1.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
Patterns of participation in school-related activities and settings in children with spina bifida
2013
Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 35:21, s. 1821-1827
Tidskriftsartikel (refereegranskat) abstract
Purpose: To evaluate how children with spina bifida (SB) participate in school-related activities and to explore if their motor and process skills in task performance were related to their level of active participation in school. Method: Fifty children from a geographical cohort of children with SB (aged 6-14 years) and their teachers rated the children's frequency of participation in school-related activities using a Swedish adaptation of the Availability and Participation Scale. The teachers also rated each child's level of active participation with the School Function Assessment, part one. Each child's motor and process skills were evaluated with the Assessment of Motor and Process Skills. The relation between levels of active participation and motor and process skills was subjected to binary logistic regression analysis. Results: The children participated very frequently in school activities, but their level of active participation was restricted, particularly in the recess/playground setting. There was a highly significant relation between full active participation in most school settings and the children's motor and process skills. Conclusion: Children with SB need support to become more actively involved, particularly in unstructured peer activities. The school staff need to be informed that not only the motor skills but also the process skills have an impact on the children's active participation.
2.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
Are there cross-cultural differences of ADL ability in children measured with the AMPS?
2012
Ingår i: 9th COTEC congress of Occupational Therapy 24-27 May. Stockholm Sweden.
Konferensbidrag (refereegranskat) abstract
Introduction: Studies of self-care assessments for children have shown cultural differences in age-norms. No study has evaluated if there are cross-cultural differences in ADL motor and process skills in children measured with The Assessment of Motor and Process Skills (AMPS). Aim: To investigate if there were systematic differences in ADL ability measured with the AMPS between children from the Nordic countries and North America and to evaluate the applicability of the age norms for children from both regions. Method: Values from a total of 4613 typically developed children, 3-15 years old, were compared with ANOVA. Results: No differences of relevance between children from the two geographical regions were found, and the age-norm values were found to be applicable to both regions. Conclusion: The AMPS may be considered free from cultural bias and useful in clinical practice as well as in research both in a Nordic and a North American context.
3.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
Is autonomy related to the quality of performance of everyday activities in children with spina bifida?
2012
Ingår i: 9th COTC congress of Occupational Therapy 24-27 MAy , Stockholm Sweden.
Konferensbidrag (refereegranskat) abstract
Aim: Investigate the relationship between the autonomy and the quality of performance of everyday activities in children with spina bifida. Methods: 50 dyads of children (aged 6-14) with spina bifida and their parents rated the children’s level of autonomy with a Swedish version of the Autonomy Scale. Each child’s quality of performance was assessed with the Assessment of Motor and Process Skills (AMPS). Results: The autonomy levels of the children with spina bifida were lowest in goal related activities. Logistic regression analyses revealed that age, motor skills and process skills were all significantly related to autonomy but that process skills appeared to predominate in this respect. Little agreement was found between each child’s and his/her parent’s ratings. Conclusions: It is important to understand and support the development of process skills in children with spina bifida and to pay attention to both the parent’s and the child’s opinion about autonomy.
4.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
Relationen mellan autonomi och aktivitetsutförande hos barn ryggmärgsbråck
2012
Ingår i: Abstract bok för konferensen; HAB 2012, "Fånga framtiden- möjligheter för ökad aktivitet och delaktighet. Örebro 17-19 april 2012. ; :13:e forskningskonferensen
Konferensbidrag (refereegranskat) abstract
Relationen mellan autonomi och aktivitetsutförande hos barn ryggmärgsbråck Bakgrund Autonomi, dvs förmågan att vara sin egen aktör i livet, utvecklas gradvis under uppväxten och anses som en viktig personlig förutsättning för delaktighet. Autonomi beskrivs ha två komponenter, dels exekutiv/utförandemässig autonomi och dels beslutsfattande autonomi. Nyare studier har visat att individer som föds med ryggmärgsbråck förutom de tidigare kända motoriska och urologiska konsekvenserna, ofta också har en kognitiv profil där exekutiva svårigheter som att initiera och problemlösa är vanliga. Andra studier har visat att barn och ungdomar med ryggmärgsbråck inte utvecklar autonomi i takt med typiskt utvecklade jämnåriga och att de som vuxna har låg grad av delaktighet i samhällslivet. Få forskningsstudier har sökt samband mellan autonomi/delaktighet och förmågan att initiera och driva igenom aktiviteter hos barn med ryggmärgsbråck. Syfte Syftet var att undersöka graden av autonomi i vardagssituationer hos barn med ryggmärgsbråck och undersöka om det fanns en relation mellan barnets grad av autonomi och hans/hennes färdighet att utföra aktiviteter. Ett andra syfte var att undersöka samstämmigheten mellan barnens och föräldrarnas uppfattning om barnets autonomi. Metod Deltagare i studien var 50 av de 65 barn födda med ryggmärgsbråck 1993-1999 som bodde i Västra Götaland, Halland och Värmland 061231 och deras föräldrar. Autonominivån hos barnet skattades av barnet själv och dess förälder, var för sig, med en anpassad svensk version av ”Autonomiskalan”. Barnens färdighet att utföra aktiviteter bedömdes via observation med instrumentet ”Assessment of Motor and Process Skills” (AMPS) vilket ger två utförandefärdighetsvärden, ett för motorisk färdighet och ett för processfärdighet. Relationen mellan barnets färdighetsvärden och deras autonominivå analyserades med logistisk regression. Graden av samstämmighet mellan barnets och föräldrarnas skattning analyserades med tre olika analysmetoder. Resultat Studien visade att barnen med ryggmärgsbråck hade låg autonomi i