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- Dalheim-Englund, Ann-Charlotte
(författare)
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Skydda och frigöra : en studie av föräldrar till barn med astma och av professionella vårdare
- 2005
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Aim: The overall aim of this thesis is, from the point of view of parents of a child with asthma, to describe meanings of being a parent, parents’ quality of life, and to describe how family relations are influenced by their child’s disease. The aim is also to increase the understanding of what strategies professional caregivers use in their work with teenagers suffering from asthma. Methods: Informants in the three qualitative studies were 29 parents (17 mothers and 12 fathers) of children with asthma and 7 professional caregivers. Informants in a quantitative quality of life study were 371 parents. The data collections were undertaken by means of interviews, observations and a questionnaire. The data was analysed by means of a phenomenological-hermeneutic method, grounded theory and statistics. Results: A meaning of being a parent of a child with asthma is to live a strenuous life and to fear that the child might die during a severe asthma attack. The parents’ actions involve both protecting and liberating and their feelings involve sadness as well as acceptance. Mostly the mothers act in a protecting manner and express feelings of sadness. The fathers mostly act in a liberating manner and express feelings of acceptance. The core concern in families of a child with asthma was found to be disease-engendered uncertainty. The mothers describe that feelings of uncertainty always are present owing to the unpredictability of the disease. These feelings make the mothers more or less available for family members. For the child with asthma the mothers’ experience that they are always available. Thus, control and tight bonds characterize the mother-child relationships. The mothers’ constant availability for the child with asthma is experienced to lead to a decreased availability for other family members and theses relationships are characterised by feelings of forsakenness and lack of understanding. However, when parents of children with asthma estimate their quality of life by a questionnaire, they estimate it as comparatively high. In the same family the parents scoring of separate items was to a large extent similar. The result also shows that professional caregivers’ central concern is to assist teenagers with asthma to conquer life. This gives rise to five strategies: showing respect, being at hand, promoting personal sense of responsibility, promoting exceeding boundaries, and promoting reflections. In professional caregivers’ attempt to assist teenagers to conquer life some differences are seen in the way they support boys and girls. Conclusion: One conclusion drawn from this thesis is that being a parent of a child with asthma involves feelings of uncertainty. In meeting the parents in question, caregivers should reflect upon these feelings and consider how the parents could be assisted. As mothers and fathers describe different attitudes in relation to the care of the child, it is also important to reflect upon how professional caregivers can assist the balance between the mothers’ protecting and the fathers’ liberating attitudes. It is also important for professional caregivers to reflect upon how they meet teenage girls and boys with asthma respectively, and to take their needs and understanding of the situation into consideration.
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| 2. |
- Doohan, Isabelle, 1985-
(författare)
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Surviving a major bus crash : experiences from the crash and five years after
- 2017
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Background Major road traffic crashes (RTCs) can have a significant impact on the survivors, their family, and their friends, as well as on emergency personnel, volunteers, and others involved. However, survivors’ perspectives are rare or missing in research on major RTCs in Sweden. A comprehensive understanding of the survivors and their experiences is also lacking. By studying what it is like to survive a major RTC, the care and support provided to survivors can be adapted and improved.The overall aim is to broaden the understanding of the short- and long-term consequences and experiences of surviving a major bus crash.Methods The contexts are two bus crashes that occurred in Sweden, in February 2007 and December 2014. In total, the participants are 110 out of the 112 survivors, and the data is collected through telephone interviews, official reports, and medical records at one month, three months, and five years after the crashes. Analysis methods include qualitative content analysis, descriptive statistics, thematic analysis, and mixed methods research analysis.Results One month after the crash, most of the survivors were experiencing minor or major physical and/or psychological stress in their everyday lives (Study I). Four main findings were identified regarding their experiences of immediate care (Study II): prehospital discomfort, lack of compassionate care, dissatisfaction with crisis support, and satisfactory initial care and support. The importance of compassion and being close to others was also highlighted. Five years after the bus crash in Rasbo (Study III), survivors were still struggling with physical injuries and mental problems. Other long-term consequences were a lasting sense of connectedness among fellow passengers, a gratitude for life, as well as feelings of distress in traffic, especially in regard to buses. The main findings from study IV indicated that injury severity did not seem to affect mental health, and that social aspects were important to the recovery process. There was an interconnection among survivors in which they seemed to be linked to each other’s recovery.Conclusion A strong need for short- and long-term social and psychological support in terms of compassion and community is evident in all the studies. The survivors ought to be acknowledged as capable and having the resources to contribute to their own and their fellow survivors’ recovery and health. There is a need for greater understanding of how different the survivors are, with each one of them having various physical, psychological, social, and existential needs.
