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- Brey, Philip, et al.
(författare)
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SIENNA D6.3 : Methods for translating ethical analysis into instruments for the ethical development and deployment of emerging technologies
- 2021
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- In this SIENNA deliverable we present five general methods for translating ethical analysis into frameworks and methods for the ethical guidance of new emerging technologies. These are:a multistakeholder, coevolutionary strategy for ethically responsible development, deployment and use of new technology,a step-by-step method for the development of ethics guidelines and ways in which guidelines can be operationalized,a general approach for Ethics by Design, that works for all technology fields,suggestions for ethics and human rights projects on new and emerging technologies forengaging with policy-maker, and finallya method on how research ethics committees can support ethics in new emerging technology research.
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- Matar, Amal
(författare)
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SIENNA D5.2 : An international code of conduct for data sharing in genomics
- 2021
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- As part of the SIENNA consortium proposals (WP5), the deliverable proposes an international code of conduct for data sharing in genomics. It builds on results of D 2.3: Survey of REC approaches and codes for genomics, D2.4: Ethical analysis of human genetics and genomics and D5.6: Recommendations for the enhancement of the existing legal frameworks for genomics, human enhancement, and AI and robotics.To draft the proposed code of conduct, we adopted a mix of methods involving a literature review, synthesis of pertinent existing codes of conduct, a workshop of an expert panel and soliciting feedback from SIENNA stakeholders.The deliverable addresses specific concerns and gaps as identified via literature namely; identifiability, broad consent, portability accessibility and return of results, compelled disclosure and lastly withdrawal of consent. Furthermore, we propose mitigation measures as recommended by experts and stakeholders and through synthesis of relevant past codes. The results have been discussed in the light of GDPR which is the most relevant legal framework within the EU.
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| 4. |
- Bülow, Margareta, et al.
(författare)
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Ätstudie med alder respondenter. Acceptants och preferens av konstistensanpassade produkter.
- 2007
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- SUMMARY In many countries, the proportion of elderly people is growing faster than any other age group. Today, people aged 65 years and over represents 17% of the Swedish population. With aging comes increasing prevalence of diminished taste and smell abilities and impaired function of chewing and swallowing. Many elderly, 30-35% suffers from chewing and swallowing disorders, i.e. dysphagia. Dysphagia has further been reported to affect eating habits, since certain foods can be too difficult to eat. “Sensory design and optimisation of consistency to promote health and comfort in elderly people” is a VINNOVA funded research project. The objective of the project is to gain knowledge on and study how and with which ingredients it is possible to develop innovative and healthy food products with sensory and consistency qualities that are in line with elderly consumers´ need of health and comfort. In one work package, elderly people (living in ordinary home; OH and in special housing; SH) evaluated texture modified meat and carrot products developed within the project. Their health status, chewing and swallowing functions were also studied. Some of the participants were further interviewed about attitudes to food and meals. About 12% in the studied population perceived difficulties in swallowing, most frequently reported in SH. Only 20% of those with impaired function had however been examined. Thereby, the risk of diseases and malnutrition may increase in those people, since texture modified diet has not been offered. The meat- and carrot products in this study were chewed and swallowed with ease. Overall, subjects in SH perceived the meat products easier to chew and swallow, and the carrot products easier to chew in comparison with OH. Possible factors for these differences might be related to health status. The prevalence of impaired swallowing and/or chewing function and prescribed oral drugs were higher in SH. A reduced appetite and prevalence of low BMI were more common in SH compared to OH. For an increasing number of elderly people with diseases related to dysphagia and/or malnutrition development of texture modified food is needed. Men in ordinary home reported mostly changes in attitudes to food and meals, comparing life as working with life as retired. Spending more time at home as retired, resulted in an increased interest in cooking for many of the men. For the elderly living in special housing, the appetite and willingness to try new meals and food products have decreased, comparing life as working with life as retired. Depending on the way of living, the meal times had been more regular and meals were often eaten with others.
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