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11.
  • Wennick, Anne, et al. (författare)
  • Everyday life after a radical prostatectomy : A qualitative study of men under 65 years of age
  • 2017
  • Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 30, s. 107-112
  • Tidskriftsartikel (refereegranskat)abstract
    • Purpose: The purpose of this study was to illuminate how men under 65 years of age experience their everyday Life one year or more after a radical prostatectomy for localised prostate cancer. Method: Interviews with 19 men aged under 65 were performed 12-18 months after their radical prostatectomy. The interviews were analysed using a thematic content analysis. Results: The analysis of the interviews revealed three categories of experiences: 'Paying a price for survival', 'Feeling sidestepped' and 'Living with death lurking around the corner'. The side effects of the prostatectomy, such as sexual dysfunction, resulted in a changed self-image with a loss of manliness and reduced self-esteem. The men felt sidestepped and that they did not receive enough support. Prostate cancer was experienced as an embarrassing disease and the men felt their fundamental needs could not be openly discussed. Having cancer was associated with death. Thoughts about death faded away during recovery after the operation, but grew stronger in certain situations and reminded the men about their cancer. Returning to work and to previous activities helped them cope with the thoughts about death. Conclusions: Our study suggests a need for improved rehabilitation after a radical prostatectomy, including more structured sexual rehabilitation, and involving the partner. Sharing the experiences of other men who have undergone prostate cancer surgery may also be beneficial. (C) 2017 Published by Elsevier Ltd.
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12.
  • Wennick, Anne, et al. (författare)
  • Families' lived experience one year after a child was diagnosed with type 1 diabetes
  • 2007
  • Ingår i: Journal of Advanced Nursing. - : Wiley. - 0309-2402 .- 1365-2648. ; 60:3, s. 299-307
  • Tidskriftsartikel (refereegranskat)abstract
    • Aim. This paper is a report of a study to elucidate families' lived experience of diabetes one year after a child was diagnosed with type 1 diabetes. Background. The incidence of type 1 diabetes is rapidly increasing worldwide, with a shift towards younger age groups. This illness is treated by means of an intensive management regimen that often disrupts the child's usual activities and requires disease-focused behaviours from the child and his or her family. However, research elucidating families' lived experience from the perspective of all its members is sparse. Method. A hermeneutic phenomenological study was carried out in 2004, based on interviews one year after diagnosis with 11 consecutively chosen Swedish-speaking family members with children aged between 9 and 14 years. Findings. The families described their one year of lived experience as living an ordinary yet different life. They experienced their lives to be neither particularly difficult nor as easy as they had been before the child was diagnosed with diabetes. Related themes were 'feeling acceptance yet frustration', 'being healthy yet invisibly ill', 'feeling independent yet supervised' and 'feeling confident yet insecure'. Conclusion. It may be helpful if healthcare professionals make use of the knowledge and experience of families living with the illness to meet their specific needs, especially when the affected child is experiencing fluctuating blood sugar levels. Thus, health-promoting collaboration should be tailor-made for every individual and proceed from each family's everyday life.
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13.
