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- Bruno de Sousa, Andréa, 1967-
(författare)
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A parental perspective on child chronic kidney disease : The lived experience of caregiving in Portugal
- 2021
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Paediatric chronic kidney disease (CKD) requires complex care and radically transforms the everyday life of the child’s family. This thesis examines parents’ lived experience of dealing with a child’s CKD; how social and economic circumstances impact on families’ opportunities to manage the care; and how parents view and practise their parenthood. The thesis takes inspiration from the phenomenology of practice, material culture studies and parenting culture studies. The research is based on ethnographic fieldwork in a paediatric hospital in Portugal and in the participating families’ home environments. Thematic analysis was used to analyse the empirical material. The first study addresses the ethnographic methods used in the study and the challenges involved in examining parents’ lived experiences of managing caregiving. It demonstrates that the challenges involved in carrying out fieldwork among families in crisis can function as openings for discovering the multifaceted and complicated realities the families encounter. The second study shows that parents use all the available financial and human resources to manage the technically demanding care and create normality. It also shows that, while parents experience becoming confined and close relationships as strained, the mundane practices and social relations of care bring hope and meaning to the family. The third study demonstrates that good parenthood for the participants means focusing on the child’s survival and well-being, and requires constant vigilance and readjustments, what I term “readiness parenting”. This research contributes to creating knowledge about the complexity of caring for a chronically ill child, the relational and material aspects of caregiving and how norms about responsible parenthood are negotiated. It also demonstrates the need for qualitative research methods to understand parents’ lived experiences and create knowledge about their meaning- making, needs and competencies.
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- Bruno de Sousa, Andréa, 1967-, et al.
(författare)
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Material and relational challenges of home-based renal care : a parental perspective on child chronic kidney disease
- 2022
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Ingår i: International Journal of Care and Caring. - Bristol, United Kingdom : Policy Press. - 2397-8821 .- 2397-883X. ; 6:4, s. 547-563
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Tidskriftsartikel (refereegranskat)abstract
- Caring for a child with chronic kidney disease (CKD) requires parents to reorganise mundane routines and develop advanced technical skills. Parents’ strategies used to meet these challenges need greater understanding. This article takes inspiration from phenomenology of practice and material culture studies to analyse interviews with parents in Portugal. It shows that, although home-based care leads to worsened social inequities, parents use the available financial and human resources to manage the situation and create normality. While they experience becoming confined and close relationships are strained, the mundane practices and social relations of care bring hope and meaning to the family.
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- Bruno de Sousa, Andréa, 1967-, et al.
(författare)
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Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal
- 2022
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Ingår i: Families, Relationships and Societies. - : Policy Press. - 2046-7435 .- 2046-7443.
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Tidskriftsartikel (refereegranskat)abstract
- Parents of a child with chronic kidney disease (CKD) must safely perform advanced care and treatment while at the same time allowing the child some freedom and maintaining everyday parenting and family tasks. Drawing on interviews with primary caregivers of children with CKD in Portugal, we examine the context of raising a child with CKD and how the parents practise their parenthood. The study takes inspiration from parenting studies and child studies and explores how good parenthood is constructed. Based on thematic analysis, three core themes emerged: protecting the child, involving the child in their treatment, and transferring responsibility. The transformation of life-limiting circumstances into a life that worked well for both parents and their child represents what we call ‘readiness parenting’. Assessing risks, supporting the child’s autonomy, and relating to social norms required constant vigilance and readjustments as well as negotiations about parental responsibility.
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- Kvist Lindholm, Sofia, 1979-, et al.
(författare)
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‘Looping effects’ related to young people’s mental health: How young people transform the meaning of psychiatric concepts
- 2020
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Ingår i: Global Studies of Childhood. - : Sage Publications. - 2043-6106. ; 10:1, s. 26-38
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Tidskriftsartikel (refereegranskat)abstract
- Over the past decades, reports from official authorities and the media have suggested that there is a ‘crisis’ in young people’s mental health. However, there is considerable uncertainty regarding how to interpret the data referred to in these alarming reports. The present article draws on ‘the minority voices’ of young people and theories developed by Ian Hacking to undertake a critical analysis of the conceptualisation of young people’s mental health. According to Hacking, systems of classifications formulate general truths about people and frame the suffering of individuals in specific ways. Classification changes people. However, young people are social actors who interact with classifications of their mental health and by doing so they could cause classifications to be redrawn. Hacking refers to these feedback effects as ‘looping effects’. Based on 51 interviews with 15-year-olds, this article explores how young people interact with psychiatric labels associated with their wellbeing such as anxiety and depression. We demonstrate how the participants gave new meaning to these psychiatric labels, devalued and gave nuance to them, and by doing so transformed them into cultural categories rather than diagnostic categories. We discuss the potential looping effects related to young people’s mental health and how the present findings can inform policy practice.
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| 7. |
- Kvist, Therese, et al.
