Sök i SwePub databas

  Utökad sökning

Träfflista för sökning "AMNE:(MEDICIN OCH HÄLSOVETENSKAP) AMNE:(Hälsovetenskaper) AMNE:(Medicinsk etik) "

Sökning: AMNE:(MEDICIN OCH HÄLSOVETENSKAP) AMNE:(Hälsovetenskaper) AMNE:(Medicinsk etik)

Sortera/gruppera träfflistan
  • Silén, Marit, et al. (författare)
  • Nurses' conceptions of decision making concerning life-sustaining treatment
  • 2008
  • Ingår i: Nursing Ethics. - London : Edward Arnold. - 0969-7330 .- 1477-0989. ; 15:2, s. 160-173
  • Tidskriftsartikel (refereegranskat)abstract
    • The aim of this study was to describe nurses' conceptions of decision making with regard to life-sustaining treatment for dialysis patients. Semistructured interviews were conducted with 13 nurses caring for such patients at three hospitals. The interview material was subjected to qualitative content analysis. The nurses saw decision making as being characterized by uncertainty and by lack of communication and collaboration among all concerned. They described different ways of handling decision making, as well as insufficiency of physician-nurse collaboration, lack of confidence in physicians, hindrances to patient participation, and ambivalence about the role of patients' next of kin. Future research should test models for facilitating communication and decision making so that decisions will emerge from collaboration of all concerned. Nurses' role in decision making also needs to be discussed.
  • Parental responsibility in the context of neuroscience and genetics
  • 2017
  • Samlingsverk (redaktörskap) (refereegranskat)abstract
    • Should parents aim to make their children as normal as possible to increase their chances to "fit in"? Are neurological and mental health conditions a part of children's identity and if so, should parents aim to remove or treat these? Should they aim to instill self-control in their children? Should prospective parents take steps to insure that, of all the children they could have, they choose the ones with the best likely start in life?This volume explores all of these questions and more. Against the background of recent findings and expected advances in neuroscience and genetics, the extent and limits of parental responsibility are increasingly unclear. Awareness of the effects of parental choices on children's wellbeing, as well as evolving norms about the moral status of children, have further increased expectations from (prospective) parents to take up and act on their changing responsibilities. The contributors discuss conceptual issues such as the meaning and sources of moral responsibility, normality, treatment, and identity. They also explore more practical issues such as how responsibility for children is practiced in Yoruba culture in Nigeria or how parents and health professionals in Belgium perceive the dilemmas generated by prenatal diagnosis.
  • Cutas, Daniela, et al. (författare)
  • Infertility, ethics, and the future: an exploration
  • 2017
  • Ingår i: The Palgrave handbook of infertility in history: approaches, contexts and perspectives. - London : Palgrave Macmillan. - 9781137520807 - 9781137520791 ; , s. 609-624
  • Bokkapitel (refereegranskat)abstract
    • This chapter explores current and prospective reproductive technologies and some of their likely implications for reproductive and family ethics and policymaking. The technologies discussed include uterus transplants, mitochondrial transfer, ectogenesis, the development of in vitro gametes, and solo reproduction. The chapter considers the impact of these developments on the content of concepts such as 'infertility', 'mother', or 'father'. Another layer to this process of redefinition originates in ongoing socio-cultural changes that shift the focus in parenting from the way in which children have come into the world, to relationships within the family. Considering these scenarios beforehand can help to clarify some of the current challenges in defining and regulating infertility. The chapter therefore aims to raise a number of questions rather than provide answers.
  • Niemiec, Emilia, et al. (författare)
  • Germline Genome Editing Research : What Are Gamete Donors (Not) Informed about in Consent Forms?
  • Ingår i: CRISPR Journal. - : Mary Ann Liebert, Inc.. - 2573-1599 .- 2573-1602. ; 3:1, s. 52-63
  • Tidskriftsartikel (refereegranskat)abstract