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| 3. |
- Forsberg, Rebecca, 1976-
(författare)
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Train crashes : consequences for passengers
- 2012
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Background: Globally, and in Sweden, passenger railway transport is steadily increasing. Sweden has been relatively free from severe train crashes in the last decades, but the railway infrastructure is alarmingly worn and overburdened, which may be one reason for an increasing number of reported mishaps. Worldwide, major train crashes/disasters are a frequent cause of mass casualty incidents. Several shortcomings, especially within the crash and post-crash phases cause severe consequences for the passengers.Aim: To investigate the consequences of train crashes on passengers, focusing on factors of importance in the crash and post-crash phases. The specific aims are: (I) to identify the historical development and magnitude of passenger train disasters globally on various continents and countries, (II, III) to identify injury panorama and injury objects in two train crashes, (IV) to explore survivor´s experiences from a train crash, and (V) to explore their experiences of journalists and media coverage.Methods: Study I is a register study based on 529 railway disasters worldwide, whereas studies II-V are case studies from the two latest severe train crashes in Sweden (Nosaby and Kimstad). These studies are based on 73 and 21 passengers respectively. Studies I-III is essentially quantitative where descriptive statistics (I, III), multivariate analysis (III), and content analysis (II, III) are used. Studies II and III are also supplemented by semi-structured interviews. Studies IV and V are qualitative and the interviews (n=14, n=30) have been analyzed with qualitative content analysis. Study IV is also supplemented with quantitative data.Results: The number of railway disasters, fatalities, and non-fatally injured passengers has increased throughout the last hundred years - particularly during the last four decades (1970–2009) when 88% of all disasters occurred (I). Passengers in the first overturned carriage suffered most severe and lethal injuries (III). Internal structures such as tables, chairs, internal walls, as well as luggage, other passengers (II, III), glass (II), and wood pellets (III) induced many of the injuries. Those who traveled facing forward with a table in front of them, in carriages that did not overturn, were more likely to sustain injuries to their abdomen/pelvis than those without a table (III). Passengers who traveled rear facing had higher rates of whiplash injuries. Surviving a train crash was experienced as "living in a mode of existential threat". The long term consequences however were diverse for different persons (IV). All experienced that they had cheated death, but some became "shackled by history", whereas others overcame the "haunting of unforgettable memories." The centrality of others and the importance of reconstructing the turn of events were important when "dealing with the unthinkable". The media coverage were experienced as positive in the recovery process and the journalists were also perceived as helpful (V). By some the journalist’s nevertheless were also perceived as harmful or negligible, and the subsequent media coverage as either uncomfortable or insignificant.Conclusion: Despite extensive crash avoidance systems severe railway crashes still occur. Improved interior safety, as has been implemented in the automobile and aviation industries, would have an important reduction in injuries and facilitate evacuation. Being surrounded by family, friends, fellow passengers and participating in crash investigations, and experiencing descriptive media coverage were some crucial factors when dealing with the traumatic event and should be promoted.
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| 4. |
- Gyllencreutz, Lina, 1979-
(författare)
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To prevent without over-protecting : children and senior citizens injured during outdoor activities
- 2015
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Background: Injuries are a common public health problem. Non-fatal injuries may result in pain and disabilities. Falls are a common causes of non-fatal injuries and many of these injuries occur during some physical activity. Children and senior citizens are two groups of special interest as their body constitution makes them more vulnerable to injuries than the general population. Outdoor environments influence the risk of injury as people are generally physically active when outdoor. Despite a higher risk for injury, physical activity is a common recommendation for a healthy lifestyle. Children and senior citizens should be able to safely participate in outdoor activities and gain health benefits. There is a need to highlight the complexity of balancing injury risk and the healthy benefits of outdoor activities among these two groups.Aim: The overall aim of this thesis was to investigate injuries among children and senior citizens sustained during outdoor activities and explore experiences and perceptions on risk and possibilities to increase safety in the outdoor environment.Methods: The studies were performed in northern Sweden. Theparticipants were children through the age of 12 (Studies I & II) and senior citizens aged 65 and older (Studies III & IV). In Studies I and III, a crosssectional retrospective study design was used. The data were collected from an Injury Data Base (IDB) at a hospital with a catchment area of 60 kilometres in a well-defined population. Data in Study III was complemented with a study-specific questionnaire. Injury data were analysed descriptively. Study II was a field-study that included 14 days of observations, six focus-group interviews with children, and four focus-group interviews with teachers. The three data sources were taken together and analysed using qualitative content analysis. Study IV was a focus-group interview study with 31 senior citizens divided into six focus-groups. Data in Study IV was analysed with qualitative content analysis.Results: In Study I, 795 children attended the emergency department from 