  • Wennick, Anne (författare)
  • LIVING WITH CHILDHOOD DIABETES - Family Experiences and Long-term effects
  • 2007
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • The overall aim of this thesis was to investigate families’ experiences when a child is diagnosed as having type 1 diabetes, and at one and three years after diagnosis. Since childhood health and the circumstances around it in the family have been shown to have a lasting impact on adult health and circumstances, an additional aim was to examine the long-term effect of childhood diabetes on education level attained and self-assessed health. The work described in this thesis was carried out using a combination of qualitative and quantitative methods. In study 1, a longitudinal qualitative study design was used with interviews for data collection, and in study 2 a cross-sectional quantitative study design was used with register data based on structured interviews for data collection. The sample of the first study (papers I–III) was made through a consecutive series of families with children diagnosed with type 1 diabetes in 2003, who were interviewed individually in 2003 (n=12), 2004 (n=11), and then again in 2006 (n=11). Data collected in 2003 and 2004 was analysed using a hermeneutic phenomenological approach, whereas data from 2006 was analysed using latent content analysis. The sample from the second study (paper IV) was made through a set of pooled cross-sectional population survey data, supplemented with register data. It comprised 106 individuals diagnosed with diabetes before age 19 and 20,564 individuals not diagnosed before age 19, aged 19–38, who were interviewed for the Swedish Biennial Survey of Living Conditions (Undersökningar om Levnadsförhållanden, ULF). The data were analysed using two multiple regressions: one for educational level attained and one for self-assessed health, using a human-capital model as a theoretical framework. Findings in study 1 demonstrate that after the affected child had been diagnosed with type 1 diabetes, the family entered an ongoing learning process where they learnt about the inevitable and the extent. The learning process was a recurrent phenomenon whenever the families were exposed to new situations and contexts. One year after diagnosis the family described that they were living an ordinary yet different life, and the family experienced acceptance, health, independence and confidence during periods of well-balanced blood glucose levels. The integration of the illness into the family’s everyday life was, however, obstructed during episodes of unbalanced blood glucose levels, which affected the whole family negatively. Three years after diagnosis all family members had acquired a sound basis for managing the diabetes regimen. They had learnt more about diabetes, which was a natural element of the families’ everyday life, although still affecting the family members differently in their daily life. Furthermore, in study 2, controlling for a set of independent variables, childhood diabetes was found to be associated with lower levels of attained education and self-assessed health in comparison with the general population. More educated individuals reported better health, though. Hence, further research is needed to decide which method of treatment is most beneficial for the individual family when a child is striken with type 1 diabetes. The importance of showing receptivity to each family member’s needs and experiences was further suggested when the families were interviewed three years after the diagnosis, as it revealed that the illness affected the daily life of family members to a different degree. It is also important early in life to strengthen the possibility of having and reaching an agreeable level of attained education for children diagnosed with diabetes, as this may lead to increased health for the child later in life.
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14.
  • Wennick, Anne, et al. (författare)
  • Swedish families' lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: An ongoing learning process.
  • 2006
  • Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 12:4, s. 368-389
  • Tidskriftsartikel (refereegranskat)abstract
    • Sweden has the second highest nationwide incidence of childhood diabetes in Europe, and it is rapidly increasing. The diagnosis of Type 1 insulin-dependent diabetes mellitus has been indicated as a crisis in the life of the individual and family. The purpose of this study was to elucidate the whole family’s lived experience when a child in the family is diagnosed as having diabetes. It was designed as a longitudinal, descriptive, inductive study including qualitative interviews. Family members in 12 families were recruited from a children’s university hospital in Sweden to participate in a series of three interviews: when first diagnosed, and 1 and 3 years after diagnosis. This article derives from the first interview. All invited families agreed to participate and were interviewed 1 to 3 months after diagnosis using a hermeneutic phenomenological approach. The family’s lived experience was identified as an ongoing learning process including learning about the inevitable and learning about the extent. The learning process was experienced as a recurrent phenomenon when the family was exposed to new situations or contexts. Therefore, individualized treatment may reduce the difficulties experienced in coping with the diabetic management regimen after discharge, thus making the transition smoother.
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15.
  • Wennick, Anne, et al. (författare)
  • What it is like being a sibling of a child newly diagnosed with type 1 diabetes : an interview study
  • 2012
  • Ingår i: European Diabetes Nursing. - : Wiley-Blackwell. - 1551-7853 .- 1551-7861. ; 9:3, s. 88-92
  • Tidskriftsartikel (refereegranskat)abstract
    • Although previous studies have stressed that having a brother or sister with a chronic condition may affect the healthy sibling, few have specifically focused on healthy siblings of children with type 1 diabetes. Hence, this study aimed to illuminate what it is like to be a brother or sister of a childnewly diagnosed with type 1 diabetes. Individual interviews were conducted with seven siblings aged 10–17 years(median=12)from six different families. Each interview was analysed using content analysis.Three different categories emerged – Living differently, Being concerned andParticipating in caring for the affected child – indicating that, for the healthy sibling, theillness entails a transformed everyday life including worry about the affected child and theneed to help in the home. In conclusion, the paediatric health care service may need to develop new strategies to meet the siblings’ desired level of knowledge in educational team sessions relatedto diabetes. As the sibling relationship is probably the longest one that an affected child will experience in her/his lifetime, it is worth investing in it to promote this long-term support resource.Eur Diabetes Nursing 2012; 9(3): 88–92
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16.