    • The potential for using germline genome editing (GGE) in humans has garnered a lot of attention, both for its scientific possibilities as well as for the ethical, legal, and social challenges it ignites. The ethical debate has focused primarily on the suggestions of using GGE to establish a pregnancy (i.e., to offer it in a clinical setting), which is, to date, illegal in many jurisdictions. The use of GGE in research (where a pregnancy would not be established) has received much less attention, despite the fact that it raises serious ethical and social issues as well. Herein, we report on the analysis of informed consent forms for egg and sperm donation used in a widely publicized study where genome editing was used to correct a disease-causing genetic mutation in human embryos. Importantly, embryos were created using eggs and sperm obtained specifically for these experiments. The analysis indicates deficiencies in how the forms addressed various issues, including limited and potentially misleading information about the sensitive nature of the study, the lack of an explicit mention of genomic sequencing, as well as the poor readability of the forms. Furthermore, the arguably high compensation of U.S.$5,000 for egg donors raises questions about undue inducement to participate in research. Moreover, since the procurement of eggs involves serious health risks, it may be questioned whether research requiring such a procedure should be pursued. If such experiments are continued, donors should be informed about all relevant aspects in order to make informed decisions about participating.
  • Riggare, Sara, et al. (författare)
  • “You have to know why you're doing this” : a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease
  • 2019
  • Ingår i: Spetspatienter. ; 19:1
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: This study explores opinions and experiences of people with Parkinson's disease (PwP) in Sweden of using self-tracking. Parkinson's disease (PD) is a neurodegenerative condition entailing varied and changing symptoms and side effects that can be a challenge to manage optimally. Patients' self-tracking has demonstrated potential in other diseases, but we know little about PD self-tracking. The aim of this study was therefore to explore the opinions and experiences of PwP in Sweden of using self-tracking for PD.Method: A mixed methods approach was used, combining qualitative data from seven interviews with quantitative data from a survey to formulate a model for self-tracking in PD. In total 280 PwP responded to the survey, 64% (n = 180) of which had experience from self-tracking.Result: We propose a model for self-tracking in PD which share distinctive characteristics with the Plan-Do-Study-Act (PDSA) cycle for healthcare improvement. PwP think that tracking takes a lot of work and the right individual balance between burdens and benefits needs to be found. Some strategies have here been identified; to focus on positive aspects rather than negative, to find better solutions for their selfcare, and to increase the benefits through improved tools and increased use of self-tracking results in the dialogue with healthcare.Conclusion: The main identified benefits are that self-tracking gives PwP a deeper understanding of their own specific manifestations of PD and contributes to a more effective decision making regarding their own selfcare. The process of self-tracking also enables PwP to be more active in communicating with healthcare. Tracking takes a lot of work and there is a need to find the right balance between burdens and benefits.
  • Stahl, Bernd Carsten, et al. (författare)
  • Beyond Research Ethics: Dialogues in Neuro-ICT Research
  • 2019
  • Ingår i: Human Brain Project. - : Frontiers Media S.A.. ; 13
  • Forskningsöversikt (refereegranskat)abstract
    • The increasing use of information and communication technologies (ICTs) to help facilitate neuroscience adds a new level of complexity to the question of how ethical issues of such research can be identified and addressed. Current research ethics practice, based on ethics reviews by institutional review boards (IRB) and underpinned by ethical principlism, has been widely criticized. In this article, we develop an alternative way of approaching ethics in neuro-ICT research, based on discourse ethics, which implements Responsible Research and Innovation (RRI) through dialogues. We draw on our work in Ethics Support, using the Human Brain Project (HBP) as empirical evidence of the viability of this approach.
  • Cutas, Daniela, et al. (författare)
  • ‘Duped Fathers’, ‘Cuckoo Children’, and the Problem of Basing Fatherhood on Biology: A Philosophical Analysis
  • 2020
  • Ingår i: Assistierte Reproduktion mit Hilfe Dritter : Medizin - Ethik - Psychologie - Recht - Medizin - Ethik - Psychologie - Recht. - Berlin, Heidelberg : Springer. - 9783662602973 - 9783662602980 ; , s. 171-182
  • Bokkapitel (refereegranskat)abstract
    • Who is a child’s father? Is it the man who raised her, or the one whose genes she carries—or both? WIn this chapter, we look at the view that men who have raised children they falsely believed to be ‘their own’ have been victims of a form of fraud or are ‘false fathers’. We consider the question of who has been harmed in such cases, and in what the harm consists. We use conceptual analysis, a philosophical method of investigating the use of a concept and the logical implications of its various interpretations. We devise and discuss a number of possible scenarios in which a couple (arguably) become the parents of a child. We use these scenarios to illustrate the tenuousness of the claim that we can simply rely on biology to clarify parent-child relationships. We also discuss some of the underpinnings and implications of the language in which the debate on ‘paternity fraud’ has been framed: ‘duped’ or ‘false’ fathers and ‘cuckoo children’.
