| 21. |
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| 23. |
- Carlsson, C., et al.
(författare)
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Voluntary associations for cancer patients in Sweden: supportive activities
- 2001
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Ingår i: Supportive Care in Cancer. - : Springer Science and Business Media LLC. - 0941-4355 .- 1433-7339. ; 9:8, s. 581-590
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Tidskriftsartikel (refereegranskat)abstract
- Our aim was to describe voluntary associations for patients with cancer in Sweden (n=108) and their activities, type and extent of member support, and the associations' collaboration with the health care system. A specially constructed questionnaire with structured and open questions was used for the investigation. The frequency of answers was 89%. The results show in the broadest sense that the associations have two missions. The direct patient-related mission concerns providing patients with support in the form of close proximity, approachability and through distribution of knowledge together with financial and practical support; the indirect patient-related mission deals with activities aimed at improving conditions for patients in general within the health care system and by influencing authorities as well as supporting family members and significant others and providing financing. The associations collaborate with the health care system, although they face difficulties in becoming 'sanctioned' and in establishing positive relationships with the health care community. The associations display a positive attitude towards their cause and the personal gratification that the voluntary work brings. In general, the findings indicate that the associations have a potential to help patients live and cope with their cancer disease.
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| 24. |
- Carlsson, Maria, 1958-
(författare)
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Cancer patients seeking information from sources outside the health care system.
- 2000
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Ingår i: Supportive Care in Cancer. - 0941-4355 .- 1433-7339. ; 8:6, s. 453-457
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Tidskriftsartikel (refereegranskat)abstract
- Most of the information patients receive about cancer and its treatment is probably provided by staff in health care, but if patients do not get sufficient information there is a risk that they might rely on nonmedical sources to satisfy their need. The aim of this study was to survey the degree to which patients seek information from sources outside the health care system. All adult cancer patients visiting or being admitted to the Oncology Department on 1 day were asked to complete a questionnaire. In the course of that day, 192 adult patients visited the Oncology Department, and the response rate was 74%. The patients had used an active informationseeking strategy, i.e., had sought information from the following sources, only to a limited degree: the Internet (6%) medical books (37%), narratives (32%) and telephone helplines (10%). A more passive information-seeking strategy was more common; the patients obtained information from television and radio (82%), newspapers (86%), other patients (46%) and friends (55%). There was a significant correlation between educational level and information-seeking from the Internet, medical books and telephone helplines. Persons with a higher level of formal education had used these sources more than people with less education (P~0.05). Younger patients (~60 years) and those with a higher level of formal education had greater access to the Internet (P~0.0001) and read about cancer in the papers to a greater degree than older ones (P~0.05). Younger patients (P~0.05) and women (P~0.01) had used narratives to a greater degree than older patients and men. The main finding of this study was that the patients actively sought information about cancer only to a limited degree, but the majority of patients take an interest when cancer issues are presented in newspapers and magazines, or on radio and television.
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| 25. |
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| 26. |
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| 27. |
- Cronfalk, Berit, et al.
(författare)
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The existential experiences of receiving soft tissue massage in palliative home care-an intervention
- 2009
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Ingår i: Supportive Care in Cancer. - : Springer Science and Business Media LLC. - 0941-4355 .- 1433-7339. ; 17:9, s. 1203-1211
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Tidskriftsartikel (refereegranskat)abstract
- Background Soft tissue massage is currently used in palliative care for the relief of anxiety and pain. Only few studies have focused on patients' deeper experience of receiving the massage. Aim The purpose of this study was to explore how patients with cancer in palliative home care experienced soft tissue massage. Materials and methods Twenty-two patients received soft tissue massage (hand or foot) nine times over a period of 2 weeks. Each session lasted for 25 min. Following the last massage session, a qualitative interview was conducted. The analysis was performed using a hermeneutic approach. Findings Soft tissue massage generated feelings of existential respite with perceptions of being released from illness for a while. Two categories constituted the basis of the experiences: (1) "an experience of thoughtful attention" and (2) "a sensation of complete tranquility" resulting in the overarching theme "A time of existential respite." Conclusion The patients experienced the massage to give meaning and to be important as it generated feelings of an inner respite. Relevance to clinical practice Soft tissue massage appears to be an appreciated source of support to dying patients in palliative home care. The method is easy to comprehend and relatively short (25 min) which may imply that it is a suitable complement in nursing care for this patient group.
