| 21. |
- Danermark, Berth, 1951-, et al.
(författare)
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The Creation of a Comprehensive and a Brief Core Set for Hearing Loss Using the International Classification of Functioning, Disability and Health
- 2013
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Ingår i: American Journal of Audiology. - : American Speech Language Hearing Association. - 1059-0889 .- 1558-9137. ; 22:2, s. 323-328
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: In May 2001, to integrate biological, psychological, and social aspects of human functioning, the World Health Assembly endorsed the International Classification of Functioning, Disability and Health (ICF). The aim of this article is to describe the creation of Comprehensive and Brief ICF Core Sets for Hearing Loss. The core sets consist of the most relevant ICF categories for hearing loss. Method and Results: Four preparatory studies were carried out and presented at a consensus conference, resulting in a Comprehensive ICF Core Set for Hearing Loss, consisting of 117 ICF categories, and a Brief ICF Core Set for Hearing Loss, consisting of 27 categories (of the 117). Conclusion: The Comprehensive ICF Core Set for Hearing Loss can be a user-friendly tool for conducting comprehensive, multidisciplinary assessments. The Brief ICF Core Set can be used for many purposes, such as research and population studies. However, its most common use is by individuals seeking to provide a brief description and assessment of functioning of a person with hearing loss.
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| 22. |
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| 23. |
- Ehn, Mattias, 1972-, et al.
(författare)
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Health, work, social trust, and financial situation in persons with Usher syndrome type 1
- 2018
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Ingår i: Work. - : IOS Press. - 1051-9815 .- 1875-9270. ; 60:2, s. 209-220
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Research has demonstrated that persons with Usher syndrome type 1 (USH1) have significantly poorer physical and psychological health compared to a reference group.PURPOSE: To explore the relation between work, health, social trust, and financial situation in USH1 compared to a reference group.MATERIAL: Sixty-six persons (18-65 y) from the Swedish Usher database received a questionnaire and 47 were included, 23 working and 24 non-working. The reference group comprised 3,049 working and 198 non-working persons.METHODS: The Swedish Health on Equal Terms questionnaire was used and statistical analysis with multiple logistic regression was conducted.RESULTS: The USH1 non-work group had a higher Odds ratio (95% CI) in poor psychological and physical health, social trust, and financial situation compared to the USH1 work group and reference groups. Age, gender, hearing, and vision impairment did not explain the differences. The relation between the USH1 work and non-work groups showed the same pattern as the reference groups, but the magnitude of problems was significantly higher.CONCLUSIONS: Both disability and unemployment increased the risk of poor health, social trust and financial situation in persons with USH1, but having an employment seemed to counteract the risks related to disability.
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| 24. |
- Ehn, Mattias, 1972-, et al.
(författare)
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The relationship between work and health in persons with Usher syndrome type 2
- 2016
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Ingår i: Journal of Visual Impairment & Blindness. - New York, USA : American Foundation for the Blind. - 0145-482X .- 1559-1476. ; 110:4, s. 233-244
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Tidskriftsartikel (refereegranskat)abstract
- Introduction: Persons with deafblindness may have additional physical and psychological health problems. In this study we have focused on health from a work-life perspective in persons with Usher syndrome type 2 (USH2), a disorder with sensorineural hearing loss and retinitis pigmentosa. The aim of this study was to investigate the relationship between work and disability pension and physical and psychological health in persons with USH2.Methods: Participants were recruited from the Swedish Usher database. Eighty-four persons (aged 18 to 65 years) received a health-related questionnaire and 67 (36 women and 31 men) agreed to participate. The participants formed two groups (working group, n = 34; disability pension group, n = 33). A Swedish Health on Equal Terms questionnaire comprising questions on psychological and physical health, living conditions, work activity, and social relationships was used. A chi-square test of significance was used with a significance level of p < 0.05.Results: The two groups did not differ in terms of age, gender, degree of hearing loss, visual acuity, or visual field loss. The working group had statistically significant better health compared to the disability pension group in areas such as being overweight, handling problems, concentration, feeling unhappy, depressive symptoms, and feelings of worthlessness. Suicidal thoughts and attempts were significantly more common in the disability pension group.Discussion: Persons with USH2 generally reported very poor physical and psychological health, with significant differences between persons who were working and those who were not. This study highlights the need for early rehabilitation, vocational training, and opportunities to access the labor market. Implications for practitioners: It is important that persons with USH2 receive vocational support from an early age and that professionals in the field of rehabilitation always include work activity as a key element of interventions.
