| 141. |
- Mårtensson, Lena, 1953, et al.
(författare)
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The Conceptions of Pain and Rehabilitation Questionnaire (CPRQ): development and test of face validity and stability over time.
- 2007
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Ingår i: Scand J Occup Ther.. - : Informa UK Limited. - 1103-8128. ; May:14, s. 1-10
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Tidskriftsartikel (refereegranskat)abstract
- The heterogeneity of diagnoses included in the concept of chronic pain, as well as differences in adaptation to the situation involving chronic illness, imply the need for a variety of rehabilitation forms. Despite evidence concerning the success of multidisciplinary behaviour-orientated rehabilitation programmes, not all participants experience the expected change. The aim of the present study was to develop and test the face validity and the stability over time of a Swedish self-administered questionnaire: the Conceptions of Pain and Rehabilitation Questionnaire (CPRQ) for persons with chronic pain. The questionnaire is to be used as a guiding tool in planning for rehabilitation. Its purpose is to distinguish between individuals with expectations of and motivation for active rehabilitation and those with expectations of more supportive forms of therapy. The face validity was mainly obtained by target-group discussions including persons with chronic pain and rehabilitation staff with experience in the rehabilitation of persons with chronic pain. The test-retest stability analysis was performed using a model for identifying occasional and systematic disagreement. The questionnaire in its final form showed face validity and reliability in terms of stability over time. Further steps in the development process will include laying down the guiding principles for the questionnaire, based on new focus-group discussions, and completing work on the manual by including information about the origin of the questionnaire and instructions for its administration. Thereafter, the next step in the development process will be a test of responsiveness, i.e. to examine the degree to which the questionnaire really serves its purpose.
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| 142. |
- Nilsson, Kristina, et al.
(författare)
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Vardagsteknologi för de allra äldsta
- 2010
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Projektet ”Vardagsteknologi för de allra äldsta” har fått finansiellt stöd av Hjälpmedelsinstitutets regeringsuppdrag Teknik för äldre. Projektet Vardagsteknologi för de allra äldsta” är en delstudie inom interventionsstudien”Äldre i riskzon” inom Vårdalinstitutets forskningsprogram”Stöd till sårbara äldre – från prevention till palliation” www.vardalinstitutet.net. Syftet med projektet var att utvärdera vilken effekt ökad information har på användning av hjälpmedel och aktivitetsförmågan, och på fall ett år efter interventionen. Kriterierna för att delta var att personerna skulle vara 80 år eller äldre och vara hemmaboende utan varken informell eller formell hjälp. Ett frågeformulär med frågor om persondata, hjälpmedel, ny teknik, aktivitetsförmåga och fall användes, och nedsatt reservkapacitet mättes. Vid baslinjemätningen lottades deltagarna in i tre grupper: en som fick förebyggande hembesök, en som deltog i seniorträffar med förebyggande hembesök och en kontrollgrupp. Det var 362 personer som deltog, varav 65 procent var kvinnor. Det enda som skiljde grupperna åt vid baslinjemätningen var att det fanns fler sammanboende i kontrollgruppen. Resultaten visar att hjälpmedelsanvändandet ökade i alla tre grupperna men att ökningen var störst i seniorträffgruppen. Användandet av hjälpmedel inom flera olika hjälpmedelskategorier hade också ökat och då främst inom seniorträffgruppen som hade ökat sitt användande inom åtta av de tio kategorierna. Gruppen som fått förebyggande hembesök ökade sitt användande i sex kategorier och kontrollgruppen i två. I seniorträffgruppen upplevde deltagarna även att de hade ett signifikant större behov av hjälpmedel ett år efter interventionen jämfört med kontrollgruppen. Beroende av andra i vardagliga aktiviteter hade ökat, och kunde ses i sex av tio av ADL-trappans aktiviteter ett år efter interventionen. Antalet var dock lågt och ingen skillnad kunde ses mellan grupperna. Ett år efter interventionen var gruppen som fått förebyggande hembesök räddast för att falla, följd av seniorträffgruppen. Användandet av dator och mobiltelefon var oförändrat ett år efter interventionen. Både förebyggande hembesök och seniorträffar hade alltså effekt på hjälpmedelsanvändandet, men störst effekt återfanns bland seniorträffar. Dock ökade användningen av hjälpmedel överlag, vilket bekräftar tidigare studier som menar att hjälpmedelsanvändning ökar med ökad ålder. Det går dock inte att dra några slutsatser om Vardagsteknologi för de allra äldsta hjälpmedelsanvändning har effekt på aktivitetsförmåga. Det visar sig också att deltagarna i gruppen som fått förebyggande hembesök och seniorträffgruppen är signifikant mer rädda för att falla. Om detta är positivt eller negativt, eller om hjälpmedelsanvändning påverkar aktivitetsförmåga får senare långtidsuppföljningar visa.
