| 11. |
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| 12. |
- Svalastog, Anna Lydia, 1966-, et al.
(författare)
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Epigenetics, society, and bio-objects
- 2015
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Ingår i: Croatian Medical Journal. - : Croatian Medical Journals. - 0353-9504 .- 1332-8166. ; 56:2, s. 166-168
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Tidskriftsartikel (refereegranskat)abstract
- The molecular account of the environmental that epigenetics offers bestow it with paramount importance for biomedical perspective of health and disease and for social sciences perspective on human interactions and well-being. It offers new prospects for interventions to shape the health of both individuals and populations, and invokes its own ethical, legal, and social implications. We here propose treatment of the relation between epigenetics and society through the framework of bio-objectification. After discussing how epigenetic information becomes part of particular bio-identification and bio-objectification processes, we then propose the bio-objectification framework as a fruitful conceptual framework for the analysis of dynamic research and responsive regulatory landscape of this biotechnology.
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| 13. |
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| 14. |
- Svalastog, Anna Lydia, 1966-
(författare)
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Gene myths in public perception
- 2012
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Ingår i: Public Understanding of Science. - : SAGE Publications. - 0963-6625 .- 1361-6609. ; 21:4, s. 478-494
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Tidskriftsartikel (refereegranskat)abstract
- In this article I examine myths in the gene science debate, and their use as a tool in analysis of popular perceptions and public opinion of genetic science and gene technology. In daily language myth means something untrue, though theories of myth present them as carriers of knowledge and truth. I understand myth as a narrative, a cultural construct that aims to describe the world, its origin, and its constituent elements. I compare scholars’ usage of myths, considering their implications. I conclude that i) As an analytical tool the concept of myth is too loosely defined, or understood through theories which leave out context, social relations and interaction. This provides limited insight about myths and myth-making in present day society. ii) An updated understanding of myths, including location/context and interaction/process would enrich analysis.
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| 15. |
- Svalastog, Anna Lydia, 1966-, et al.
(författare)
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Knowledge versus Education in the Margins : An Indigenous and Feminist Critique of Education
- 2021
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Ingår i: Education Sciences. - : MDPI. - 2227-7102. ; 11:10
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Tidskriftsartikel (refereegranskat)abstract
- This article highlights the perceptions and expectations of knowledge that many people, including educators and policy makers, take for granted. Our focus of understanding is Indigenous studies and gender studies. Our aim is to show how modern education undermines these fields of studies. We use an autoethnographic method, reflecting more than 75 years as pupils/students and more than 90 years as educators. We have carefully chosen narratives of exposure to knowledge outside the educational system, as well as narratives of limitations posed upon us by the educational system. This narrative approach makes it possible for us to investigate and discuss our grief about areas of knowledge that society cries for, but the educational system continuously finds ways to resist. Our conclusion is that crucial knowledge is located outside the educational system, where individuals, groups, and communities cherish, protect, and guard knowledge that the educational system marginalises or excludes. As this knowledge is fundamental for life, our message is that the educational system needs to re-evaluate its strategies to stay relevant.
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| 16. |
- Svalastog, Anna Lydia, 1966-
(författare)
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Making it Transparent. On Naming, Framing and Administrating Biobank Research on Native People in Sweden
- 2013
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Ingår i: New genetics and society (Print). - Taylor & Francis Group : Informa UK Limited. - 1463-6778 .- 1469-9915. ; 32:3, s. 209-242
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Tidskriftsartikel (refereegranskat)abstract
- Despite more than 50 years of genetic research on Sámi people in Sweden, there has been very little engagement with the ethical issues related to this research. My aim is to investigate the ethical challenges in biobank research on Sámi people, to identify ethical challenges that have been overlooked and to find ethical solutions. In my historical research inquiry of published material and interviews with people that have participated in this research, my research questions have been: How are blood samples from Sámi people collected, codified, governed and analyzed? What ethical strategies have been utilized? My main findings are: Sweden acquired biobank collections from Sámi people that are not registered or cannot be traced through the biobank register at the Swedish National Board of Health and Welfare. These collections entail ethical challenges concerning how the donors are identified, how the material is categorized, the regional ethical committees, governance and Sámi representation. My suggestions focus on transparency and traceability, competence and native peoples' rights and representation in biobank-related activities.
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