1.
Lövgren, Malin, et al.
(författare)
Bereaved Siblings' Advice to Health Care Professionals Working With Children With Cancer and Their Families
2016
Ingår i: Journal of Pediatric Oncology Nursing. - : SAGE Publications. - 1043-4542 .- 1532-8457. ; 33:4, s. 297-305
Tidskriftsartikel (refereegranskat) abstract
Introduction: Siblings of children with cancer experience psychosocial distress during the illness and after bereavement, but often stand outside the spotlight of attention and care. This study explored bereaved siblings' advice to health care professionals (HCPs) working with children with cancer and their families. Materials and Methods: In a nationwide Swedish survey of bereaved siblings, 174/240 (73%) participated. Of these, 108 answered an open-ended question about what advice they would give to HCPs working with children with cancer and their families. In this study, responses to this single question were analyzed using content analysis. Results: The most common advice, suggested by 56% of siblings, related to their own support. One third suggested giving better medical information to siblings. Some siblings wanted to be more practically involved in their brother's/sister's care and suggested that HCPs should give parents guidance on how to involve siblings. Other common advice related to psychosocial aspects, such as the siblings' wish for HCPs to mediate hope, yet also realism, and the importance of asking the ill child about what care they wanted. Conclusion: Information, communication, and involvement should be emphasized by HCPs to support siblings' psychosocial needs in both the health care setting and within the family.
2.
Eilertsen, M. E. B., et al.
(författare)
Impact of Social Support on Bereaved Siblings' Anxiety: A Nationwide Follow-Up
2013
Ingår i: Journal of Pediatric Oncology Nursing. - : SAGE Publications. - 1043-4542 .- 1532-8457. ; 30:6, s. 301-310
Tidskriftsartikel (refereegranskat) abstract
Purpose:To assess adolescent and young adult siblings' perception of social support prior to and following the loss of their brother or sister to cancer, 2 to 9 years earlier, and their anxiety at follow-up. Method: In 2009, 174 (73%) bereaved siblings (12-25 years) participated in a nationwide, long-term follow-up study in Sweden using an anonymous study-specific questionnaire. The Hospital Anxiety and Depression Scale was used to measure self-assessed anxiety. Results: Siblings had a higher risk of anxiety if they perceived their need for social support was unsatisfied during their brother or sisters' last month before death, relative risk (RR) = 3.6 (95% confidence interval [CI] = 1.8-7.3); time after death, RR = 2.9 (95% CI = 1.5-5.6); and at follow-up, RR = 3.8 (95% CI = 2.0-7.2). Furthermore, a higher risk for anxiety was shown for siblings if they did not perceive that their parents and neighbors cared for them after their brother or sisters' death, RR = 2.7 (95% CI = 1.3-5.5), RR = 5.4 (95% CI = 1.3-21.9), respectively. Conclusion: Bereaved siblings had a greater probability to report self-assessed anxiety if they perceived that their need for social support was not satisfied prior to and following death. Information from both nurses and other health care professionals to families about the impact of social support may contribute to lessen the siblings' risk of anxiety.
3.
Masterton, Malin, 1979-, et al.
