| 1. |
- Kästel, Anne, et al.
(författare)
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Parents’ views on information in childhood cancer care
- 2011
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Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 15:4, s. 290-295
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Tidskriftsartikel (refereegranskat)abstract
- PurposeThe aim of the study is to highlight parents’ views on information in childhood cancer care.MethodA qualitative design, appropriate to gain a holistic view, has been chosen. Eight families with children diagnosed with cancer, of various ages and gender and from various backgrounds, participated in five interviews each during the first year of the child’s illness.ResultsIf the parents’ needs were fulfilled, they were better equipped to handle the illness of their child, which is totally dependant on how the matter of information is dealt with. Information is a complex and demanding issue for the persons involved and the families’ views were divergent in this area. Sometimes they seemed to obtain the information successfully and sometimes there were great problems in this respect. Therefore their preferences must be considered.ConclusionThere has to be an improvement from the aspects of what, when and how information is provided. The major findings of this study indicate that the families need better support and more distinct instructions to be able to cope with the situation.
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| 2. |
- Pergert, Pernilla, et al.
(författare)
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Bridging obstacles to transcultural caring relationships--tools discovered through interviews with staff in pediatric oncology care.
- 2008
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Ingår i: Eur J Oncol Nurs. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 12:1, s. 35-43
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Tidskriftsartikel (refereegranskat)abstract
- Bridging obstacles to transcultural caring relationships--tools discovered through interviews with staff in pediatric oncology care.Pergert P, Ekblad S, Enskär K, Björk O.Department of Woman and Child Health, Childhood Cancer Research Unit, Karolinska Institutet, Karolinska University Hospital/Solna Q6:05, SE-171 76 Stockholm, Sweden. pernilla.pergert@ki.seIn this qualitative study we explored how health-care staff continuously resolve "obstacles to transcultural caring relationships" as they care for families with an immigrant background within the context of pediatric oncology care. A constant comparative method was used and data collection included 5 focus group interviews and 5 complementary individual interviews with health-care staff within pediatric oncology care. Bridging emerged as the way that health-care staff deal with obstacles to transcultural caring relationships. Bridging is a process in which various tools may be used and combined, including communicational tools, transcultural tools and organizational tools. Failure to use tools, or to use and combine them insufficiently, can bring the caring relationship to a halt, which leads to inequity in care. In order to ensure the provision of high-quality care despite differences in religion, culture, language and social situation, health-care staff need to bridge obstacles to transcultural caring relationships.
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| 3. |
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| 4. |
- Pergert, Pernilla, et al.
(författare)
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Resourcing : An approach used by foreign-born parents struggling on in childhood cancer care
- 2016
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Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 23, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: To gain knowledge about foreign-born parents' experiences of dealing with their child's illness and treatment in the context of pediatric cancer care.METHOD: Data from 11 individual interviews with foreign-born parents were analyzed using qualitative inductive constant comparative analysis.RESULTS: To struggle on in childhood cancer care, foreign-born parents engaged in resourcing using various strategies including: information-monitoring, staying strong, support-seeking and concern-focusing. Parents experienced obstacles to information-monitoring and support-seeking related to their foreign background.CONCLUSIONS: The results provide a framework for understanding how foreign-born parents try to deal with childhood cancer care and can be used by health care staff to support their resourcing. Even though preconditions might differ, the strategies presented might also be used by native-born parents however further studied are needed.
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| 5. |
- Sundberg, Kay, et al.
(författare)
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Positive and negative consequences of childhood cancer influencing the lives of young adults
- 2009
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Ingår i: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 13:3, s. 164-170
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to describe how young adults who have survived childhood cancer consider their present life to be influenced by the cancer experience. A cohort of 246 long-term survivors were approached a median of 16 years after diagnosis. Semi-structured telephone interviews were conducted based on the Swedish version of the Schedule for the Evaluation of Individual Quality of Life-Direct Weighting (SEIQoL-DW). Interviews were analysed using content analyses. When asked if cancer negatively or positively currently affected their lives, 68% reported at least one negative consequence and 53% at least one positive consequence. The most frequently reported negative consequences include a variety of physical impairments and limitations in participating in activities; positive consequences describe a more positive view of life and of self. Women more often than men reported negative psychological impact, a changed body appearance and positive interaction with others. CNS tumours and combined treatment were somewhat associated to a higher extent of negative consequences. Overall, the results indicate that long-term survivors of childhood cancer are getting along quite well despite shortcomings.
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