| 1. |
- Berg, Linda, 1961, et al.
(författare)
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Characterisation of Cancer Support and Rehabilitation Programmes: A Swedish Multiple Case Study
- 2014
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Ingår i: The open nursing journal. - : Bentham Science Publishers Ltd.. - 1874-4346. ; 8, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- Cancer support and rehabilitation are suggested to be an integral part of cancer care strategies. This study focuses on comparativeness of cancer support and rehabilitation programmes. The aim of this study was to analyse available cancer support and rehabilitation programmes in Sweden presented as complementary to cancer rehabilitation at cancer clinics. A multiple case study design was chosen in order to inquire the small number of existing supportive and rehabilitative cancer programmes. Based on the structures, processes and outcomes of the nine included programmes, three types of cancer support and rehabilitation programmes were identified: multimodal rehabilitation, comprehensive cancer support and art therapy. Cancer support and rehabilitation programmes offer a variety of activities and therapies which are highly valuable and relevant for people with cancer. The typology of cancer support and rehabilitation programmes and comparability between programmes need further inquiry.
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| 2. |
- Melin-Johansson, Christina, et al.
(författare)
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The Recovery Process When Participating in Cancer Support and Rehabilitation Programs in Sweden
- 2015
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Ingår i: Global qualitative nursing research. - : Sage Publications. - 2333-3936. ; 2
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to illuminate the meaning of participating in support and rehabilitation programs described by people diagnosed with cancer. Nineteen persons were interviewed in focus groups and face-to-face. Data were analyzed with a qualitative phenomenological hermeneutical method for researching lived experiences. Interpretation proceeded through three phases: naïve reading, structural analysis, and comprehensive understanding. Three themes were disclosed: receiving support for recovery when being most vulnerable, recapturing capabilities through supportive activities, and searching to find stability and well-being in a changed life situation. Participating in the programs was an existential transition from living in an unpredictable situation that was turned into something meaningful. Recovery did not mean the return to a state of normality; rather, it meant a continuing recovery from cancer treatments and symptoms involving recapturing capabilities and searching for a balance in a forever changed life. This study provides new insights about the experiences of participating in cancer support and rehabilitation programs.
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| 3. |
- Ventura, Filipa, et al.
(författare)
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An integrative review of supportive e-health programs in cancer care.
- 2013
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Ingår i: European journal of oncology nursing : the official journal of European Oncology Nursing Society. - : Elsevier BV. - 1532-2122 .- 1462-3889. ; 17:4
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: This integrative review aims to gather more knowledge of the design of supportive e-health interventions for patients diagnosed with cancer and subsequently analyze and synthesize that knowledge in a potential explanatory model for those interventions. METHODS: PubMed, CINAHL and PsycINFO were searched for abstracts dating from 2000 through to June 2012. Eligible articles concerned education or support for adult cancer patients, and were provided either on the Internet or using CD-ROM or DVD. RESULTS: Twenty-eight quantitative studies constituted the final sample, revealing that supportive e-health programs in the field of cancer are being used and are helpful to individuals despite their age, gender, literacy level and disease-stage. Each e-health program usually constitutes a single service with a variety of multimedia features, which leads to different designs yet with common outcomes. Some of these outcomes are theoretically explained, although a structure that links all aspects of the intervention is rarely found. Moreover, different designs have also been adopted for testing the interventions' effectiveness. CONCLUSION: E-health interventions that allow supportive needs to be satisfied are leading to positive effects for individuals with different preferences and priorities. Even though several communalities could be found across interventions, methodological aspects of design, implementation and evaluation still vary, leading to some inconsistency. Models and applied theories are needed to clarify such issues, thus enhancing the credibility and applicability of supportive e-health programs across target populations.
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| 4. |
- Ventura, Filipa, et al.
