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Sökning: nordgren camilla

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1.
  • Nordgren, Camilla, et al. (författare)
  • Societal services after traumatic spinal cord injury in Sweden
  • 2003
  • Ingår i: Journal of Rehabilitation Medicine. - 1650-1977 .- 1651-2081. ; 35:3, s. 121-126
  • Tidskriftsartikel (refereegranskat)abstract
    • OBJECTIVE: Societal services after traumatic spinal cord injury in Sweden were investigated, including self-rated levels of satisfaction with the application process and resource allocation.DESIGN: Survey of an incidence population.SUBJECTS: Thirty-four persons of a total regional incidence population (n = 48) with traumatic spinal cord injury.METHODS: Structured interviews using a standardized questionnaire.RESULTS: About 25 separate services were identified being available for persons with traumatic spinal cord injury. The average number of applications per person was 5 (range 0-11). The most common service was "transportation service". Of the applications, 17% were partially or totally rejected. Most subjects received information about available services from a social worker. For 13 available services at least 1 subject claimed ignorance about its existence.CONCLUSIONS: In Sweden, significant resources are allocated for allowing independence and financial compensation for individuals with traumatic spinal cord injury. However, this support system sometimes also results in frustration and disappointment. Insufficient information and co-ordination are reported as weaknesses. The persons' efforts to acquire knowledge of how the system works take time which could be better used for rehabilitation and full integration into the community.
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2.
  • Nordgren, Camilla (författare)
  • Från ansökan till beslut - en bidragsprocess
  • 2000
  • Rapport (övrigt vetenskapligt)abstract
    • Föreliggande rapport är resultatet av uppdraget att ur brukarens perspektiv redogöra för den process som påbörjas då en samhällsresurs behöver ianspråktagas. Enkäter om ansökningsprocess och upplevelsen av denna samt omfattningen av resurstilldelning h
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3.
  • Nordgren, Camilla (författare)
  • Komplexet traumatisk ryggmärgsskada - samhällsresurser
  • 2006
  • Licentiatavhandling (övrigt vetenskapligt)abstract
    • Det sammanhållande syftet för föreliggande arbete är att synliggöra och analysera komplexiteten i samhällsresursers tillhandahållande. Organisationen studeras både utifrån vilka samhällsaktörer som existerar och hur dessa är internt organiserade, och vad
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7.
  • Nordgren, Camilla (författare)
  • On the need of validating inpatient registers.
  • 2008
  • Ingår i: Spinal Cord. - : Nature Publishing Group. - 1476-5624. ; 46, s. 748-752
  • Tidskriftsartikel (refereegranskat)abstract
    • Study design:Register study.Objectives:To design and implement a validation process to check the completeness of the Hospital Discharge Register (HDR) held by the Swedish National Board of Health and Welfare.Setting:Sweden.Methods:An accurate traumatic spinal cord injury prevalence group (n=495) was acquired from the Swedish Spinalis Clinic. A register control was performed on the group by raising three questions to check the validity of the HDR: Is an inpatient stay registered in association with the injury date? Is the reported first length of stay plausible, given the level and extent of injury? Are all the anticipated care and/or rehabilitation providers represented in the HDR?Results:For 62% (of 413 cases) the first registered hospitalization date correlated with the injury date. For the other 38%, hospitalization was reported to start between 2 and 8651 days after injury. Considering the level and extent of injury, individuals were reported to have unrealistically short initial hospitalization. The prevalence group visited 42 different hospitals and 47 clinics. Five rehabilitation clinics, though, were not reported.Conclusions:The HDR is a valuable source when conducting epidemiological and health services research. However, using the register without any validation process could, as detected in the investigated diagnosis group, lead to a severe underestimation of the inpatient usage. The study showed that systematic errors could be detected by means of extensive knowledge of the diagnosis group.Spinal Cord advance online publication, 13 May 2008; doi:10.1038/sc.2008.42.
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8.
  • Nordgren, Camilla, et al. (författare)
  • Societal services after traumatic spinal cord injury in Sweden
  • 2003
  • Ingår i: Journal of Rehabilitation Medicine. - : Taylor & Francis. - 1651-2081. ; 35:3, s. 121-126
  • Tidskriftsartikel (refereegranskat)abstract
    • The article describes a survey of the societal services in Sweden that are available after a spinal cord injury. These services are allocated to allow independence and financial compensation. I have investigated the kinds of services that are available. I have also interviewed 34 of a total incidence population of 48 people, to find out which services were applied for, and to describe the levels of satisfaction with the application process and resource allocation. The article identifies about 25 separate services, the most commonly applied for being "transportation service". Social workers are the most common source of information. The number of applications made within one year early after injury were investigated a found to be about 5 per person (range 0-11). The information about a service is critical and for 13 available services at least 1 individual reported ignorance of its existence. An application for a service is no guarantee for allocation. Seventeen per cent of the applications were partially or totally rejected. The study concludes that significant resources are allocated for individuals with traumatic spinal cord injury. Despite this, the system creates frustration and disappointment.
