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Förvaltning och medborgarskap i förändring
- 2010
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Samlingsverk (redaktörskap) (övrigt vetenskapligt/konstnärligt)abstract
- The aim of this book is to contribute to the development of a dialogue between ongoing research and established practice in the area of e-administration. Just as established practice consists of many different established practices within the public sector , researchers who are interested and involved in the area of e-administration also represent a number of different perspectives and academic disciplines. Our ambition has been to present several different perspectives and understandings related to the ongoing process of change, a charting of where Swedish research in the field stands today. The themes dsicussed from a critical perspective are: The Citizen's Space for Action, Space for Design Action, Space for Action Concerning Regulation and Leadership and finally Providing Space for a Multitude of Interpretations and Roles.
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| 2. |
- Juuso, Päivi, et al.
(författare)
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Living with a double burden : Meanings of pain for women with fibromyalgia
- 2011
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Informa UK Limited. - 1748-2623 .- 1748-2631. ; 6:3
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Tidskriftsartikel (refereegranskat)abstract
- Living with fibromyalgia (FM) means living with a chronic pain condition that greatly influences daily life. The majority of people with FM are middle-aged women. The aim of this study was to elucidate meanings of pain for women with FM. Fifteen women with FM were interviewed about their pain experiences and a phenomenological hermeneutic interpretation was used to analyse the interview texts. The findings show that meanings of pain for women with FM can be understood as living with a double burden; living with an aggressive, unpredictable pain and being doubted by others in relation to the invisible pain. The ever-present pain was described as unbearable, overwhelming, and dominated the women's whole existence. Nevertheless, all the women tried to normalize life by doing daily chores in an attempt to alleviate the pain. In order to support the women's needs and help them to feel well despite their pain, it is important that nurses and health care personnel acknowledge and understand women with FM and their pain experiences. © 2011 P. Juuso et al.
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| 3. |
- Juuso, Päivi, et al.
(författare)
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Meanings of being received and met by others as experienced by women with fibromyalgia
- 2014
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Ingår i: Qualitative Health Research. - : SAGE Publications. - 1049-7323 .- 1552-7557. ; 24:10, s. 1381-1390
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Tidskriftsartikel (refereegranskat)abstract
- Fibromyalgia (FM) is a common chronic pain syndrome that mostly affects middle-aged women. Our aim with this study was to elucidate meanings of being received and met by others as experienced by women with FM. Interviews with a narrative approach were conducted with 9 women. We analyzed the transcribed interviews with a phenomenological hermeneutical interpretation. The findings revealed two themes: being seen as a malingerer and being acknowledged. Meanings of being received and met by others, as experienced by women with FM, can be understood as a movement between the two perspectives. When they were acknowledged, their feelings of security and trust increased, but the women could not rely on this because others received and met them in such an unpredictable manner. © The Author(s) 2014.
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| 4. |
- Juuso, Päivi, et al.
(författare)
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Meanings of feeling well for women with fibromyalgia
- 2013
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Ingår i: Health Care for Women International. - : Informa UK Limited. - 0739-9332 .- 1096-4665. ; 34:8, s. 694-706
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Tidskriftsartikel (refereegranskat)abstract
- The researchers focus in this study was to elucidate meanings of feeling well for women with fibromyalgia (FM). We obtained narrative interviews with thirteen women with FM and used a phenomenological-hermeneutic interpretation to analyse the interview texts. Our interpretation of the findings show that for women with FM meanings of feeling well can be understood as having strength to be involved. The women's experiences of feeling well meant being in control, having power, finding one's own pace and feelings of belonging.
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| 5. |
- Juuso, Päivi, et al.
(författare)
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The significance of Associations for women with FM
- 2014
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Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 36:21, s. 1755-1761
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: Living with fibromyalgia (FM) means living with a long-term pain syndrome that is invisible to others. Support and understanding from others seem to be important to managing the affected daily life. The aim of this study was to describe the significance of FM associations for women with FM. Methods: Data collection was carried out through focus group discussions with seventeen women with FM. Data were analyzed through thematic content analysis. Results: The findings show that women experienced associations for people with FM as important as they gave access to contacts with others with similar experiences. Their need of togetherness was fulfilled at the association and they described being strengthened by the support received. Because of the lack of information and knowledge about FM, the association was described as an important venue for getting and mediating information about the illness. Conclusions: At the association the women seem to be empowered, which increases their ability to manage their daily lives despite the limitations imposed by FM. Healthcare personnel could not satisfy the women’s needs and to manage to support women with FM. There is a need for communication based on a shared understanding between the women and healthcare personnel.Implications for Rehabilitation Read More: http://informahealthcare.com/eprint/hxrQu88eIVBPKf48aBpd/full
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| 6. |
- Lindberg, Birgitta, et al.
(författare)
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Using Information and Communication Technology in Home Care for Communication between Patients, Family Members, and Healthcare Professionals: A Systematic Review
- 2013
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Ingår i: International Journal of Telemedicine and Applications. - : Hindawi Limited. - 1687-6415 .- 1687-6423.