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| 143. |
- Nordenskiöld, Ulla, 1935, et al.
(författare)
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Questionnaire to evaluate the effects of assistive devices and altered working methods in women with rheumatoid arthritis.
- 1998
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Ingår i: Clinical rheumatology. - 0770-3198. ; 17:1, s. 6-16
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Tidskriftsartikel (refereegranskat)abstract
- The objectives of the study were to identify perceived difficulty and reduction of difficulty when using assistive devices and altered working methods in performing daily activities and to detect which activities were unaffected by interventions. Twenty-one women aged 29-65 years with rheumatoid arthritis answered the Evaluation of Daily Activity Questionnaire (EDAQ), which contains 102 items divided into 11 dimensions of daily activities. The women rated their perceived difficulty twice: first when not using devices or altered methods and then when using them. The use of devices or altered methods led to a reduction in perceived difficulty in 42% of the ratings. The number of items that the women found difficult when not using devices/altered methods ranged between 13 and 99. With the interventions, the number of items still found difficult decreased to between 6 and 57, 91% of the devices provided were still in use. The dimensions Eating, Cooking and Toileting contained the most items affected by the use of devices such as lever taps, springy scissors, breadknife and wrist orthosis. Few effective devices were identified for the dimensions Dressing, Washing, Cleaning and Mobility Outdoors. It was concluded that the EDAQ represents a new approach to demonstrating difficulties in performing various daily activities, to describing the effects of assistive devices/altered methods, and to identifying areas not affected by interventions.
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| 144. |
- Ottenvall Hammar, Isabelle, 1984, et al.
(författare)
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Erfarenheter av självbestämmande hos personer som nyligen utvecklat ett beroende i dagliga aktiviteter
- 2013
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Ingår i: AT-Forum (Arbetsterapeuternas nationella konferens). Stockholm, 24-25 april 2013 (Muntlig presentation).
-
Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Bakgrund: Övergången från att vara oberoende till att utveckla sårbarhet och beroende av annan person i dagliga aktiviteter kan vara fylld med utmaningar. I takt med att en person utvecklar ett beroende, kan möjligheten till självbestämmande i dagliga aktiviteter försämras vilket kan upplevas stressande för den äldre personen. Äldre som är beroende uttrycker ett behov att kunna fortsätta vara delaktiga i beslutsfattande som rör dagliga aktiviteter. För att äldre ska kunna bibehålla god hälsa och välbefinnande är det viktigt att de involveras och tillåts att ta beslut som rör deras dagliga aktiviteter. Hälso- och sjukvårdspersonal är medvetna om vikten av äldres rätt till självbestämmande, dock påvisar studier att professionella efterfrågar mera kunskap om äldres erfarenheter för att kunna stödja de äldre till ökat självbestämmande. Syfte: Att undersöka erfarenheter av självbestämmande vid övergången från oberoende till beroende av annan person i daglig aktivitet hos personer 80 år och äldre. Tillvägagångssätt och analys: En explorativ design baserad på Grounded Theory beskriven av Charmaz används i studien. Semistrukturerade intevjuer kommer att genomföras på ca 15 personer i åldern 80 år och äldre som börjat uppleva svårigheter i dagliga aktiviteter eller som utvecklat ett beroende i minst en Instrumentell Daglig Aktivitet (I-ADL) och/eller minst en Personlig Daglig Aktivitet (P-ADL) enligt ADL-trappan. Insamlad data kommer att analyseras med Grounded Theory. Både intervjuer och analys av data har påbörjats. Resultat/förväntat resultat: Studien förväntas ge en förståelse för hur personer vilka är 80 år och äldre erfar sitt självbestämmande vid övergången från oberoende till beroende av annan person i daglig aktivitet. Slutsatser: Förväntat resultat kommer att leda till ökad kunskap om hur personal inom hälso- och sjukvården kan stödja äldre personer som är i övergången till att utveckla ett beroende i dagliga aktiviteter till ökat självbestämmande.