vardagssituationer som var målinriktade och krävde egen initiering och att både motoriska och processfärdigheter hade relation till barnets autonominivå, men att processfärdigheterna (dvs. att initiera och driva en aktivitet från start till mål) hade den starkaste relationen. Samstämmigheten mellan det enskilda barnets och hans/hennes förälders skattning var genomgående låg och barnet skattade i vissa fall sin autonomi lägre vad föräldern gjorde. Slutsats: För att kunna ge rätt stöd för förbättrad autonomi och delaktighet är det av yttersta vikt att utvecklingen av utförandefärdigheter, framförallt processfärdigheter, hos barn med ryggmärgsbråck bedöms och beskrivs. Nedsatt förmåga att initiera och ”få något gjort” är sannolikt mer hämmande för barnet än vad de motoriska funktionsnedsättningarna är. Det faktum att barnet med ryggmärgsbråck ofta har en annan uppfattning än sin förälder om sin autonomi pekar på vikten av att uppmärksamma bådas uppfattningar vid habiliteringsplanering.
5.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
To get things done, the challenge in everyday life for children with spina bifida- The effects of the quality of performance on autonomy
2012
Ingår i: 2012 National Spina Bifida Conference, “Australian Masterclass” 19th and 20th October 2012 Sydney, Australia.
Konferensbidrag (refereegranskat) abstract
Introduction: Delays and limitations in autonomy in daily life have been reported in children with spina bifida and problems often persist into adulthood. It has recently been shown that children with spina bifida often have problems in executive functioning, but no description of the specific performance skills that imply strength or weakness of task execution has been available for this group. Nor has any previous study evaluated how the quality of task performance affects autonomy. Aim: To evaluate both the quality of the performance of everyday activities and the autonomy in children with spina bifida and to investigate how the child’s autonomy relates to the quality of task performance. Methods: 50 children, aged 6-14 (of 65 from a population-based cohort in Western Sweden) with spina bifida were assessed with an observational method, the Assessment of Motor and Process Skills. Both the children and their parents rated the children’s level of autonomy with the Autonomy Scale. The relationship between the autonomy and the child’s motor and process skills was analysed. Results: The majority of the children had difficulties performing well-known everyday activities in an efficient and independent way, demonstrated by low rates of both motor and process skills. This deficient quality of task performance, in particular the process skills (i.e to initiate and to solve problems) was strongly related to the child’s level of autonomy in everyday life. The children with spina bifida had low autonomy in goal-directed situations that needed personal initiation. Conclusions: These studies demonstrates that children with spina bifida often have difficulties getting things done and problems being autonomous due to deficient quality of task performance. It is therefore crucial to understand and support the development of the performance skills, especially the process skills, in children with spina bifida in order to enhance their autonomy in everyday life.
6.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
To get things done, the challenge in everyday life for children with spina bifida- The effects of the quality of performance on autonomy
2012
Ingår i: Finding our way. RBU international conference on spina bifida.
Konferensbidrag (refereegranskat) abstract
Introduction: Delays and limitations in autonomy in daily life have often been reported in children and adolescents with spina bifida and studies of long-term outcome have shown that problems seen in childhood often persist into adulthood. Autonomy is about being the causal agent in one’s own life. Taking care of oneself autonomously requires the ability to make decisions and the successful performance of what one have decided to do. Autonomy in everyday life activities in children and adolescents with spina bifida has been studied in relation to muscle strength and ambulation deficiencies, the severity and type of spina bifida and parental intrusiveness. Despite the knowledge that children with spina bifida often have a cognitive phenotype with problems in executive functioning, no description of the specific performance skills that imply strength or weakness of performance, i.e. description of the quality of the performance, has been available for this group. Nor has any previous study evaluated how the quality of the performance of everyday activities affects autonomy. Aim: To evaluate the quality of the performance of everyday activities and the perception of autonomy in children with spina bifida and to investigate the how the child’s autonomy relates to the quality of the performance skills. Methods: 50 children, aged 6-14 (of the 65 in a population-based cohort) with spina bifida were assessed with a direct observational method, the Assessment of Motor and Process Skills (AMPS) in order to evaluate the child’s quality of performance. Both the children and their parents rated the children’s level of autonomy with a Swedish version of the Autonomy Scale. The relationship between the autonomy levels and the child’s age, motor and process ability measures from the AMPS assessment was analysed with binary logistic regression. In addition the agreement between the children’s and the parents’ ratings of autonomy was analysed. Results: The majority of the children had difficulties performing well-known everyday activities in an effortless, efficient, safe and independent way, demonstrated by low rates of performance skills, (i.e. motor- and process ability measures.) This deficient quality of task performance, in particular the process skills, was strongly related to the child’s level of autonomy in everyday life. The children with spina bifida had low autonomy levels in goal-directed situations that needed personal initiation. The agreement between the parents’ and the children’s ratings of the children’s autonomy level was low. Conclusions: These studies demonstrates that children with spina bifida often have difficulties getting things done and problems being autonomous due to deficient quality of task performance. It is therefore crucial for to assess, understand and support the development of the performance skills, especially the process skills, in children with spina bifida in order to enhance their autonomy in everyday life.
