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- Bergström, Maria, et al.
(författare)
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Significant others' influence on participation in everyday life : the perspectives of persons with early diagnosed rheumatoid arthritis
- 2020
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Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 42:3, s. 385-393
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To describe the meaning of significant others in relation to participation in everyday life of persons with early diagnosed rheumatoid arthritis (RA). Materials and methods: Fifty-nine persons participated in this interview study. Inclusion criteria were three years’ experience of diagnosis and being of working age. Semi-structured interviews were conducted using critical incident technique (CIT), and the material was analysed using content analysis. Results: Four categories were revealed: (1) My early RA causes activity adaptations for us all, referring to the person and significant others modifying activities. (2) Making the significant others balance between shortfalls and participation, where the participants distinguished between needing help and feeling involved in activities. (3) Physical interactions with significant others, referring to both the problematic and manageable impact RA could have on body contact. (4) Emotions in relation to activities with others, where participants described feelings of failing others, and anxiety about future activities. Conclusions: For persons with early diagnosed RA, significant others can be both hindering and facilitating for participation in everyday life. As a clinical implication, it is valuable to identify how significant others can be involved in the rehabilitation process, to enhance participation in everyday life early in the disease process.Implications for rehabilitation Significant others of persons with rheumatoid arthritis can facilitate as well as hinder participation in everyday life, even early in the disease process. It is important to include the significant others in the rehabilitation process of persons with early diagnosed rheumatoid arthritis. It is of great importance to identify when and how significant others can be facilitators of participation in everyday life for persons with early rheumatoid arthritis. To make it easier for significant others to facilitate participation, there is a need for the healthcare system to explore ways to support significant others with easily accessible information about early rheumatoid arthritis.
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- Björk, Mathilda, et al.
(författare)
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Foot barriers in patients with early rheumatoid arthritis : an interview study among Swedish women and men
- 2018
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Ingår i: Arthritis care & research. - : John Wiley & Sons. - 2151-464X .- 2151-4658. ; 70:9, s. 1348-1354
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: Foot impairments are related to reduced mobility and participation restrictions in daily activities in patients with established rheumatoid arthritis (RA). The new biological medications are effective and reduce disease activity, but not disability to the same extent. Foot impairments are assumed to be related to participation restrictions also in patients with early RA, diagnosed after the introduction of biological medications. The knowledge of foot impairments needs to be more explored after the introduction of biological disease-modifying drugs (bDMARDs). The aim of this study was to explore the patients' perspective of foot impairments related to early RA.METHODS: The sample included 59 patients (20-63 years) who were interviewed about participation dilemmas in daily life using the Critical Incident Technique. The interviews were audio-recorded and transcribed. Data related to foot impairments were extracted and analyzed thematically. A research partner validated the analysis. The study was approved by the Regional Ethics Committee.RESULTS: Patients with early RA described a variety of participation restrictions related to foot impairments: 1) foot hindrances in domestic life, 2) foot impairments influencing work, 3) leisure activities restricted by one's feet 4) struggling to be mobile 5) foot impairments as an early sign of rheumatic disease.CONCLUSION: There is a need to focus on foot impairments related to early RA, and for health care professionals to understand these signs. A suggestion for future research is to conduct a longitudinal follow-up of foot impairment related to medication, disease activity and disability in patients diagnosed after the introduction of bDMARDs. This article is protected by copyright. All rights reserved.
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- Blomberg, Helena, 1970-, et al.
(författare)
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Children helping to co-construct a digital tool that is designed to increase children’s participation in child welfare investigations in Sweden.
- 2022
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Ingår i: Qualitative Social Work. - : SAGE Publications. - 1473-3250 .- 1741-3117. ; 21:2, s. 367-392
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Tidskriftsartikel (refereegranskat)abstract
- How do children (aged 6-12 years) understand and make use of a digital tool that is under development? This article builds on an ongoing interdisciplinary research project in which children, social workers (the inventers of this social innovation) and researchers together develop an interactive digital tool (application) to strengthen children's participation during the planning and process of welfare assessments. Departing from social constructionism, and using a discursive narrative approach with visual ethnography, the aim of the article is to display how the children co-construct the application and contribute with "stories of life situations" by drawing themselves as characters and the places they frequent. The findings show that the children improved the application by suggesting more affordances so that they could better create themselves/others, by discovering bugs, and by showing how it could appeal to children of various ages. The application helped the children to start communicating and bonding when creating themselves in detail, drawing places/characters and describing events associated with them, and sharing small life stories. The application can help children and social workers to connect and facilitate children's participation by allowing them to focus on their own perspectives when drawing and sharing stories.
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- Brunnberg, Elinor, et al.
(författare)
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Metodik för samarbetsinriktat lärande
- 2016. - 1
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Ingår i: Samproduktionens retorik och praktik. - Lund : Studentlitteratur AB. - 9789144114828 ; , s. 167-177
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Bokkapitel (populärvet., debatt m.m.)
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