2007 through 2009 and were registered in the IDB with non-minor injuries, such as fractures. The most commonly reported activities contributing to injuries were play, sport, and transport. Other factors contributing to the incident were often related to the ground surface. Contributing products were, for example, trampolines, climbing frames, bicycles, and downhill skis. In the field study (Study II), children at schoolyards were seen climbing high in trees, speeding down slides, or fighting with sticks in the woods. Different perspectives on risk and safety influenced or restricted the children’s outdoor play activities. In Study III, 300 senior citizens were registered in the IDB after injuries from pedestrian falls from January 2009 through April 2011. Women were overrepresented. Sixty percent suffered non-minor injuries. Fracture was the most common injury type. Environmental factors, especially ice, snow, and irregularities on the ground surface were the most commonly described causes to the injury incidents. As the incidents happened in public transport areas, the respondents indicated that they hold the local authorities responsible for poor sidewalk and road maintenance. However, they admitted their own responsibility in preventing similar incidents by changing their behaviour and using safety products. The senior citizens in the focus-group interview study (Study IV) described how they needed to adjust to age-related changes when outdoors, for example, by taking responsibility and using common sense. Facilitating possibilities for outdoor mobility increased with the feelings of safety within the outdoor environment and when using safety devices. To the contrary, fear of falling, shortcomings of safety devices, and dangerous elements such as ice, snow, and interactions with bicyclists constrained outdoor mobility.Conclusion: Non-minor injuries such as fractures among children and senior citizens that are sustained during outdoor activities must be a focus of injury prevention. Different perspectives on risk and safety influence children’s outdoor play at the schoolyard and senior citizens’ outdoor mobility. There is a need for balance between teachers’ common sense knowledge and the knowledge base of injury prevention. In the same manner, there is a need for balance between healthy activities and an acceptable injury risk for participating in outdoor activities. Nurses are well suited to work with this complexity and to optimize these efforts both at schools and in other public settings.
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| 5. |
- Sandvide, Åsa
(författare)
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Våld i särskilda boenden för äldre : språk och sociala interaktioner
- 2008
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The present thesis aims to study the relationship between the violence that occurs in institutional care for older people and the language employed when this violence and the involved parties are talked and narrated. The thesis has been guided by social constructionism, and violence, victims and perpetrators have been considered as social phenomena constructed in discursive processes. Narrative interviews were conducted with 57 care providers who had been involved in social interactions in which violence occurred. The thesis comprises four studies. Study I is a qualitative description of the interactions. In study II, narrative analysis and positioning theory were used to explore the involved parties’ positions. Discourse analysis was employed to investigate discursively created identities (Study III), discursive constructions and how problems related to violence are framed (Study IV). When the care providers described the interactions, they talked about mutual misunderstandings, mutual invasions of personal space and an acceptance of violence in their work. It seemed more reasonable to consider the involved parties as both victims and perpetrators as opposed to one party being exposed and the other perpetrating the violence (I). When the positions of victim and perpetrator were questioned in one care provider’s narrative, they appeared to alter from perpetrator to victim to protector throughout the account by use of available discourses. The way of narrating, taking up or resisting the positions offered by the available discourses made it possible to create a preferred identity (II). These discursively created identities can be viewed as a way of defining an undesirable situation, thereby legitimizing the actions taken. The various identities led to consequences and effects such as loss of autonomy, the use of force, humiliation and exclusion. The construction of identities was connected to various beliefs about older persons (III). Beliefs define what actions are possible and legitimate in a certain context as well as forming the basis for the articulation of problems, thus studying such expressions made it possible to explore beliefs. The articulated problems were viewed as a way to create boundaries, indicating certain possible and relevant solutions. When the care providers talked about the interactions, they presented them as being due to a difficult and unavoidable problem related to the illness, caring for the body, competence and profession as well as social order (IV). The discursive struggle, competence, power, powerlessness, resistance, identity constructions, justification and quality of care are reflected upon and discussed. The analysis of the care providers’ narratives has made it possible to disclose how discourses concur and compete in order to give meaning to concrete social interactions involving violence. It has also been possible to show how to describe, understand and resist as well as to legitimize and justify the actions performed in relation to such interactions. The narratives opened up possibilities to study practices that are talked about as natural. The things that the care providers narrated about have been regarded as manifestations of discourses. Discourses produce certain versions of the interactions, victims and perpetrators, but it must be borne in mind that these are just a few among many possible versions, which are constantly changing.
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