(redaktör/utgivare, creator_code:cre_t)
ORU2015 Örebro University Research Evaluation 2015 : Evaluation Report
2015
Rapport (övrigt vetenskapligt/konstnärligt) abstract
ORU2015 – Executive SummaryDuring 2015, all research performed from 2008 to 2014 at Örebro University, as well as research at Örebro University Hospital, has been evaluated. This report – ORU2015 – presents the background, planning and implementation of the research assessment and its results. Chapter I includes the panel evaluations, and chapter II presents the bibliometric data. Of the 38 subunits of evaluation, 8 are within the Faculty of Business, Science and Engineering, 17 are within the Faculty of Humanities and Social Sciences, 7 within the Faculty of Medicine and Health, and 6 at Region Örebro County’s University Hospital. The evaluation had a meta-analytical approach (see Annex A), and the external multidisciplinary panel assessed the research in each subunit of evaluation (see Annex B). The panel’s evaluation material consisted of a research overview, documentation on academic staff and competence, as well as on funding, self-evaluations and bibliometric data. The self-evaluations by each subunit addressed (i) scientific quality and scientific impact, (ii) impact and outreach, (iii) internationalisation, and (iv) research – education interaction. Each overarching evaluation unit was also assessed, including a SWOT analysis, by the respective heads of schools and deans. Apart from the self-evaluations, the material was retrieved from the university databases, Web of Science and Academic Archive Online (DiVA). The subunits had the opportunity to update their research information for the research overview prior to making the material available to the panel. The fourteen panellists, representing economics, natural sciences and technology, humanities, social sciences, medicine and health sciences, met for two days in October at Örebro University for the evaluation discussions. The agreed evaluation statements were delivered shortly thereafter. The great variability in the subunits’ scientific practices, scale, and establishment had to be accounted for in the panel evaluations. The evaluation subunits range from very large (up to 60 researchers), to medium sized (about 20 researchers), and to quite small subunits (fewer than nine researchers). The points of reference for the panel’s statements were the (i) quality of research, (ii) research environment and infrastructure, (iii) scientific and social interaction and (iv) future potential. Gradings ranged between Excellent (5) and Insufficient (1). The key data in the bibliometric assessment was scientific impact, vitality, productivity and international visibility, as indicated by the publications of each subunit. It can be seen from the panel statement of a subunit and the matching bibliometric data that these two assessments correspond to a large extent, but not completely.It is concluded from the panel evaluation that there are Excellent (5), Very Good (4), Good (3), Sufficient (2), as well as Insufficient (1) subunits at the university. A majority of the fourteen subunits that performed well (grade 3 – 5) are medium-sized, whilst the majority of the sixteen weakly performing subunits (grade 1 – 2) are small in size. Of course, for the humanities and social sciences, the Web of Science data only contains output to a limited degree. Therefore data from DiVA has been used and compared as well. For some subunits this makes a difference, but of the 16 subunits that show a weak performance according to Web of Science data, ten also perform weakly as shown in DiVA. Only three of these subunits score Good and one Very Good in DiVA.It can be seen from ORU2015 that the research volume, especially expressed in scientific publications per year and citations, has roughly doubled since ÖRE2010. In 2014, the total number of publications in Web of Science by researchers at the university and the university hospital reached some 600 and the number of citations were 14,000 the same year. The ‘findings’ of ORU2015 provide an important basis for decisions by leaders at all levels of the university in terms of strategic planning, support, and development of the research for the future.
4.
Gerdle, Björn, et al.
(författare)
Who benefits from multimodal rehabilitation - an exploration of pain, psychological distress, and life impacts in over 35,000 chronic pain patients identified in the Swedish Quality Registry for Pain Rehabilitation
2019
Ingår i: Journal of Pain Research. - : DOVE Medical Press Ltd.. - 1178-7090. ; 12, s. 891-908
Tidskriftsartikel (refereegranskat) abstract
Background: Chronic pain patients frequently suffer from psychological symptoms. There is no consensus concerning the prevalence of severe anxiety and depressive symptoms and the strength of the associations between pain intensity and psychological distress. Although an important aspect of the clinical picture is understanding how the pain condition impacts life, little is known about the relative importance of pain and psychological symptoms for individual's life impact. The aims of this study were to identify subgroups of pain patients; to analyze if pain, psychological distress, and life impact variables influence subgrouping; and to investigate how patients in the subgroups benefit from treatments.Methods: Background variables, pain aspects (intensity/severity and spreading), psychological distress (depressive and anxiety symptoms), and two life impact variables (pain interference and perceived life control) were obtained from the Swedish Quality Registry for Pain Rehabilitation for chronic pain patients and analyzed mainly using advanced multivariate methods.Results: Based on >35,000 patients, 35%-40% had severe anxiety or depressive symptoms. Severe psychological distress was associated with being born outside Europe (21%-24% vs 6%-8% in the category without psychological distress) and low education level (20.7%-20.8% vs 26%-27% in the category without psychological distress). Dose relationships existed between the two psychological distress variables and pain aspects, but the explained variances were generally low. Pain intensity/severity and the two psychological distress variables were significantly associated (R2=0.40-0.48; P>0.001) with the two life impact variables (pain interference and life control). Two subgroups of patients were identified at baseline (subgroup 1: n=15,901-16,119; subgroup 2: n=20,690-20,981) and the subgroup with the worst situation regarding all variables participated less in an MMRP (51% vs 58%, P<0.001) but showed the largest improvements in outcomes.Conclusion: The results emphasize the need to assess both pain and psychological distress and not take for granted that pain involves high psychological stress in the individual case. Not all patients benefit from MMRP. A better matching between common clinical pictures and the content of MMRPs may help improve results. We only partly found support for treatment resistance in patients with psychological distress burden.