  • Wennick, Anne, 1968-, et al. (författare)
  • Translation, adaptation and testing of an emergency care satisfaction scale in Swedish pediatric emergency departments
  • 2021
  • Ingår i: BMC Pediatrics. - : BioMed Central. - 1471-2431. ; 21:1
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND: Pediatric healthcare today shows a rising demand for research focusing on children's perspectives on and consumer satisfaction with the nursing care they receive. Therefore, the purpose of this study was to translate and adapt the Consumer Emergency Care Satisfaction Scale (CECSS), a paper-based, self-administered 19-item questionnaire originally developed in the United States and targeted towards adults, and then test the new version in Swedish pediatric emergency departments.METHODS: The study was designed with a two-phase approach. Firstly, a forward-backward translation of the CECSS, involving expert consensus, was performed, and then the questionnaire was adapted for children aged 10-18 and assessed for face and content validity. Secondly, the translated and adapted questionnaire was tested with a clinical sample for construct validity, internal consistency, and reliability. This last aspect was assessed using a structured telephone interview 7-10 days after the participant visited a pediatric emergency department. All children participating in this study gave their assent (< 15 years) or consent (≥ 15 years), and their guardian's written informed consent was also obtained.RESULTS: The paper-based, self-administered 19-item Swedish version of the CECSS was tested on a clinical sample consisting of 203 nonurgent children (boys: n = 109, 53.7 % and girls: n = 94, 46.3 %) between 10 and 18 years (mean age 13.8, SD 2.29). The factor analysis revealed three factors that explain 63.1 % of the total variation in the 15 items. The Cronbach's alphas for the three dimensions (caring, teaching, and clinical competence) varied between 0.79 and 0.88. The intraclass correlation coefficient (ICC) for the entire Swedish version of the CECSS was 0.58, and the ICCs for the three dimensions varied between 0.56 and 0.71.CONCLUSIONS: The results show that the developed Swedish Pediatric Consumer Emergency Care Satisfaction Scale (p-CECSS-S) is a valid, stable and easy-to-use-questionnaire that can be used to assess children's satisfaction with nursing care.
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17.
  • Tveiten, Sidsel, et al. (författare)
  • Sykepleie til barn : familiesentrert sykepleie
  • 2012
  • Bok (övrigt vetenskapligt/konstnärligt)abstract
    • Denne boken fokuserer på sykepleierens funksjon overfor syke barn og deres familie, på familiesentrert sykepleie.I tillegg til kompetanse i forhold til syke barn må sykepleieren ha kompetanse til samhandling med foreldrene og søsken. Boken er et samarbeid mellom tre forfattere. Barnesykepleier, dr.med.sc. og lektor Anne Wennick har skrevet om sykepleie til barn med ulike symptomer. Psykolog Hanna Friis Steen har skrevet om utviklingspsykologiske aspekter som er av betydning når barn er syke. Sykepleier, dr.polit. og 1. amanuensis Sidsel Tveiten har skrevet generelt om sykepleiefaglige, pedagogiske og etiske aspekter ved sykepleie til barn og om sykepleierens pedagogiske funksjon i samhandling med barnet og familien.
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18.