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| 145. |
- Ottenvall Hammar, Isabelle, 1984, et al.
(författare)
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From Intervention Trial to Full-scale Implementation Research: Positive Tendencies for Frailty and Self-rated Health in Frail Older People.
- 2018
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Ingår i: International Journal of Geriatrics and Gerontology. - 2577-0748. ; 2018:2
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Tidskriftsartikel (refereegranskat)abstract
- A continuum of care for frail older people was created to link the chain between the hospital, and discharge to the person’s home. Despite earlier positive findings, it remains unclear if the benefits are sustainable in a real-life context. The present longitudinal study aimed at evaluate the effects of the implementation of a full-scale process program for frail older people in a real-life context regarding levels of frailty, self-rated health and activities of daily living up to one year later. The sample consisted of a total of 143 frail people aged 75 years and older, divided in the two groups: 77 participants from the full-scale process program and 66 historical controls. The findings showed that at the six months follow-up, the participants partaking in the full-scale process program had a significantly higher odds of displaying decreased frailty (p=0.015), and at twelve months, this sample had a significant lower likelihood of reporting decreased self-rated health (p=0.023). Thus, the findings showed positive results on frailty level and self-rated health when implementing the intervention in real life, indicating that a person-centred, multi-professional team with a case manager is beneficial for frail older people.
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| 146. |
- Ottenvall Hammar, Isabelle, 1984, et al.
(författare)
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Governing or being governed: Older persons' experiences of self-determination
- 2014
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Ingår i: Age Well - 22nd Nordic Congress of Gerontology, 25-28 maj, Göteborg, Sverige.
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Introduction: In Sweden it is a legal right for older persons to exercise self-determination. Exercising self-determination is also important for older persons’ health and well-being. Health professionals are in general aware of the importance, but research shows that older persons’ self-determination is not fully respected within the health care sector. Research on self-determination from the perspective of older persons who are in the beginning to develop dependence in daily activities is limited. In order to deepen the knowledge of older persons own experiences in this process, further studies are needed. Aim: The aim of this study was to explore experiences of self-determination when developing dependence in daily activities among community-dwelling persons 80 years and older. Method: Qualitative interviews with 11 persons aged 84-95 years who were in the beginning to experience difficulties in daily activities were performed in accordance with the constructivist grounded theory method. Results: The core category, shifting between governing oneself or being governed by others, illustrates the complexity and the shifting of the experiences during the development of dependence. The categories struggling against the aging body, guarding one’s own independence and transferring the performance highlights different ways of governing in one’s life, whereas exercising self-determination is in the hands of others is a result of the increasing dependence. Conclusions: For community-dwelling older persons, the social context and the ageing body may influence the possibilities to exercise self-determination in daily life. Professionals and health care providers should enable and encourage older persons to exercise self-determination related their own healthcare.
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| 147. |
- Ottenvall Hammar, Isabelle, 1984, et al.
(författare)
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People dependent of support in daily activities perceives reduced self-determination – a cross-sectional study with community-dwelling older people
- 2015
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Ingår i: Quality in Ageing and Older Adults. - 1471-7794. ; 16:4, s. 208-221
-
Tidskriftsartikel (refereegranskat)abstract
- Purpose – The purpose of this paper is to explore the relationship of self-determination with degree of dependence in daily activities among community-dwelling persons aged 80 years and older. Design/methodology/approach – This cross-sectional study focused on community-dwelling people 80 years or older with varied degree of dependence in daily activities. Self-determination in daily life was assessed with the statements from the Impact on Participation and Autonomy-Older persons (IPA-O), and degree of dependence in daily activities was assessed with the activities of daily living (ADL) staircase. Data were analysed using Fisher’s exact test, and the relative risk with a 95 per cent confidence interval was used to explore the risk of perceiving reduced self-determination in daily life. Findings – Compared to the independent persons, the perceived self-determination was significantly lower among persons dependent in instrumental activities of daily living (I-ADL), and persons dependent in personal activities of daily living (P-ADL). Reduced self-determination was most pronounced in persons requiring help with P-ADL. Practical implications – Following key features could be applied to strengthen the community-dwelling older people’s self-determination; incorporating a dialogue where self-determined questions are raised; adopting a person-centred approach between the persons involved; acknowledging older people’s capabilities – what they are able to do and to be, and what they value. Originality/value – This study highlights the need of integrating a self-determined dialogue into healthcare where the older person and the professional focus on self-determined questions.