5.
Rexhepi, Hanife, 1984-, et al.
(författare)
Online electronic healthcare records : Comparing the views of cancer patients and others
2020
Ingår i: Health Informatics Journal. - : Sage Publications. - 1460-4582 .- 1741-2811. ; 26:4, s. 2915-2929
Tidskriftsartikel (refereegranskat) abstract
This study investigates differences in attitudes towards, and experiences with, online electronic health records between cancer patients and patients with other conditions, highlighting what is characteristic to cancer patients. A national patient survey on online access to electronic health records was conducted, where cancer patients were compared with all other respondents. Overall, 2587 patients completed the survey (response rate 0.61%). A total of 347 respondents (13.4%) indicated that they suffered from cancer. Results showed that cancer patients are less likely than other patients to use online electronic health records due to general interest (p < 0.001), but more likely for getting an overview of their health history (p = 0.001) and to prepare for visits (p < 0.001). Moreover, cancer patients rate benefits of accessing their electronic health records online higher than other patients and see larger positive effects regarding improved communication with and involvement in healthcare.
6.
Nakeva von Mentzer, Cecilia, 1968-, et al.
(författare)
Intensive computer-based phonics training in the educational setting of children with Down syndrome : An explorative study
2021
Ingår i: Journal of Intellectual Disabilities. - London : Sage Publications. - 1744-6295 .- 1744-6309. ; 25:4, s. 636-660
Tidskriftsartikel (refereegranskat) abstract
Children with Down syndrome (DS) using intensive computer-based phonics (GraphoGame, GG) were studied. The children's independence and improvement in phonological processing, letter knowledge, word decoding, and reading strategies were investigated. Seventeen children (5-16 years) with DS participated in a crossover design through 8 weeks (one period), with three test sessions separated by 4 weeks. Children were randomly assigned to GG intervention or regular schooling (RS). All children completed one period and eight children completed two periods. A majority gradually became independent in managing GG. At the group level, very little benefit was found from working with GG. At the individual level, several children with mild to severe intellectual disabilities showed increased decoding of trained words. After one period of GG and RS, an increase in alphabetically decoded words was found. The finding suggests that when individual challenges are considered, computer-based phonics may be beneficial for children with DS in their educational setting.
7.
Toschke, Audré M., et al.
(författare)
Paternal smoking is associated with a decreased prevalence of type 1 diabetes mellitus among offspring in two national British birth cohort studies (NCDS and BCS70)
2007
Ingår i: Journal of Perinatal Medicine. - Berlin : Walter de Gruyter. - 0300-5577 .- 1619-3997. ; 35:1, s. 43-7
Tidskriftsartikel (refereegranskat) abstract
AB Aims: An association between paternal age and type 1 diabetes (IDDM) among their offspring was recently reported as well as transgenerational responses in humans. This paper aims to assess the association of markers for prenatal exposures with IDDM. Methods: We analysed data from two birth cohorts in Great Britain on 5214 cohort members from the National Child Development Study (NCDS) and 6068 members of the 1970 British Birth Cohort Study (BCS70) with full information on IDDM and explanatory variables using multivariate logistic regression. Results: IDDM prevalence was 0.7% (95% CI 0.5-1.0%; n = 38) in the NCDS and 0.4% (95% CI 0.3-0.6%; n = 27) in the BCS70 cohort. Paternal age was not associated with IDDM possibly due to lack of sample power. Unex-pectedly, a lowered prevalence of IDDM was observed among offspring of smoking fathers in both cohorts, with a combined odds ratio of 0.44 (95% CI 0.25-0.75). This association could not be explained by maternal smoking prior to, during or after pregnancy, number of siblings, parental social class, maternal and paternal age, or cohort. Maternal smoking in pregnancy did not alter the IDDM prevalence among offspring. Conclusions: This unexpected finding may be explained by germ-line mutations or other mechanisms associated with paternal smoking. This phenomenon should be investigated and these results should not be used as a justification for smoking. Paternal exposures may be important in determining IDDM risk.