  • Carlson, Elisabeth, et al. (författare)
  • Critical Friends : Health Professionals' Experiences of Collegial Feedback in a Clinical Setting
  • 2018
  • Ingår i: Journal of Continuing Education in the Health Professions. - : Lippincott Williams & Wilkins. - 0894-1912 .- 1554-558X. ; 38:3, s. 179-183
  • Tidskriftsartikel (refereegranskat)abstract
    • Introduction: A critical friend is a trusted person who asks provocative questions, provides data to be examined through another lens, and offers critique of a person's work as part of collegial feedback. However, empirical evidence presenting the use of collegial feedback to develop health professionals’ competence in clinical settings seems to be scarce. The aim of this study was to explore health professionals’ experiences of observing each other as critical friends in a clinical setting, as part of a continuous professional development initiative. Methods: The study was designed as a qualitative inductive study. Reflective journals written by health professionals (n=57) were analysed using thematic networks. The health professionals represented registered nurses and registered nurses with different specialist education (for example in paediatrics, mental health, intensive care and anaesthesiology), biomedical scientists, occupational therapists, physiotherapists and dental hygienists. Results: Health professionals can successfully use collegial feedback and benefit from critical friendships in clinical settings as it offers ample opportunities for reflection before, during and after the observation. A key finding was that in order to incorporate changes to professional practice, each individual needs to not only to act as a critical friend, but also experience being observed by a critical friend. Discussion: Based on the results of this study, it seems worthwhile to implement and further develop opportunities for health professionals to act as critical friends. We suggest that future research explore not only how professional competence develops over time, but also how it impacts on health related outcomes for patients.
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19.
  • Dychawy Rosner, Irena, et al. (författare)
  • Triad handledning : en handledningsmodell för introduktion av empiriska koncept i sjuksköterskeutbildningen
  • 2012
  • Bok (övrigt vetenskapligt/konstnärligt)abstract
    • Utbildning inom universitet och högskola ställs ständigt inför olika beslut som berör pedagogiska angreppssätt för vuxnas lärande. Denna bok handlar om en praktik där utbildning, forskning och forskarutbildning vävs samman i en handledningsmodell. Den föreslagna TRIAD modellen bygger på triadiska episoder där tre nivåer av kunnande sammanförs. Förloppet i själva handledningssituationen bygger på situationsbaserad lärande och koncentreras kring empiri och vetenskaplig metodologi.Triad handledningen bildar ramar kring vetenskapliga koncept där undervisningen på grundnivån kan forskningsförankras. En slutsats som dras är att studenten på både grund- och forskarnivån får utveckla och tillämpa sina färdigheter i realistiska och verklighetsanpassade praktiker.
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20.
  • Holst-Hansson, Annette, et al. (författare)
  • Hoping to reach a safe haven :Swedish families' lived experience when a family member is diagnosed with breast cancer
  • 2017
  • Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 31, s. 52-58
  • Tidskriftsartikel (refereegranskat)abstract
    • Purpose: When a woman is diagnosed with breast cancer, it affects all family members. Therefore, the aim of this study was to elucidate family members lived experience when a family member is diagnosed with breast cancer. Method: The study had a hermeneutic phenomenological design including individual conversational interviews conducted face-to-face with six women with breast cancer and their family members at two different points of time, in order to elucidate families' lived experience, both as individuals and as a unit, from each family member's perspective. Results: Living as a family in the presence of breast cancer is a challenging endeavour to regain an ordinary, safe life, hoping to reach a safe haven. The families felt that life as they knew it had disappeared and they were fumbling in the dark, trying to find support and guidance on their path to ordinary life. The family members were pursuing balance by attempting to keep the family together and maintaining a positive attitude while battling against fear and treatment-related side effects. Finally, the families were struggling with guilt and inadequacy, due to their difficulties in communicating the emotional distress that the illness brought upon them, at the same time as they felt abandoned by the healthcare professionals. Conclusions: Families experience an unmet need of information and support, which implies that healthcare professionals may want to acknowledge and include the family already at the time of diagnosis in order to help them endure and cope with the distressing experience and thus increase their wellbeing.
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