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| 28. |
- Dahlborg Lyckhage, Elisabeth, 1956-, et al.
(författare)
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Competing discourses in palliative care.
- 2010
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Ingår i: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. - : Springer Science and Business Media LLC. - 1433-7339. ; 18:5, s. 573-582
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Palliative care focuses on early identification as well as prevention and alleviation of suffering. Previous studies have established that palliative care is a disciplinary area in a state of transformation due to the involvement of different professional categories and that nursing care in the palliative context is influenced by the dominance of the medical perspective. AIM: This study aimed to describe palliative care from a nursing perspective prior to the implementation of a palliative care programme. PATIENTS AND METHODS: The approach was inspired by the ethnographic method and a constructionist perspective was used as a theoretical framework, as the focus was on existing palliative care discourses. Field studies were conducted on a ward where palliative care was provided to patients at the end of life. Approval for the study was granted by the Ethics Committee at Sahlgrenska Academy. Data were collected by means of participant field studies, informal deliberations and other relevant documents. MAIN RESULTS: Four different discourses were discerned: caring, non-caring, curing and the organisation. CONCLUSIONS: The ethos on the ward was strongly linked to the medical discourse. We consider that a prerequisite for the organisation of palliative care is an expressed caring perspective based on the patients' experiences of suffering, which perspective is lacking in the curing and organisational discourses.
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| 29. |
- Dahlborg Lyckhage, Elisabeth, 1956, et al.
(författare)
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Competing discourses in palliative care
- 2010
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Ingår i: SUPPORTIVE CARE IN CANCER. - 0941-4355. ; 18:5, s. 573-582
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Tidskriftsartikel (refereegranskat)
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| 30. |
- Dielenseger, Pascale, et al.
(författare)
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Evaluation of antiemetic practices for prevention of chemotherapy-induced nausea and vomiting (CINV): results of a European oncology nurse survey
- 2019
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Ingår i: Supportive Care in Cancer. - : SPRINGER. - 0941-4355 .- 1433-7339. ; 27:11, s. 4099-4106
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Tidskriftsartikel (refereegranskat)abstract
- Introduction Preventing CINV is possible when guideline-recommended antiemetics are used. Because oncology nurses play a critical role in risk assessment and management of CINV, a survey of European nurses was conducted to evaluate antiemetic practices, assess awareness of and adherence to current guideline recommendations, and explore barriers to adherence. Methods From March 2016 to Feb 2017, 212 oncology nurses in 16 European countries completed a 20-question online survey. Results Respondents had 15-year (median) oncology nursing experience, and most (75%) were able to suggest or prescribe antiemetics. Most (80%) worked in the public not-for-profit hospital setting. Guideline awareness was generally low with nurses most familiar with ASCO (46%) and MASCC/ESMO (40%) guidelines; individual institution guidelines were most commonly used (47%). Key discrepancies between reported antiemetic use and guideline recommendations in the highly emetogenic chemotherapy (HEC) setting were underutilization of the recommended NK(1)RA + 5-HT(3)RA + steroid combination on day 1 (55%) and high use of 5-HT3RAs (50%) on days 2-5 when a steroid (63% use) should be used. Metoclopramide use was high in both HEC and moderately emetogenic settings, with 30% and 50% reporting use on day 1 and days 2-5, respectively. The most common reported barrier to use of guideline-recommended agents was physician preference (40%). The most common challenges in managing CINV were "controlling nausea/vomiting in the delayed phase" (64%) and "reducing the impact of CINV on patients quality-of-life" (61%). Conclusions This survey highlights opportunities to improve utilization of guideline-recommended antiemetics, thereby optimizing prevention of CINV and QoL for patients receiving emetogenic chemotherapy.
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