8.
Pettersson, Cecilia, 1963, et al.
(författare)
Enablers and Barriers in the Physical Environment of Care for Older People in Ordinary Housing: A Scoping Review
2020
Ingår i: Journal of Housing for the Elderly. - : Informa UK Limited. - 0276-3893 .- 1540-353X. ; 34:3, s. 332-350
Forskningsöversikt (refereegranskat) abstract
Our aim was to explore enablers and barriers in ordinary housing for older people in care. We systematically searched Scopus, Web of Science, and Google Scholar for relevant published research and gray material. The search resulted in a final sample of eight publications, four of which focused on accessibility for older people with dementia. Thematic analysis resulted in two themes: safety and accessibility. Future studies should focus on modifications to ordinary housing to achieve safe and comfortable environments for people who want to age in place and those who provide them with care.
9.
Peerzada, Jehanna M., et al.
(författare)
Delivery room decision-making for extremely preterm infants in Sweden
2006
Ingår i: Pediatrics. - : American Academy of Pediatrics (AAP). - 0031-4005 .- 1098-4275. ; 117:6, s. 1988-1995
Tidskriftsartikel (refereegranskat) abstract
OBJECTIVE: To assess neonatologists' attitudes and practices regarding treatment of extremely preterm infants in the delivery room, particularly in response to parental wishes. STUDY DESIGN: Cross-sectional survey of all neonatologists in Sweden registered with the Swedish Pediatric Society. RESULTS: The response rate was 71% (88 of 124 neonatologists). At 24[1/7] to 24[6/7] weeks of gestation, 68% of neonatologists considered treatment clearly beneficial; at 25[1/7] to 25[6/7] weeks of gestation, 93% considered it clearly beneficial. When respondents consider treatment clearly beneficial, 97% reported that they would resuscitate in the delivery room despite parental requests to withhold treatment. At or below 23[0/7] weeks of gestation, 94% of neonatologists considered treatment futile. Nineteen percent reported that they would provide what they consider futile treatment at parental request. When respondents consider treatment to be of uncertain benefit, 99% reported that they would resuscitate when parents request it, 99% reported that they would resuscitate when parents are unsure, and 25% reported that they would follow parental requests to withhold treatment. CONCLUSION: Although neonatologists' attitudes and practices varied, respondents to our survey in general envisioned little parental role in delivery room decision-making for extremely preterm infants.
10.
Anderzén-Carlsson, Agneta, et al.
(författare)
How physicians and nurses handle fear in children with cancer
2007
Ingår i: Journal of Pediatric Nursing. - : Elsevier BV. - 0882-5963 .- 1532-8449. ; 22:1, s. 71-80
Tidskriftsartikel (refereegranskat) abstract
Previous research on fear in children with cancer has often focused on interventions to alleviate fear related to medical procedures and less on how to meet the challenges related to existential fear. This study aimed to describe how experienced nurses and physicians handle fear in children with cancer. Ten nurses and physicians with more than 10 years of experience in child oncology from a university hospital in Sweden were interviewed, and a qualitative content analysis was performed on the data. Nurses' and physicians' handling of fear encompasses commitment and closeness and yet also a distancing from fear and its expressions