7.
Ander, Ann, et al.
(författare)
Äta och dricka , mer än att tugga och svälja
2000
Bok (övrigt vetenskapligt/konstnärligt) abstract
Boken beskrivar en av livets viktigaste aktiviteter -ATT KUNNA ÄTA OCH DRICKA. Boken vill inspirera alla som möter personer som har svårt att äta och dricka. Den vänder sig anhöriga, vårdpersonal, dietister och habiliterings-/rehabiliteringspersonal.
8.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
Quality of performance of everyday activities in children with spina bifida: a population-based study.
2009
Ingår i: Acta paediatrica (Oslo, Norway : 1992). - : Wiley. - 1651-2227 .- 0803-5253. ; 98:10, s. 1674-1679
Tidskriftsartikel (refereegranskat) abstract
Aim: The aim of this study was to evaluate the quality of the performance of everyday activities in children with spina bifida. Methods: Fifty children with spina bifida (of 65 children in a geographic cohort), aged 6 to 14 years, were evaluated with Assessment of Motor and Process Skills. Results: Compared with age-normative values, 60% of the children with spina bifida were found to have motor ability measures below 2 SD and 48% process ability measures below 2 SD. Most of the children with spina bifida had difficulties performing well-known everyday activities in an effortless, efficient and independent way, relating to both motor and process skills. The motor skills hardest to accomplish involved motor planning and the process skills hardest to accomplish were adaptation of performance and initiations of new steps, thus actually getting the task done. Conclusion: To reach autonomy in life, children with spina bifida may need particular guidance to learn not only how to do things but also how to get things done.
9.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
Are there cross-cultural differences of ADL ability in children measured with the Assessment of Motor and Process Skills (AMPS)?
2012
Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa UK Limited. - 1103-8128 .- 1651-2014. ; 19:1, s. 26-32
Tidskriftsartikel (refereegranskat) abstract
Abstract: Introduction: In many studies of self-care assessments for children, cultural differences in age-norm values have been shown. No study has evaluated whether there are cross-cultural differences in ADL motor and/or process skills in children when measured with the Assessment of Motor and Process Skills (AMPS). Aim: To investigate if there were systematic differences in ADL ability measured with the AMPS between children from the Nordic countries and North America and to evaluate the applicability of the existing international age-normative values for children from these two regions. Methods: Values from a total of 4 613 children, 3-15 years old, without known disabilities, from these geographical regions were compared with ANOVA. The difference in logits between each region and the mean values for each age group were calculated. Results: No differences of relevance in age-related ADL ability measures between children from the two geographical regions were found, and the age-norm values are applicable to both regions. Implications: The AMPS may be considered free from cultural bias and useful in both clinical practice and research concerned with children in both the Nordic countries and North America.
10.
Peny-Dahlstrand, Marie, 1953, et al.
(författare)
Is autonomy related to the quality of performance of everyday activities in children with spina bifida?
2012
Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 34:6, s. 514-21
Tidskriftsartikel (refereegranskat) abstract
Purpose: To investigate the relationship between the level of autonomy and the quality of performance of everyday activities in a population-based cohort of children with spina bifida and to study the agreement between the children's and the parents' ratings of autonomy. Methods: 50 dyads of children (aged 6-14) with spina bifida and their parents rated the children's level of autonomy with an adapted, Swedish version of the Autonomy Scale from the Arc's Self-Determination Scale. Each child's quality of performance of everyday activities was assessed with the Assessment of Motor and Process Skills (AMPS). Results: The autonomy levels of the children with spina bifida were rated to be lowest in daily routines and highest in leisure activities. Binary logistic regression analyses revealed that age, motor skills and process skills were all significantly related to the autonomy level, but that process skills appeared to predominate in this respect. Concerning the perception of the autonomy level, little agreement was found between each child and his/her parent. Conclusions: It is important to understand and support the development of process skills as expressed in task performance in children with spina bifida and to pay attention to both the parent's and the child's opinion when setting goals and plans for interventions. [Box: see text].
