodied parental vigilance; the case of child food allergy
- 2023
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Ingår i: Frontiers in Sociology. - 2297-7775. ; 8
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Tidskriftsartikel (refereegranskat)abstract
- There is developing interest in issues of embodiment in studies of children, health and illness. We take our point of departure in the parent-child-health/illness triad to explore the embodied aspects of parental vigilance in parenting children who have a food allergy, utilizing the concept of inter-embodiment. Drawing on a focus group study with parents in Sweden the analysis reveals that this vigilance can be seen as the embodied manifestation of concern for children's bodies in perpetual liminality, when constantly exposed to allergens and the risk of becoming ill. We argue that the lens of inter-embodiment, with a focus on bodies in relation, captures how parents lived experience of managing food allergy intertwines with that of their children in the parent-child-health/illness triad. The analysis uncovers a form of embodied knowledge that is often not verbalized, offering potential for new understandings of parent-child relations that center on chronic child health conditions.
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| 9. |
- Stjerna, Marie-Louise, 1964-, et al.
(författare)
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Joint learning and democratic practices. Caring relationships at a day activity centre with an artistic profile
- 2023
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Ingår i: NNDR 16th Research Conference. - : Nordic Network on Disability Research. ; , s. 193-193
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Drawing on an interdisciplinary research arts project run by the Department of Special Education and the Department of Psychology at Stockholm University in collaboration with a Day Activity Centre (DAC) with an artistic profile we explore caring relationships within social care practices aimed for people with disabilities. Our research takes its point of departure in critical disability studies. The power dynamic of caring relationships is often imbued by ableist ideas positioning the service user as the ‘vulnerable disabled Other’ and the health/social care worker as the ‘invulnerable expert practitioner’. Yet, there is also the potential of caring relationships to be more reciprocal offering learning opportunities for all involved. Today there is a small body of empirical studies that explore the potential of artwork in challenging the dominant idea of a dichotomy between disability and invulnerable embodiments in health/social care settings. Here we take our point of departure in an ableist approach together with a relational approach to explore caring relationships in such settings. A relational approach entails that phenomena such as learning and creative work are understood as inter-personal phenomena. This indicates that art-work produced within a DAC cannot simply be explained by individual characteristics or by the structural factors and conditions that prevail in the specific context. The relationship itself, what happens within interaction and communication processes between individuals in a particular context, is th eunit of analysis. We have together with the DAC, set up a research arts project and employed ethnographic fieldwork to explore how the interaction between the staff/supervisors and the artists — adults with neuropsychiatric disabilities and adults with learning disabilities — provides opportunities for learning processes in these encounters. During our presentation we will discuss our findings; how the caring relationships offer potentials for joint learning processes and democratic practices.
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| 10. |
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