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| 148. |
- Ottenvall Hammar, Isabelle, 1984, et al.
(författare)
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Risk for depression affects older people's possibilities to exercise self-determination in using time, social relationships and living life as one wants : A cross-sectional study with frail older people
- 2018
-
Ingår i: Health Psychology Research. - : Pagepress Publications. - 2420-8124 .- 2281-2075. ; 6:1
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Tidskriftsartikel (refereegranskat)abstract
- Exercising self-determination in daily life is highly valued by older people. However, being in the hands of other people may challenge the older people's possibilities to exercise self-determination in their daily life. Among frail older people living in Sweden, risk for depression is highly predominant. There is a knowledge gap regarding if, and how having a risk of depression affects older people's self-determination. The objective was, therefore, to explore if, and in that case how, frail older people's self-determination is affected by the risk of depression. In this cross-sectional, secondary data analysis, with 161 communitydwelling frail older people, simple logistic regression models were performed to explore the association between self-determination, the risk of depression and demographic variables. The findings showed that risk for depression and reduced self-determination were significantly associated in the dimensions: use of time (P=0.020), social relationship (P=0.003), help and support others (P=0.033), and the overall self-determination item (P=0.000). Risk for depression significantly affected self-determination in use of time (OR=3.04, P=0.014), social relationship (OR=2.53, P=0.011), and overall self-determination (OR=6.17, P=0.000). This point out an increased need of strengthening healthcare professionals' perspectives, and attitudes towards a self-determined, friendly, and person-centred dialogue.
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| 149. |
- Ottenvall Hammar, Isabelle, 1984, et al.
(författare)
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Self-determination among community-dwelling older persons: explanatory factors
- 2016
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Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa UK Limited. - 1103-8128 .- 1651-2014. ; 23:3, s. 198-206
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Tidskriftsartikel (refereegranskat)abstract
- Background Although it is acknowledged that exercising self-determination in daily activities affects older people’s health and well-being, few studies have focused on the explanatory factors for self-determination in daily life. Objective To investigate explanatory factors for self-determination in the context of community-dwelling older persons. Method: This cross-sectional study combined two sets of data that included community-dwelling persons 80 years and older (n=456). A bivariate logistic regression was performed to analyse the association of self-determination and a set of explanatory factors. Results The final bivariate logistic regression model revealed five explanatory factors that were significantly associated with perceiving reduced self-determination: high education (OR=2.83), frailty (OR=2.70), poor self-rated health (OR=2.54), dissatisfaction with physical health (OR=6.50), and receiving help from public homecare service (OR=2.46). Conclusion Several explanatory factors related to the ageing body and environmental aspects were associated with reduced self-determination. To help older people maintain self-determination, healthcare professionals should consider using a person-centred and capability approach to care.
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| 150. |
- Ottenvall Hammar, Isabelle, 1984, et al.
(författare)
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Shifting between self-governing and being governed: a qualitative study of older persons’ self-determination
- 2014
-
Ingår i: BMC Geriatrics. - : Springer Science and Business Media LLC. - 1471-2318. ; 14
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Tidskriftsartikel (refereegranskat)abstract
- Background: Older persons’ right to exercise self-determination in daily life is supported by several laws. Research shows that older persons’ self-determination is not fully respected within the healthcare sector. In order to enable and enhance older persons’ self-determination, extensive knowledge of older persons’ self-determination is needed. Aim: To explore experiences of self-determination when developing dependence in daily activities among community-dwelling persons 80 years and older. Methods: Qualitative interviews were performed in accordance with a grounded theory method, with 11 persons aged 84–95 years who were beginning to develop dependence in daily activities. Results: The data analysis revealed the core category, “Self-determination - shifting between self-governing and being governed”. The core category comprised three categories: “Struggling against the aging body”, “Decision-making is relational”, and “Guarding one’s own independence”. Self-determination in daily activities was related to a shifting, which was two-fold, and varied between self-governing and being governed by the aging body, or by others. Conclusions: The findings imply a need to adopt a person-centered approach where the older persons’ own preferences and needs are in focus, in order to enhance their possibilities to exercise self-determination.
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