| 51. |
- Bjørnnes, Ann Kristin, et al.
(författare)
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Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative studies.
- 2019
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Ingår i: BMJ open. - : BMJ. - 2044-6055. ; 9:11
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Tidskriftsartikel (refereegranskat)abstract
- To provide a comprehensive synthesis of informal caregivers' experiences of caring for a significant other following discharge from cardiac surgery.Systematic integrated review without meta-analysis.A bibliographic search for publications indexed in six databases (Cochrane Library, CINAHL, MEDLINE, EMBASE, AMED and PsycINFO), including a scan of grey literature sources (GreyNet International, Google Scholar, Web of Science, WorldCat and the Clinical Trials Registry) was conducted in October 2018.Studies were included if they described views and perspectives of informal caregivers of cardiac surgery patients (non-intervention studies (qualitative and quantitative)), and the effectiveness of interventions to evaluate support programme for informal caregivers of cardiac surgery patients (intervention studies).Of the 4912 articles identified in searches, 42 primary research studies were included in a narrative synthesis with 5292 participants, including 3231 (62%) caregivers of whom 2557 (79%) were women. The median sample size across studies was 96 (range 6-734). Three major themes emerged from the qualitative study data: (1) caregiver information needs; (2) caregiver work challenges and (3) caregivers adaption to recovery. Across the observational studies (n=22), similar themes were found. The trend across seven intervention studies focused on caregiver information needs related to patient disease management and symptom monitoring, and support for caregivers to reduce symptoms of emotional distress.Informal caregivers want to assist in the care of their significant others after hospital discharge postcardiac surgery. However, caregivers feel insecure and overwhelmed and they lack clear/concise discharge information and follow-up support during the early at-home recovery period. The burden of caregiving has been recognised and reported since the early 1990s, but there remains a limited number of studies that assesses the effectiveness of caregiver interventions.CRD42018096590.
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| 52. |
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| 53. |
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| 55. |
- Bratt, Ewa-Lena, 1970, et al.
(författare)
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Forty Years of Quality-of-Life Research in Congenital Heart Disease: Temporal Trends in Conceptual and Methodological Rigor
- 2015
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Ingår i: International Journal of Cardiology. - : Elsevier BV. - 0167-5273. ; 195, s. 1-6
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Forskningsöversikt (refereegranskat)abstract
- Background: The first study on quality of life (QoL) in patients with congenital heart disease was published 40 years ago. Since then, the number of QoL articles on these patients has grown exponentially. We conducted a systematic literature review of all empirical studies on QoL in patients with congenital heart disease published since 1974, with the aim of determining the range of conceptual and methodological rigor of studies and identifying temporal trends in these parameters. Methods: PubMed, Embase, and Cinahl were searched for empirical studies addressing QoL in children, adolescents, or adults with congenital heart disease, published between January 1, 1974, and December 31, 2014. We applied 10 review criteria that were previously developed by Gill and Feinstein in 1994 and further refined by Moons et al. in 2004. Overall, 234 articles were reviewed. Results: We found slight but non-significant temporal improvements in conceptual and methodological rigor and in use of assessment methods. This indicates a trend toward a more professional and exacting approach in QoL assessments. However, the majority of articles still had substantial conceptual and methodological deficits. Furthermore, we observed that citation of the publications of Gill and Feinstein and Moons et al. in published QoL research is associated with higher quality scores, suggesting that these articles have a positive impact on conceptual and methodological caliber. Conclusion: Despite 40 years of QoL research in this field, this review shows that major weaknesses in methodological rigor remain highly prevalent, which may make QoL studies inconclusive.
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| 56. |
- Bratt, Ewa-Lena, 1970, et al.
(författare)
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Optimal transition - nurses view.
- 2014
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Ingår i: 48th Annual meeting of the European Association of Pediatric and Congenital Cardiology (AEPC). 22 maj 2014. Helsingfors, Finland..
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)
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| 57. |
- Bratt, Ewa-Lena, 1970, et al.
(författare)
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Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to Adulthood
- 2015
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Ingår i: Journal of Adolescent Health. - : Elsevier BV. - 1054-139X. ; 57:6, s. 658-665
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: Because life expectancy of patients with congenital heart disease (CHD) has substantially, assessment of patient-reported health is seen as an important component in the follow-up. Therefore, we (1) examined patient-reported health status of young people with CHD from a longitudinal perspective; (2) compared patient-reported health of patients with that of controls from the general population; and (3) investigated longitudinal interrelationships among various domains of patient-reported health. Methods: We included 429 patients with CHD (aged 14e18 years) in a longitudinal study with four measurement points. Patient-reported health status was measured using a linear analog scale for self-rated health and the Pediatric Quality of Life Inventory (PedsQL). Results: Self-rated health was good, with mean scores that slightly decreased from 81.78 to 78.90 from Time 1 to Time 4. PedsQL scores were also good, with the highest scores obtained for physical functioning. Patients with mild heart defects consistently reported higher scores on self-rated health and PedsQL than the general population. The scores of patients with complex heart de- fects were generally lower than those of the general population. Cross-lagged path analyses demonstrated that symptoms, cognitive functioning, and communication problems constituted the most consistent predictors of perceived health domains over time. Conclusions: Patient-reported health was considerably good. Domains of patient-reported health that deserve specific attention are symptoms, cognitive functioning, and communication problems. Intervening in these three domains may yield indirect benefits on other health status domains and may improve the overall perceived health status of young people with CHD.
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| 58. |
- Bratt, Ewa-Lena, 1970, et al.
(författare)
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Scrutinizing Patient-Reported Health Status in Young People with Congenital Heart Disease
- 2015
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Ingår i: 18th Annual Update on Pediatric and Congenital Cardiovascular Disease - Challenges and Dilemmas. Feb 11-15, 2015. Scottsdale, Arizona, US..
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Purpose: To examine the patient-reported health status of young people with congenital heart disease (CHD) from a longitudinal perspective; to compare the patient-reported health of young people with CHD to that of healthy peers; and to investigate the longitudinal interrelationships among the various domains of patient-reported health. Conceptual framework: Assessment of patient-reported health is important in the long-term follow-up. Methods: Design: Longitudinal, observational study with 4 measurements and 9 months intervals. Setting: Tertiary care center in Belgium. Sample: 429 young people with CHD aged 14-18 years. Instruments: A Linear Analogue Scale (LAS) and the Pediatric Quality of Life Inventory (PedsQL). Analysis: Repeated measures ANOVA and cross-lagged analysis. Major findings: Self-rated health was good, with mean LAS scores that slightly decreased from 81.78 to 78.90 over 27 months (F=13.33;P<.001). PedsQL scores were also good, with the highest scores obtained for physical functioning (range 86.24-87.04). A significant deterioration over time was observed for emotional functioning (F=5.81;P<.001); a significant improvement was found for cognitive problems (F=4.941;P<.01) and communication (F=4.51;P<.01). Patients with mild heart defects consistently reported higher scores than the general population. Scores of patients with complex defects were generally lower than those of the general population. Cross-lagged analyses demonstrated that symptoms, cognitive functioning and communication problems constituted the most consistent predictors of perceived health domains over time (P<.01). Conclusions: Patient-reported health in young people with CHD was considerable high. Domains that deserve specific attention are symptoms, cognitive functioning and communication problems. Implications of study: Interventions that focus on improving these three domains may yield indirect benefits on other health status domains as well as improve the overall perceived health status.
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