(författare)
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Challenges of evaluating a computer-based educational programme for women diagnosed with early-stage breast cancer : A randomised controlled trial
- 2017
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Ingår i: European Journal of Cancer Care. - : Hindawi Limited. - 0961-5423 .- 1365-2354. ; 26:5
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Tidskriftsartikel (refereegranskat)abstract
- In a two-group, multi-centre, randomised controlled 9 months trial, we (1) evaluated the impact of a computer-based educational programme compared to standard care and (2) examined whether different patterns of programme usage could be explained by demographic, medical and psychosocial factors. We involved 226 Swedish-speaking women diagnosed with early-stage breast cancer and scheduled for surgery. Primary outcomes were health self-efficacy and health care participation measured by the Comprehensive Health Enhancement Supportive System instrument. Secondary outcomes were anxiety and depression levels measured by the Hospital Anxiety and Depression scale. The Functional Assessment of Cancer Therapy-Breast and Sense of Coherence scales measured psychosocial factors for the study's secondary aim. Multi-level modelling revealed no statistically significant impact of the computer-based educational programme over time on the outcomes. Subsequent exploratory regression analysis revealed that older women with axillary dissection and increased physical well-being were more likely to use the programme. Furthermore, receiving post-operative chemotherapy and increased meaningfulness decreased the likelihood of use. Providing reliable and evidence-based medical and rehabilitation information via a computer-based programme might not be enough to influence multi-dimensional outcomes in women diagnosed with breast cancer. The use of these programmes should be further explored to promote adherence to e-Health supportive interventions.
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| 5. |
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| 6. |
- Ventura, Filipa, et al.
(författare)
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Evaluation of a Web-based Educational Program for Women Diagnosed with Breast Cancer: Why is the Intervention Effect Absent?
- 2013
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Ingår i: MEDINFO 2013. Proceedings of the MEDINFO 2013 conference, Copenhagen, Denmark, August 2013. - : IOS Press. - 0926-9630. - 9781614992882 ; , s. 1132-
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Konferensbidrag (refereegranskat)abstract
- To provide accurate and tailored information to women diagnosed with breast cancer a web-based educational program was developed and tested in a randomized controlled trial for impact on health self-efficacy, healthcare participation, and anxiety and depression levels. Multilevel modelling with an intention-to-treat analysis revealed no treatment effect on the above-mentioned outcomes. Reasons for the non-identified effect are discussed and raise methodological questions concerning e-health supportive interventions for further research.
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| 7. |
- Ventura, Filipa, et al.
(författare)
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Exploring the Person-Centeredness of an Innovative E-Supportive System Aimed at Person-Centered Care: Prototype Evaluation of the Care Expert.
- 2016
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Ingår i: Computers, informatics, nursing : CIN. - 1538-9774. ; 34:5
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Tidskriftsartikel (refereegranskat)abstract
- Integrated in a multiphase development project, the Care Expert is a prototype of a novel e-supportive system aiming to mediate person-centered care in the context of outpatient oncology. At this early stage of development, the current study was conducted aiming at exploring the person-centeredness concept underlying the Care Expert version 1.0 and its usability for patients receiving outpatient chemotherapy for breast cancer. Within a user-centered design, we followed a mixed-methods approach entailing subjective assessment and diagnostic evaluation of the prototype. Four women undergoing outpatient chemotherapy participated in individual sessions and rated highly the system's usability. Their accounts led to identifying three supportive functions: continuous communication, reinforcement of self-driven agency, and cooperative agency with a sense of being looked after. We discuss the results in relation to theoretical fields that might guide further the development of the supportive system and usability recommendations. Care Expert has the potential to mediate person-centered care in outpatient oncology. Nevertheless, additional cycles of iterative development with the software team and of participatory design focusing on oncology nurses' perspectives are required before departing to the feasibility phase in intervention research.
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| 8. |
- Ventura, Filipa, et al.
(författare)
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Purposeful Agency in Support Seeking During Cancer Treatment From a Person-Centered Perspective.
- 2016
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Ingår i: Global qualitative nursing research. - : SAGE Publications. - 2333-3936. ; 3
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Tidskriftsartikel (refereegranskat)abstract
- People diagnosed with early-stage breast cancer (ESBC) manifest high supportive needs. eHealth supportive programs successfully satisfy those needs, but the process of generating supportive outcomes is less understood. We conducted this study to explore patients' efforts to satisfy their supportive needs throughout the treatment course, not limited to but particularly considering their use of the Internet. Guided by interpretive description, 19 women undergoing treatment for ESBC participated in two phases of focus group meetings. Our results disclose women as self-driven resourceful agents, a perspective that underlay the process of reaching out as women appraised their need for support and intentionally engaged their supportive resources. Our findings convey a need to shift the paradigm of professionals' provision of support in scheduled appointments toward achieving a continuous reciprocal care partnership. This is especially significant for the development of eHealth supportive programs, which assist in the enhancement of the health care accessibility.
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