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Sökning: WFRF:(Berterö Carina 1959 )

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  • Föregående 1[2]34Nästa
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  • Berterö, Carina, 1959- (författare)
  • Living with leukaemia : studies on quality of life, interaction and caring
  • 1996
  • Doktorsavhandling (övrigt vetenskapligt)abstract
    • Leukaemia is one form of cancer disease, comprising both an acute or chronic form, and has a wide range of altemative therapy aids, as well as a highly unpredictable prognosis. This thesis is a study of 27 patients with acute and chronic leukaemia.The general aim of the present thesis was to acquire knowledge about quality of life (QOL) from the perspective of the adult individual with leukaemia. It was also to enquire how the health care system and the nursing staff can improve this individual's experienced quality of life. Data have been collected through qualitative interviews (articles I, II and III), observations, follow-up interviews and reflective conversations(articles IV and V). The data have been analysed using constant comparative analysis (articles I, II, IV and V) and narrative qualitative text analysis (article III).Quality of life was found to be experienced as 'a positive attitude to life' by those adults with acute leukaemia, and autonomy and interpersonal relationships were of great importance in experiencing this. Those with chronic leukaemia experienced quality of life as 'life satisfaction'. Even here interpersonal relationships played a major role, as did self-esteem, performance ability and social ability. When explaining the differentprofiles in quality of life experienced by those adults with acute and chronic leukaemia, uncertainty was the phenomenon found. Adults with acute leukaemia experienced uncertainty concerning the prognosis, recurrence, aggravations and set-backs. Those with chronic leukaemia were uncertain about adjusting their lives, changing life-styles as well as being in doubt. Both groups described this uncertainty as not feeling secure, not being in control and being undecided.Transition, i.e. the individual passing from one phase to another, was the core category found when studying the interaction between adults with leukaemia and their nursing staff. This transition could be described in three stages. First, being a person and trying to maintain a social status. Second, becoming a patient, accepting the disease and feeling insecure in this totally new situation. Finally, the patient becomes a leukaemia patient, isolating her/himself and becoming aware of the disease and its side-effects.In the study about the care supplied by the nursing staff and demanded by the leukaemia patients, the findings produced two core categories; routines and interaction. The care supplied was identified as routines, which could be seen as regular courses of procedures and a way of bringing order into daily life. Routines could also be a distancing manoeuvres to manage stress when working with seriously ill people. The care demanded by these leukaemia patients was human interaction. The leukaemia patient wants to be treated as a human being, with mutual respect, concern etc. The patients want to participate and interact while still maintaining their self-respect and individual integrity.This thesis points out that the QOL of those adults with leukaemia could be improved by the health care system and the nursing staff through caring for them as fellow beings, with respect and giving them autonomy and self-control. If the nurses and nursing staff are to be able to care for leukaemia/cancer patients, they have to care for themselves. If they become more aware of their own feelings and reactionS, they will also become more attentive to the patients' experiences and needs.
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  • Berterö, Carina, 1959-, et al. (författare)
  • Receiving a diagnosis of inoperable lung cancer : Patients' perspectives of how it affects their life situation and quality of life
  • 2008
  • Ingår i: Acta Oncologica. - 0284-186X .- 1651-226X. ; 47:5, s. 862-869
  • Tidskriftsartikel (refereegranskat)abstract
    • Lung cancer is a disease with many biomedical and psychological symptoms. The diagnosis and treatment of lung cancer induces adverse effects. Having an inoperable lung cancer there are few possibilities of being cured. Management of patients with inoperable disease is directed at relieving local or systemic symptoms. The purpose of this study is to describe how it affects the patients' life situation and quality of life. Data was collected by qualitative interviews where the patient's lived experiences were articulated. Twenty-three Swedish patients diagnosed and starting palliative treatment for inoperable lung cancer were interviewed. The interviews were audio-taped and transcribed verbatim. Data were interpreted trough interpretive phenomenology. Six themes were identified that were important for the informants' experience of their life situation and quality of life. The themes were: Experience of uncertainty, including time of waiting and thoughts, experience of hope, about a prolonged life, network as support, being treated as the person they are thoughts of death, is there time to conclude their lives?, feelings of shame and guilt, they have caused the disease by themselves and next of kin reactions, sadness, guilt, worries and anger. These six themes gave a structure presenting the essence: Living as usual. Maintaining independency and integrity were important, as well as maintaining status, being treated as the person they always had been and that they experience that they had a meaning to fulfill in life. They were living as usual. The findings of this study point out the importance of improving the care of people afflicted with lung cancer, as well as promoting support for the next of kin, since they are significantly important for these patients' experiences of quality of life. This knowledge and understanding will be useful for development of interventions and guidelines for treatment. © 2008 Taylor & Francis.
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17.