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| 25. |
- Germundsson, Per, 1956-, et al.
(författare)
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Disability and supported employment : impact on employment, income, and allowances
- 2012
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Ingår i: International Journal of Rehabilitation Research. - Philadelphia, USA : Lippincott Williams & Wilkins. - 0342-5282 .- 1473-5660. ; 35:3, s. 263-269
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Tidskriftsartikel (refereegranskat)abstract
- In this article, we examine supported employment and its impact on the level of employment, disposable income, and sum of allowances, targeting a group of individuals with disabilities. We have particularly focused on individuals with psychiatric disabilities. Supported employment is a vocational rehabilitation service with an empowerment approach that has competitive employment as an expressed goal. Data collected from two Swedish organizations, providing services based on supported employment, have been used. Two groups have been considered: one group focusing on individuals who have received vocational rehabilitation, according to the supported employment approach, and the other group focusing on individuals who declined supported employment (control group). The groups have been examined according to a 'before-and-after the intervention' design. Outcome measures have been retrospectively analyzed. The results indicate that the individuals who received supported employment were hired faster, earned a higher disposable income, and at the same time, had lower individual allowances. The same pattern as that for the overall population emerged for individuals with psychiatric disorders. Vocational rehabilitation based on the principles of supported employment may be very effective for individuals to gain employment, a better disposable income, and a substantial cutback in allowances. The intervention should be tailored according to individual needs rather than organizational rules.
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| 26. |
- Germundsson, Per, et al.
(författare)
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Patterns in the social representation of "hearing loss" across countries : how do demographic factors influence this representation?
- 2018
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Ingår i: International Journal of Audiology. - : Taylor & Francis Group. - 1499-2027 .- 1708-8186. ; 57:12, s. 925-932
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Tidskriftsartikel (refereegranskat)abstract
- This study aims to understand patterns in the social representation of hearing loss reported by adults across different countries and explore the impact of different demographic factors on response patterns. The study used a cross-sectional survey design. Data were collected using a free association task and analysed using qualitative content analysis, cluster analysis and chi-square analysis. The study sample included 404 adults (18 years and over) in the general population from four countries (India, Iran, Portugal and UK). The cluster analysis included 380 responses out of 404 (94.06%) and resulted in five clusters. The clusters were named: (1) individual aspects; (2) aetiology; (3) the surrounding society; (4) limitations and (5) exposed. Various demographic factors (age, occupation type, education and country) showed an association with different clusters, although country of origin seemed to be associated with most clusters. The study results suggest that how hearing loss is represented in adults in general population varies and is mainly related to country of origin. These findings strengthen the argument about cross-cultural differences in perception of hearing loss, which calls for a need to make necessary accommodations while developing public health strategies about hearing loss.
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| 27. |
- Germundsson, Per, 1956-, et al.
(författare)
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Vocational rehabilitation, interagency collaboration and social representations
- 2012
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Ingår i: Work. - Amsterdam, Netherlands : IOS Press. - 1051-9815 .- 1875-9270. ; 42:4, s. 507-517
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The aim of this study is to describe and analyse two important dimensions of vocational rehabilitation for disadvantaged groups and persons with disabilities: interagency collaboration and social representations.Participants: Four focus group discussions were conducted. The participants were 20 officials of various agencies who had taken part in collaboration projects in vocational rehabilitation.Methods: Qualitative content analysis was used for the analysis. The material was categorised and central themes identified.Results: Three themes emerged: 'Collaboration Process', 'Other Agencies' and 'Object for Collaboration'. The results indicate that interagency collaboration is very important in vocational rehabilitation, but that there are a number of obstacles to smooth collaboration. The professionals of the different agencies shared social representations to a great extent. Working with people with psychiatric disorders is especially challenging, and conflicts tended to arise between the projects and the home organisations.Conclusions: Recognition of others' knowledge and respectfulness toward other professions facilitated vocational rehabilitation and the interagency collaboration process. The agencies' lack of flexibility increased the risk of conflicts as attempts were made to integrate the new working methods developed within the projects into the ordinary activities of the agencies.
