| 1. |
- Avelin, Pernilla, et al.
(författare)
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Adolescents' experiences of having a stillborn half-sibling
- 2013
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Ingår i: Death Studies. - : Routledge. - 0748-1187 .- 1091-7683. ; 38:9, s. 557-562
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Tidskriftsartikel (refereegranskat)abstract
- Although there is an increasing interest in siblings' experiences of loss and grief there is limited knowledge of adolescent's own perspectives, especially in a unique situation as after stillbirth in a reconstituted family. The authors interviewed 13 bereaved adolescents. They were sad that their family was not the same and expressed feelings of being inside family grief, yet outside, because they did not have full access in their reconstituted family. An implication of present findings is that it is important to include all the members of the family in the grieving process, even half-siblings of the deceased child.
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| 2. |
- Carlsson, Nina, et al.
(författare)
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Losing a close person following death by sudden cardiac arrest : bereaved family members’ lived experiences
- 2022
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Ingår i: Death Studies. - : Taylor & Francis. - 0748-1187 .- 1091-7683. ; 46:5, s. 1139-1148
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Tidskriftsartikel (refereegranskat)abstract
- The death of a close person has profound impact on people’s lives, and when death is sud- den there are no possibilities to prepare for the loss. The study aimed to illuminate mean- ings of losing a close person following sudden cardiac arrest. A qualitative interpretive design was used, and twelve bereaved family members were interviewed. The results show a transition from pending between life and sudden loss during resuscitation and proceeding with life after the sudden loss. These results of being in liminality illuminate the family members’ essential narration and the importance of compassionate care throughout this challenging transition.
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| 3. |
- Eilegård Wallin, Alexandra, 1975-, et al.
(författare)
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Cancer-bereaved siblings’ advice to peers : A nationwide follow-up survey
- 2020
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 44:9, s. 561-568
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this nationwide survey was to explore, based on an open-ended question, cancer-bereaved siblings’ advice to peers with a brother or sister with cancer. Half of the advice related to being with the ill sibling and cherishing the time together. Other advice related to the value of communicating about the situation, letting go of guilt, and living life as usual. The results highlight the importance of health care professionals, family, and others facilitating for siblings to spend time together and communicate openly.
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| 4. |
- Eklund, Rakel, et al.
(författare)
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Children’s experiences of the family talk intervention when a parent is cared for in palliative home care : A feasibility study
- 2022
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 46:7, s. 1655-1666
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Tidskriftsartikel (refereegranskat)abstract
- The aim with this study was to explore minor children’s experiences of the Family Talk Intervention (FTI) when a parent is cared for in palliative home care, with a focus on feasibility. The main goal of FTI is to increase family communication about the illness. This paper is based on 25 children’s reports, derived from a pilot study with a mixed method design, involving both questionnaires and interviews, performed after the children’s participation. A majority of the children appreciated the structure and content of FTI. They felt seen, heard and acknowledged by the interventionists and recommended FTI to other children in similar situations.
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| 5. |
- Eklund, Rakel, 1986-, et al.
(författare)
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Talking about death when a parent with dependent children dies of cancer : A pilot study of the Family Talk Intervention in palliative care
- 2022
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 46:10, s. 2384-2394
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Tidskriftsartikel (refereegranskat)abstract
- This study focused on families with dependent children who participated in the Family Talk Intervention (FTI) and lost a parent during the intervention or directly thereafter. The aim was to explore how they perceived information and communication about the imminent death during the illness trajectory and after the loss. Seven families from palliative homecare settings in Sweden participated. This study suggests that it is important to support family communication when a parent is dying, since communication in this situation is unlike everyday family communication, as they enter a complex and existentially unfamiliar area, hard to initiate on their own.
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| 6. |
- Glasdam, Stinne, et al.
(författare)
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Unity strengthens and inhibits development: A focus group interview with volunteer adults in support programs for bereaved children and their family
- 2023
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 47:9, s. 1061-1071
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Tidskriftsartikel (refereegranskat)abstract
- This article illuminates (inter)actions and group dynamics of adult volunteers in programs for bereaved children and parents. A focus group interview with seven volunteers in Swedish was conducted. A latent, thematic analysis was conducted, inspired by Braun and Clarke, and Goffman. Two themes were constructed: Personal despair as a motivation for establishing and consolidating voluntary involvement and The volunteers acted as an extended family. Group dynamics within the group contributed to uphold volunteers’ adherence to formal and informal guidance related to the program. Strong engagement among volunteers and internal recruitment strategies contributed to uphold and consolidate the program’s implementation.
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| 7. |
- Holm, Maja, 1982-, et al.
(författare)
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How parents of dependent children reason about their partner's impending death due to cancer
- 2021
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683.
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Tidskriftsartikel (refereegranskat)abstract
- This paper explores how bereaved parents with dependent children reasoned about their partner's impending death due to cancer. Questionnaires were used to collect data from 42 cancer-bereaved parents of dependent children in Sweden. The results showed that most of the parents had thought, at least once, that death would be best for their partner's own sake. A few parents had also thought that it would be best for everyone if their partner died. Many parents had a wish to keep up hope, no matter what. However, living with a partner with advanced illness and dependent children was described as extremely stressful.
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| 8. |
- Holm, Maja, et al.
(författare)
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Sources of social support and its importance for cancer-bereaved spouses and their minor children : A cross-sectional study
- 2022
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 46:4, s. 996-1002
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to evaluate the sources from which bereaved families with minor children reported receiving social support after the death of a parent/partner and which sources they perceived as important. Using an online platform, 23 adolescents, 42 parents, and 27 parent proxies for children aged 4-11 years, completed questionnaires. Family and friends were valued as the most important sources of social support, while social support from societal institutions, such as health care and school, was considered less important, and insufficient.
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| 9. |
- Holm, Maja, et al.
(författare)
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Variations in grief, anxiety, depression, and health among family caregivers before and after the death of a close person in the context of palliative home care
- 2020
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 44:9, s. 531-9
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Tidskriftsartikel (refereegranskat)abstract
- This article investigates longitudinal variations in grief, self-rated health, and symptoms of anxiety and depression among family caregivers in palliative care. Data were taken from a randomized psycho-educational intervention trial and were collected at four time-points; at baseline, upon completion, 2 months later, and 6 months after the patient's death. In total, 117 family caregivers completed all questionnaires. The participants' grief was stable across the measurements, while anxiety, depression, and health varied significantly (p < 0.05). No significant differences were found between the intervention or control group. In conclusion, grief emerged as a constant phenomenon, distinct from symptoms of anxiety and depression.
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| 10. |
- Häger Tibell, Louise, et al.
(författare)
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Preparedness for caregiving and preparedness for death : Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care
- 2024
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Ingår i: Death Studies. - : Taylor & Francis Group. - 0748-1187 .- 1091-7683. ; 48:4, s. 407-416
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.
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