(författare)
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The dilemma of reporting suspicions of child maltreatment in pediatric dentistry
- 2014
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Ingår i: European Journal of Oral Sciences. - : Wiley. - 0909-8836 .- 1600-0722. ; 122:5, s. 332-338
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Tidskriftsartikel (refereegranskat)abstract
- This study examined the factors that lead specialists in pediatric dentistry to suspect child abuse or neglect and the considerations that influence the decision to report these suspicions to social services. Focus group discussions were used to identify new aspects of child maltreatment suspicion and reporting. Such discussions illuminate the diversity of informants experiences, opinions, and reflections. Focus groups included 19 specialists and postgraduate students in pediatric dentistry. We conducted video-recorded focus group discussions at the informants dental clinics. All sessions lasted approximately 1.5h. We transcribed the discussions verbatim and studied the transcripts using thematic analysis, a method well-suited to evaluating the experiences discussed and how the informants understand them. The analysis process elicited key concepts and identified one main theme, which we labeled the dilemma of reporting child maltreatment. We found this dilemma to pervade a variety of situations and divided it into three sub-themes: to support or report; differentiating concern for well-being from maltreatment; and the supportive or unhelpful consultation. Reporting a suspicion about child maltreatment seems to be a clinical and ethical dilemma arising from concerns of having contradicting professional roles, difficulties confirming suspicions of maltreatment, and perceived shortcomings in the child-protection system.
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| 8. |
- Lind, Judith, 1971-, et al.
(författare)
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Representations of mental health and mental health problems in content published by female social media influencers
- 2024
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Ingår i: International journal of cultural studies. - : Sage Publications. - 1367-8779 .- 1460-356X. ; 27:2, s. 217-233
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Tidskriftsartikel (refereegranskat)abstract
- When social media influencers (SMIs) describe their experiences of mental health problems, they contribute to the circulation of representations of mental health. The aim of this article is to analyse the ways of talking about mental health problems that are made accessible to a wider audience through the YouTube videos published by four Swedish female SMIs. Our analysis shows that much content related to mental health contains traces of, and contributes to discourses informed by, positive psychology. Mostly, mental health problems are represented as manageable, if only the individual assumes responsibility for her mental wellbeing, but a few videos also contain displays of negativity and resignation. In addition to avoiding association with the unattractiveness associated with negativity, the four SMIs navigate expectations placed on them to encourage confidence and self-love while at the same time expressing modesty. The result is representations of mental health that are multi-layered and complex.
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| 9. |
- Mitchell, Sarah Jane, 1986-
(författare)
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Fatherhood Images and Ideals : Transforming, Circulating, and Responding to the Swedish Dads Photo Exhibition
- 2021
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Between 2016 and 2019, the Swedish state – via the Swedish Institute and Swedish embassies – circulated the ‘Swedish Dads’ photo exhibition to 54 countries. The exhibition was based on a photobook by the same name and featured photographs of Swedish fathers on parental leave with their children. Many Swedish embassies hosting the exhibition combined it with photographs of local fathers and children – as was the case in Zambia and Zimbabwe. In the case of ‘Zambian Dads’, this exhibition was also circulated in Sweden. This thesis problematizes the transnational circulation of the Swedish ideal of progressive, gender-equal fatherhood across a range of local and national contexts where the availability of parental leave – as well as material conditions and family ideals – might be very different from the Swedish context. The aim of this thesis is to contribute critical, interdisciplinary knowledge by examining the transformation, circulation, and negotiation of images and ideals of fatherhood across contexts. Taking a social constructivist approach, the thesis draws theoretical inspiration from parenthood studies, visual culture studies and nation branding studies. Empirical material was collected through a visual ethnography and analysed using visual discourse analysis and thematic analysis. The analysis highlights firstly, that while Swedish dads on parental leave were constructed as ‘ordinary’ in the photobook, they were constructed as ‘exceptional’ in the exhibition circulated by the Swedish Institute. Secondly, photographs of local fathers and children were used to ‘bridge’ the contextual divides between Sweden and countries hosting the exhibition. Finally, representations of progressive fatherhood in Zimbabwe were found to challenge and extend the Swedish ideal beyond the context of the middle-class, nuclear family.
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| 10. |
- Pousette Lundgren, Gunilla, et al.
(författare)
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Amelogenesis Imperfecta and Early Restorative Crown Therapy: An Interview Study with Adolescents and Young Adults on Their Experiences
- 2016
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Ingår i: PLOS ONE. - : PUBLIC LIBRARY SCIENCE. - 1932-6203. ; 11:6, s. e0156879-
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Tidskriftsartikel (refereegranskat)abstract
- Patients with Amelogenesis imperfecta (AI) can present with rapid tooth loss or fractures of enamel as well as alterations in enamel thickness, color, and shape; factors that may compromise aesthetic appearance and masticatory function. The aim was to explore the experiences and perceptions of adolescents and young adults living with AI and receiving early prosthetic therapy. Seven patients with severe AI aged 16 to 23 years who underwent porcelain crown therapy participated in one-to-one individual interviews. The interviews followed a topic guide consisting of open-ended questions related to experiences of having AI. Transcripts from the interviews were analyzed using thematic analysis. The analysis process identified three main themes: Disturbances in daily life, Managing disturbances, and Normalization of daily life. These themes explain the experiences of patients living with enamel disturbances caused by AI and receiving early crown therapy. Experiences include severe pain and sensitivity problems, feelings of embarrassment, and dealing with dental staff that lack knowledge and understanding of their condition. The patients described ways to manage their disturbances and to reduce pain when eating or drinking, and strategies for meeting other people. After definitive treatment with porcelain crown therapy, they described feeling like a normal patient. In conclusion the results showed that adolescents and young adults describe a profound effect of AI on several aspects of their daily life.
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