  • Cutas, Daniela, et al. (författare)
  • "I am your mother and your father!" : in vitro derived gametes and the ethics of solo reproduction
  • 2017
  • Ingår i: Close Personal Relationships, Children and the Family: Ethical and Political Analysis against a Changing Background. - : Springer. ; 25:4, s. 354-369
  • Tidskriftsartikel (refereegranskat)abstract
    • In this paper, we will discuss the prospect of human reproduction achieved with gametes originating from only one person. According to statements by a minority of scientists working on the generation of gametes in vitro, it may become possible to create eggs from men’s non-reproductive cells and sperm from women’s. This would enable, at least in principle, the creation of an embryo from cells obtained from only one individual: ‘solo reproduction’. We will consider what might motivate people to reproduce in this way, and the implications that solo reproduction might have for ethics and policy. We suggest that such an innovation is unlikely to revolutionise reproduction and parenting. Indeed, in some respects it is less revolutionary than in vitro fertilisation as a whole. Furthermore, we show that solo reproduction with in vitro created gametes is not necessarily any more ethically problematic than gamete donation - and probably less so. Where appropriate, we draw parallels with the debate surrounding reproductive cloning. We note that solo reproduction may serve to perpetuate reductive geneticised accounts of reproduction, and that this may indeed be ethically questionable. However, in this it is not unique among other technologies of assisted reproduction, many of which focus on genetic transmission. It is for this reason that a ban on solo reproduction might be inconsistent with continuing to permit other kinds of reproduction that also bear the potential to strengthen attachment to a geneticised account of reproduction. Our claim is that there are at least as good reasons to pursue research towards enabling solo reproduction, and eventually to introduce solo reproduction as an option for fertility treatment, as there are to do so for other infertility related purposes.
Skapa referenser, mejla, bekava och länka
Typ av publikation
tidskriftsartikel (455)
bokkapitel (106)
konferensbidrag (49)
doktorsavhandling (25)
samlingsverk (redaktörskap) (19)
forskningsöversikt (19)
visa fler...
rapport (17)
annan publikation (13)
bok (11)
recension (5)
proceedings (redaktörskap) (1)
visa färre...
Typ av innehåll
refereegranskat (461)
övrigt vetenskapligt (199)
populärvet., debatt m.m. (60)
Sahlin, Nils-Eric (84)
Hermerén, Göran (58)
Johansson, Mats (50)
Broström, Linus (31)
Nilstun, Tore (30)
Howard, Heidi Carmen (27)
visa fler...
Munthe, Christian, 1 ... (25)
Cutas, Daniela (24)
Malmqvist, Erik, 198 ... (24)
Borry, Pascal (20)
Persson, Johannes (19)
Farisco, Michele (18)
Juth, Niklas (16)
Helgesson, Gert (15)
Sandman, Lars (15)
Howard, Heidi C (15)
Hansson, Mats G. (14)
Lynöe, Niels (13)
Hug, Kristina (13)
Bremer, Anders, 1957 ... (12)
Godskesen, Tove (12)
Eriksson, Stefan (11)
Engström, Ingemar, 1 ... (11)
Mascalzoni, Deborah, ... (11)
Ågård, Anders (11)
Lynoe, N (10)
Cornel, Martina C. (10)
van El, Carla G. (9)
Helgesson, G (9)
Evers, Kathinka (9)
Lundqvist, Anita (8)
Petrini, Carlo (8)
Smajdor, Anna (8)
Godskesen, Tove E. (8)
Löfmark, Rurik (7)
Lundin, Susanne (7)
Zeiler, Kristin (7)
Höglund, Anna T. (7)
Sandman, Lars, 1965- (7)
Svantesson, Mia, 196 ... (7)
Borry, P. (7)
Kihlbom, Ulrik (6)
Vareman, Niklas (6)
Asplund, Kjell (6)
Wahlberg, Lena (6)
Juth, N (6)
Engström, Ingemar (6)
De Wert, Guido (6)
Kjellin, L (6)
Forzano, Francesca (6)
visa färre...
Lunds universitet (280)
Uppsala universitet (164)
Linköpings universitet (85)
Umeå universitet (60)
Göteborgs universitet (47)
Örebro universitet (37)
visa fler...
Karolinska Institutet (28)
Linnéuniversitetet (24)
Ersta Sköndal Bräcke högskola (23)
Södertörns högskola (20)
Högskolan i Borås (14)
Stockholms universitet (13)
Kungliga Tekniska Högskolan (10)
Jönköping University (7)
Högskolan i Halmstad (5)
Röda Korsets Högskola (5)
Mälardalens högskola (4)
Högskolan i Gävle (4)
Karlstads universitet (4)
Högskolan i Skövde (3)
Luleå tekniska universitet (2)
Högskolan Kristianstad (1)
Malmö universitet (1)
Mittuniversitetet (1)
Chalmers tekniska högskola (1)
Blekinge Tekniska Högskola (1)
Högskolan Dalarna (1)
Sveriges Lantbruksuniversitet (1)
visa färre...
Engelska (510)
Svenska (200)
Rumänska (5)
Spanska (2)
Tyska (1)
Franska (1)
visa fler...
Italienska (1)
visa färre...
Forskningsämne (UKÄ/SCB)
Medicin och hälsovetenskap (717)
Humaniora (169)
Samhällsvetenskap (65)
Naturvetenskap (12)
Teknik (11)
Lantbruksvetenskap (1)


pil uppåt Stäng

Kopiera och spara länken för att återkomma till aktuell vy