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9.
  • Nordgren, Camilla (författare)
  • Societal services and traumatic spinal cord injury: A multifaced interaction
  • 2006
  • Licentiatavhandling (övrigt vetenskapligt)abstract
    • The licentiate thesis is based on three papers. The aim of the research is to elucidate and analyze how societal services in practice are made available (or not available) and are utilized (or not utilized) by a group of individuals with traumatic spinal cord injuries (SCI). The first article is an inventory of Swedish societal support and services that one can apply for after a traumatic SCI. Twenty-five such forms are identified, which are primarily administered by two authorities: the local (municipal) authority and the social insurance office. The consumers expressed their frustration with this organization and the feelings of being checked up on and called into question. The second article analyzes how general ethical guidelines are challenged by situated ethics in the design context. This corresponds here to how the intentions that motivate the allocation of societal services are challenged by the experiences of the people directly affected when it comes to treatment, degree of complexity, and the transparency and predictability of the systems. The third article deals with inpatient care utilization by an SCI group in Sweden and the usefulness of this data in surveying the group’s total utilization. In an effort to validate the contents of this database, it became apparent that it was impossible to establish the group’s total inpatient care utilization. The articles also discuss methodological aspects of the surveying and documentation of societal services.
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10.
  • Nordgren, Camilla (författare)
  • The Art of Living with a Traumatic Spinal Cord Injury in its relation to Resources and Norms in Swedish Society
  • 2008
  • Doktorsavhandling (övrigt vetenskapligt)abstract
    • The overall aim of this thesis is to elaborate on the art of living with a traumatic spinal cord injury (SCI) in its relation to resources and norms in Swedish society. The thesis originates in part from a prevalence group of SCI individuals and is based on four studies. One is longitudinal and register based, and one is interview based. A paper on “ethics in the making” elaborates how general versus situated ethics might influence design. A norm perspective is applied in another study highlighting the double sets of social norms via narratives in the context of a severe disability. Through these approaches, I hope to open up an area in which little or no research has previously been carried out. A traumatic spinal cord injury is today not curable and commonly leads to a significant, permanent disability with a risk for severe complications. Living with a traumatic spinal cord injury poses, beside all the medical implications, a wide range of obstacles and circumstances in daily life that must be dealt with. The need for accessible environments and societal resources is thus obvious; an extensive and lifelong reliance upon such services will typically be established. The complexity of the injury and its effects on physical functions mean that the needs are great. Society provides various supportive services in order to restore social integration, re-establish autonomy, compensate for financial and functional losses and facilitate activities of daily living. Acute care, rehabilitation and readmissions both as inpatient and outpatient services are, of course, of great importance and are cost-consuming. Other services, though, will also be comprehensive due to their repetitive use in a life-perspective. The comprehensive aim of the thesis is formulated in the following sub-purposes: • Identify the spectrum of potentially relevant societal resources after traumatic SCI. • Investigate an incidence population’s use of societal resources including self-rated levels of satisfaction with the application process and resource allocation. • Discuss how general ethical guidelines are challenged by situated ethics in a design context. • Validate an existing inpatient register. • Analyze and discuss how a norm perspective can be utilized to understand why legislation is not sufficient to achieve Swedish disability policy goals. Results show that about 25 separate services are available and that each service has to be applied for separately by the individual. Information about the services was provided by a social worker but still individuals reported ignorance about the existence of various services. Applications were partially or totally rejected. The National Patient Register proved to be lacking information and was thereby validated by raising three questions: Is an inpatient stay registered in association with the injury date? Is the reported first length of stay plausible given the level and extent of injury? Are all the anticipated care and/or rehabilitation providers represented in the register? For 62%, the first registered hospitalization date correlated with the injury date, leaving 38% with a hospitalization that started later. Considering the level and extent of injury, individuals were reported to have unrealistically short initial hospital stays. The prevalence group visited 42 different hospitals and 47 clinics. Five rehabilitation clinics, though, were not reported. The study on double sets of social norms found that the individual’s experience in everyday situations runs contrary to the prevailing, expected norms. This results in the individual not being able to identify with everyone else or to rely on the current set of norms. The discussion elaborates on the time frame needed to perform and interpret longitudinal studies, as well as the impact different disability definitions have on the results. The use of the term “being in need of” in this area and how utilization can be estimated are also considered. The consequences of access to services being dependent on the individual’s initiative are examined. This section also highlights that the perspective of the authorities versus that of the individual (i.e. the lived perspective) are not only separate but different, and that the individual may be seen as a burden.
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