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| 28. |
- Granberg, Sarah, et al.
(författare)
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The Development of ICF Core Sets for Hearing Loss
- 2010
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Ingår i: PERSPECTIVES ON AUDIOLOGY. - 1940-8587. ; 6:1, s. 20-23
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Tidskriftsartikel (refereegranskat)abstract
- The International Classification of Functioning, Disabilityand Health (ICF), adopted by the World Health Organization (WHO) in 2001, offers a framework for a comprehensive understandingof health. One of the main goals of the ICF is to provide aconceptual framework of health that can be applied both forresearch purposes and in clinical settings. In order to promotethe use of the ICF in clinical settings, the WHO initiated theCore Sets project. Core Sets, targeting a specific health condition,consist of a set of ICF categories that can serve as minimalstandards (Brief ICF Core Set) or as standards for comprehensiveassessment (Comprehensive ICF Core Set). In 2009, a processof developing ICF Core Sets for Hearing Loss was initiated.This process involves three phases of development. In the firstphase, four scientific studies are conducted to collect evidencefor relevant ICF categories to be used in the Core Sets. Inphase two, a consensus conference is held to establish relevantICF categories, and in the third phase, the Core Sets that areretained are tested and validated. This paper describes theprocess of developing ICF Core Sets for Hearing Loss as wellas an invitation to participate in the project
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| 29. |
- Granberg, Sarah, 1973-, et al.
(författare)
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The ICF core sets for hearing loss project : International expert survey on functioning and disability of adults with hearing loss using the International classification of functioning, disability, and health (ICF)
- 2014
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Ingår i: International Journal of Audiology. - : Informa Healthcare. - 1499-2027 .- 1708-8186. ; 53:8, s. 497-506
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Tidskriftsartikel (refereegranskat)abstract
- Objective: To identify relevant aspects of functioning, disability, and contextual factors for adults with hearing loss (HL) from hearing health professional perspective summarized using the ICF classification as reference tool.Design: Internet-based cross-sectional survey using open-ended questions. Responses were analysed using a simplified content analysis approach to link concept to ICF categories according to linking rules.Study sample: Hearing health professionals (experts) recruited through e-mail distribution lists of professional organizations and personal networks of ICF core set for hearing loss steering committee members. Stratified sampling according to profession and world region enhanced the international and professional representation.Results: Sixty-three experts constituted the stratified sample used in the analysis. A total of 1726 meaningful concepts were identified in this study, resulting in 209 distinctive ICF categories, with 106 mentioned by 5% or more of respondents. Most categories in the activities & participation component related to communication, while the most frequent environmental factors related to the physical environment such as hearing aids or noise. Mental functions, such as confidence or emotional functions were also frequently highlighted.Conclusions: More than half (53.3%) of the entire ICF classification categories were included in the expert survey results. This emphasizes the importance of a multidimensional tool, such as the ICF, for assessing persons with hearing loss.
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| 30. |
- Granberg, Sarah, 1973-, et al.
(författare)
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The ICF core sets for hearing loss project : Functioning and disability from the patient perspective
- 2014
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Ingår i: International Journal of Audiology. - London, UK : Informa Healthcare. - 1499-2027 .- 1708-8186. ; 53:11, s. 777-786
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Tidskriftsartikel (refereegranskat)abstract
- Objective: To explore areas of functioning, disability, and environmental factors of adults with hearing loss (HL) by using the ICF classification as a tool to determine and document each element. Design: A qualitative study applying mainly focus-group methodology was applied.Study sample: Thirty-six Dutch and South African adults (18 years of age) with HL (20–95 dB HL) who used oral communication as first communication. Summative content analysis was performed on the transcripts by linkage to appropriate ICF categories.Results: 143 ICF categories were identified, most of which belonged to the Activities & Participation (d) component, closely followed by the Environmental factors component. Participants specifically mentioned categories related to oral communication and interaction. Assistive technology (such as hearing aids), noise, and support by and attitudes of others in the environment of the participants were considered highly influential for functioning and disability.Conclusions: The present study illustrates the complex and encompassing nature of aspects involved in functioning and disability of adults with HL. Findings highlight the necessity of using a multidimensional tool, such as the ICF, to map functioning and disability with hearing loss, allowing consideration and evaluation of aspects that are both internal and external.
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