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Tidskriftsartikel (refereegranskat)abstract
- Introduction. Information and communication technology (ICT) are becoming a natural part in healthcare both for delivering and giving accessibility to healthcare for people with chronic illness living at home. Aim. The aim was to review existing studies describing the use of ICT in home care for communication between patients, family members, and healthcare professionals. Methods. A review of studies was conducted that identified 1,276 studies. A selection process and quality appraisal were conducted, which finally resulted in 107 studies. Results. The general results offer an overview of characteristics of studies describing the use of ICT applications in home care and are summarized in areas including study approach, quality appraisal, publications data, terminology used for defining the technology, and disease diagnosis. The specific results describe how communication with ICT was performed in home care and the benefits and drawbacks with the use of ICT. Results were predominated by positive responses in the use of ICT. Conclusion. The use of ICT applications in home care is an expanding research area, with a variety of ICT tools used that could increase accessibility to home care. Using ICT can lead to people living with chronic illnesses gaining control of their illness that promotes self-care.
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| 7. |
- Lindgren, Eva, et al.
(författare)
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Managing transition with support : Experiences of transition from child and adolescent psychiatry to general adult psychiatry narrated by young adults and relatives
- 2014
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Ingår i: Psychiatry Journal. - : Hindawi Limited. - 2314-4327 .- 2314-4335.
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Tidskriftsartikel (refereegranskat)abstract
- Young adults with mental illness who need continuing care when they turn 18 are referred from child and adolescent psychiatry to general adult psychiatry. During this process, young adults are undergoing multiple transitions as they come of age while they transfer to another unit in healthcare. The aim of this study was to explore expectations and experiences of transition from child and adolescent psychiatry to general adult psychiatry as narrated by young adults and relatives. Individual interviews were conducted with three young adults and six relatives and analysed according to grounded theory. The analysis resulted in a core category: managing transition with support, and three categories: being of age but not mature, walking out of security and into uncertainty, and feeling omitted and handling concerns. The young adults’ and relatives' main concerns were that they might be left out and feel uncertainty about the new situation during the transition process. To facilitate the transition process, individual care planning is needed. It is essential that young adults and relatives are participating in the process to be prepared for the changes and achieve a successful transition. Knowledge about the simultaneous processes seems to be an important issue for facilitating transition.
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| 8. |
- Lindgren, Eva, et al.
(författare)
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The gap in transition between child and adolescent psychiatry and general adult psychiatry
- 2013
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Ingår i: Journal of Child and Adolescent Psychiatric Nursing. - : Wiley. - 1073-6077 .- 1744-6171. ; 26:2, s. 103-109
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Tidskriftsartikel (refereegranskat)abstract
- Background: During transition from child and adolescent psychiatry (CAP) to general adult psychiatry (GenP) young adults with mental illness face multilevel transitions along with a risk for disruption in continuity of care. The aim of this study was to describe professionals' experiences and views of the transition process from CAP to GenP. Method: Data were collected through six focus group discussions with professionals from both CAP and GenP and analyzed by content analysis. Results: The results showed a gap in transition between CAP and GenP when different perspectives and care cultures meet in a complex process. Conclusions: Cooperation, transition planning, and a mutual understanding of care can support young adults in transition from CAP to GenP. © 2013 Wiley Periodicals, Inc.
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| 9. |
- Olsson, Malin, et al.
(författare)
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Meanings of being received and met by others as experienced by women with MS
- 2011
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Informa UK Limited. - 1748-2623 .- 1748-2631. ; 6:1, s. 57-69
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Tidskriftsartikel (refereegranskat)abstract
- In order to elucidate meanings of being received and met by others as experienced by women with multiple sclerosis (MS) we conducted a qualitative inquiry. We interviewed 15 women with MS and analysed the interviews with a phenomenological hermeneutic interpretation. The findings were presented in two themes: experiencing oneself as a valuable person and experiencing oneself as diminished. Meanings of being received and met by others, as experienced by women with MS, can be understood as containing two dimensions where treatment from others can mean recognising oneself through confirmation, as well as being ignored due to missing togetherness with others.
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| 10. |
- Olsson, Malin, et al.
(författare)
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Meanings of feeling well for women with multiple sclerosis
- 2010
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Ingår i: Qualitative Health Research. - : SAGE Publications. - 1049-7323 .- 1552-7557. ; 20:9, s. 1254-1261
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Tidskriftsartikel (refereegranskat)abstract
- In research concerning multiple sclerosis (MS), the factors that impact on people's well-being and quality of life have been studied, but little has been written about what it means to feel well for women with MS. Therefore, in this study our aim was to describe meanings of feeling well for women with MS. We interviewed 15 women with MS, and a phenomenological hermeneutic interpretation was utilized to analyze the interviews. Through this study it can be understood that finding a pace where daily life goes on means that women with MS feel well when the illness is kept in check and is not the dominant experience. The findings of this study can be used to confirm women's experiences of feeling well, despite living with the consequences of MS. Health care professionals will find the results of this study useful when they reflect on and formulate the care of women with MS when attempting to support the latter's desire to feel well in their daily lives. © The Author(s) 2010.
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