| 21. |
- Benkel, Inger, et al.
(author)
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Challenging conversations with terminally ill patients and their loved ones: Strategies to improve giving information in palliative care
- 2014
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In: SAGE Open Medicine. - : SAGE Publications. - 2050-3121. ; 2:2050312114532456
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Journal article (peer-reviewed)abstract
- Objective: The aim of the study was to explore the skills and strategies employed by professionals when having difficult conversations to provide information to loved ones as part of palliative care. Method: A qualitative design was chosen with in-depth interviews with nurses, assistant nurses and doctors a Hospital in Sweden and were analysed using content analysis. Results: The interviews produced examples of strategies used by professionals when imparting difficult information to patient and loved ones. The results fell into three areas: ‘Who is giving information’, ‘Structuring the conversation’ and ‘Different ways to convey a difficult message’. Conclusion: Using conversational skills and strategies in combination with a carefully planned structure appeared to facilitate difficult conversations with patients and loved ones. Further research is required, related to the specific circumstances in which the conversation takes place.
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| 22. |
- Benkel, Inger, et al.
(author)
-
Family and friends provide most social support for the bereaved
- 2009
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In: PALLIATIVE MEDICINE. - : SAGE Publications. - 0269-2163 .- 1477-030X. ; 23:2, s. 141-149
-
Journal article (peer-reviewed)abstract
- Social support is important in the bereavement period. In this study, the respondents were family members and friends to a patient who had died at a palliative care unit. The aim was to explore wishes and needs for, access to and effects of social support in the bereaved. We found that the grieving person’s wishes for social support from their network and the network also provided most social support. The network consisted of the close family, the origin family, relatives and friend. Support from the professional staff was required when the network was dysfunctional or when the grieving person did not want to burden members of his/her own network. The need for social support from professional staff was most needed close to the death and some time after.
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| 23. |
- Benkel, Inger, et al.
(author)
-
Hospital staff opinions concerning loved ones' understanding of the patient's life-limiting disease and the loved ones' need for support
- 2012
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In: Journal of Palliative Medicine. - : Mary Ann Liebert Inc. - 1096-6218 .- 1557-7740. ; 15, s. 51-55
-
Journal article (peer-reviewed)abstract
- The aim of this study was to investigate the opinions of nurses, assistant nurses, and doctors about whether the patient's loved ones understand that the patient has a life-limiting disease, and if they talk about these matters with the patient or staff. The study was quantitative in design with data collected by means of a semi-structured questionnaire. The study was conducted at geriatric, oncology, and urology wards at a university hospital in western Sweden. Results indicate a perception that loved ones understand the seriousness and consequences of the disease. Professional caregivers perceived an association between the loved ones' understanding of the fatal disease and their ability to cope with the situation. In addition, the study found that follow-up activities after the patient's death are mostly lacking. © 2012, Mary Ann Liebert, Inc.
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| 24. |
- Benkel, I., et al.
(author)
-
How to Estimate Understanding: Professionals' Assessment of Loved Ones' Insight into a Patient's Fatal Disease
- 2014
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In: Journal of Palliative Medicine. - : Mary Ann Liebert Inc. - 1096-6218 .- 1557-7740. ; 17:4, s. 448-452
-
Journal article (peer-reviewed)abstract
- Background: Loved ones of a patient with an incurable disease will accompany the patient to the end of life. Health care professionals must discuss difficult matters with loved ones and be sure that they really understand the seriousness of the patient's disease. The study explore how the professionals do when they explore the grounds on which they make their assessment of loved ones' insight into a patient's fatal disease. Method: A qualitative design was chosen to gain deeper knowledge of professionals' perception of loved ones' understanding. The transcribed interviews were analysed using content analysis giving a richer understanding of the meaning of the content. Result: The participants assessed loved ones' insight into the fatal disease based on the course and content of the conversations they had with the loved ones. The professionals' assessments were based on how the loved ones talked and expressed themselves in words and behavior and on the type of questions posed by the loved ones. The loved ones' observations and hope as denial or a strategy also contributed to their assessment. Conclusion: Ways to communicate with loved ones are crucial when making an assessment. The different ways loved ones use hope and other strategies made it problematic for the professionals to use these as indicators of state of mind in this matter. Training in conversation skills could be one way to support professionals when discussing and managing these difficult situations.
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| 25. |
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| 26. |
- Benkel, Inger, et al.
(author)
-
Managing Grief and Relationship Roles Influence Which Forms of Social Support the Bereaved Needs
- 2009
-
In: American Journal of Hospice and Palliative Medicine. - : SAGE Publications. - 1049-9091 .- 1938-2715. ; 26:4, s. 241-245
-
Journal article (peer-reviewed)abstract
- Social support is important during the bereavement period and influences which form of social support the grieving person needs. This study shows 2 different strategies for coping with grief which also revealed which form of social support the grieving persons needed depend on what they found difficult to manage. The coping strategies are called grief management and involve different strategies and the roles in the relationship with the diseased. Systematically monitoring the bereaved makes it possible to understand the strategies they use in the grieving process and to identify when these strategies are insufficient so professional support can be offered.
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| 27. |
- Benkel, Inger, et al.
(author)
-
Palliativ vård
- 2016
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Book (other academic/artistic)
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| 28. |
- Benkel, Inger, et al.
(author)
-
Using coping strategies are not denial: helping the loved ones to adjust living with a patient with a palliative diagnose.
- 2010
-
In: Journal of Palliative Medicine. - : Mary Ann Liebert Inc. - 1096-6218 .- 1557-7740. ; 13:9, s. 1119-1123
-
Journal article (peer-reviewed)abstract
- Background: When a patient receives the diagnosis of an incurable cancer, their loved ones have to face the fact that life will change. Realizing that the time together is with someone who is going to die, loved ones have to cope with the situation. Objective: The objective of this study was to increase the knowledge concerning what forms of coping strategies loved ones apply when a family member is faced with an incurable cancer. Design: The study had a qualitative approach using in-depth interviews as data from a sample of consecutive loved ones. The interviews were audiotaped, transcribed verbatim, and analyzed using a manifest content analysis. Results: The main findings showed that the strategies used by loved ones could be categorized into four different areas: thinking that the death is far off in the future; hoping for an improvement; living in the present; and utilizing the family and personal network. The loved ones used these strategies in order to learn to live with the fact that their spouse had been diagnosed with an incurable illness. Conclusion: The study shows that the manner in which the coping strategies are used is individual and also depends on how loved ones can cope with the concept of a dying person with whom they are very close. When loved ones have a need for support outside their personal network, it is important to understand that this need is directly related to coping strategies and that it is not a result of denial.
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| 29. |
- Berg, Linda, et al.
(author)
-
Students’ learning as the focus for shared involvement : an action research project
- 2012
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Conference paper (other academic/artistic)abstract
- The aim of this participatory action research project was to develop a didactic model for specialist nursing students' postgraduate degree projects within the second cycle of higher education. The specific focus was on nurturing shared involvement between universities and practice. A series of activities at five Swedish universities and their regional practice settings was performed and a number of data sources secured before proposing a model. Tensions and conflicting views during the process of change were identified. Meaningful academic learning was found as a major concern for students. The proposed didactic model is general and can be applied in various profession-oriented programmes.
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| 30. |
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