  • Berterö, Carina, 1959-, et al. (författare)
  • The double-edged experience of healthcare encounters among women with endometriosis : a qualitative study
  • 2018
  • Ingår i: Journal of Clinical Nursing. - : Wiley-Blackwell Publishing Inc.. - 0962-1067 .- 1365-2702. ; 27:1-2, s. 205-211
  • Tidskriftsartikel (refereegranskat)abstract
    • Aims and objectivesTo identify and describe the experience of healthcare encounters among women with endometriosis.BackgroundEndometriosis is a “hidden” chronic gynaecological disease appearing in every 10th woman of fertile age. Different manifestations of pain are the main symptoms, often leading to impaired physical and mental health, and lower quality of life. Previous research on healthcare experiences among women with endometriosis has focused on diagnostic delay and experiences of encountering general practitioners.DesignA qualitative, interpretive, phenomenological approach was used.MethodsWe interviewed nine women aged 23–55, with a laparoscopy-confirmed diagnosis of endometriosis. The interviews were recorded and transcribed verbatim. The data were analysed following the steps of the interpretive phenomenological approach.ResultsTwo themes were identified in the interview transcripts: being treated with ignorance and being acknowledged. The essence: “the double-edged experience of healthcare encounters” emerged from the themes. The women's experience was double-edged as it involved contradictory feelings: the encounters were experienced as both destructive or constructive. On the one hand, the destructive side was characterised by ignorance, exposure and disbelief. On the other hand, the constructive side made the women feel acknowledged and confirmed, boosting their self-esteem.ConclusionsThe new and important aspects of the findings are that the experience of healthcare encounters is for the first time expressed as double-edged: both destructive and constructive. The experience was of specific importance as it affected the women's perceptions of themselves and of their bodies.Relevance to clinical practiceThe information about the constructive side of the experience is of clinical valuable for all healthcare professionals (nurses, midwives and doctors) encountering these women, as it provides a new level of understanding of the experiences. The findings demonstrate both psychological and practical aspects that can help professionals to improve the encounters.
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18.
  • Berterö, Carina, 1959- (författare)
  • Young women with breast cancer-using the healing tool : writing blogs
  • 2017
  • Ingår i: Nursing & Palliative Care. - London, United Kingdom : Open Access Text. - 2397-9623. ; 2:4, s. 1-5
  • Tidskriftsartikel (refereegranskat)abstract
    • Purpose: This qualitative study aims to interpret and describe how young women diagnosed with a breast cancer uses blogs to manage daily life.Methods: 14 blogs written by women diagnosed with breast cancer aged between 25 and 38 years. These blogs were analysed using qualitative thematic analysis.Results: Four themes were identified in the data body illustrating what the women were writing about in their blogs: Experiencing frustration, The fear is bigger than death, Preparing for physical changes, Body and mind are in disharmony. These four themes ended up in a concluding theme: The healing effect of writing a blog.Conclusion: The young women used writing blogs as a healing activity. The writing was a channel for emotions and thoughts, but was also a way of sharing experiences and supporting each other. Their narratives revealed the impact of breast cancer experiences on their personal, familial and social lives. Reading blogs is an activity that could allow healthcare professionals to better understand these women’s life situation and needs.Implications for practice: Blogs could become a useful tool for healthcare professionals, relatives, patients and the people around them. By reading blogs, not necessarily commenting on or writing them, there will be a better and deeper understanding about the effects of a cancer diagnosis. Using blogs could facilitate the provision of requested and needed health care activities.
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19.
  • Brobäck, Gunilla, et al. (författare)
  • How next of kin experience palliative care of relatives at home
  • 2003
  • Ingår i: European Journal of Cancer Care. - 0961-5423 .- 1365-2354. ; 12:4, s. 339-346
  • Tidskriftsartikel (refereegranskat)abstract
    • Primary health care teams are the teams responsible nowadays in Sweden for the greater part of the home health care system, providing palliative care in the patient's home. If palliative care in the home is to be ethically defensible, it should be voluntary from the point of view of the next of kin and should be designed in such a way that he or she receives different forms of support during the care period. The purpose of this paper is to explore the meaning of palliative care in the home as experienced by the next of kin. The data consist of transcripts from interviews with the next of kin. Giorgi's phenomenological method was selected as the method/analysis for this study, because it focuses on uncovering the meaning of experiences of the participants by studying descriptions from their perspective. A feeling of insufficiency is the phenomenon, which permeates all the five themes: adjustment, awareness, being perceived as a person, emotional effects and feelings of uncertainty. Because the informal carer/next of kin is a significant contributor to palliative care in the home, it is important to promote feelings of control and also self-efficacy.
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  • da Costa vargens, Octavio, et al. (författare)
  • Living with breast cancer : Its effect on the life situation and the close relationship of women in Brazil
  • 2007
  • Ingår i: Cancer Nursing. - 0162-220X .- 1538-9804. ; 30:6, s. 471-478
  • Tidskriftsartikel (refereegranskat)abstract
    • The diagnosis and treatment of breast cancer induces adverse effects. In this interpretive phenomenological study, 11 Brazilian women diagnosed and treated for breast cancer were interviewed. Data included audiotaped interviews where the women's lived experiences were articulated. Data were interpreted through Heidegger's existential phenomenology. Themes that were found were interrelated and presented the essential structure of the essence the women were living-living side by side with the phantom of death. The 4 themes that were interpreted and identified were as follows: gaining a positive attitude for life, wanting to be recognized as a woman with certain needs, considering body image/self-image, and making efforts to hide. The findings of the study point out the importance of the fact that illness elicits more than fitting the body into traditional community expectations or surrendering the body to professional medicine. Even with all the deep changes in their lives and changed life priorities, the women want to carry on and live the best life they could. To put this idea in the front line makes the difference for the transition of these women. © 2007 Lippincott Williams & Wilkins, Inc.
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