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Evaluating pictoria...
Evaluating pictorial support in person-centred care for children (PicPecc) : A protocol for a crossover design study
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- Nilsson, Stefan, 1972 (författare)
- Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences
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- Wiljén, Angelica (författare)
- Department of Paediatrics, Södra Älvsborg Hospital, Region Västra Götaland, Borås, Sweden,Reg Vastra Gotaland, Sodra Alvsborg Hosp, Dept Paediat, Borås, Sweden.
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- Bergquist, Jonas (författare)
- Uppsala universitet,Analytisk kemi,Uppsala Univ, Sweden
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- Chaplin, John, 1955 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics
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- Johnson, E. (författare)
- Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, South Africa,Univ Pretoria, Ctr Augmentat & Alternat Commun, Pretoria, South Africa.
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- Karlsson, Katarina, 1963- (författare)
- Högskolan i Borås,Akademin för vård, arbetsliv och välfärd,Univ Borås, Fac Caring Sci Work Life & Social Welf, Borås, Sweden.
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- Lindroth, T. (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för tillämpad informationsteknologi (GU),Department of Applied Information Technology (GU)
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- Schwarz, A. (författare)
- Department of Paediatrics, Södra Älvsborg Hospital, Region Västra Götaland, Borås, Sweden,Reg Vastra Gotaland, Sodra Alvsborg Hosp, Dept Paediat, Borås, Sweden.
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- Stenmarker, Margaretha (författare)
- Gothenburg University,Göteborgs universitet,Linköpings universitet,Avdelningen för kirurgi, ortopedi och onkologi,Medicinska fakulteten,Univ Gothenburg, Sweden; Reg Jonkoping Cty, Sweden,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics
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- Thunberg, G. (författare)
- DART centre for Augmentative and Alternative Communication and Assistive Technology, Sahlgrenska University Hospital, Region Västra Götaland, Gothenburg, Sweden,Reg Vastra Gotaland, Sahlgrenska Univ Hosp, DART Ctr Augmentat & Alternat Commun & Assist Tec, Gothenburg, Sweden.
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- Esplana, L. (författare)
- Queen Silvia Children’s Hospital, Sahlgrenska University Hospital, Region Västra Götaland, Gothenburg, Sweden,Reg Vastra Gotaland, Sahlgrenska Univ Hosp, Queen Silvia Childrens Hosp, Gothenburg, Sweden.
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- Frid, E. (författare)
- Department of Paediatric Oncology and Haematology, Skåne University Hospital, Lund, Sweden,Skane Univ Hosp, Dept Paediat Oncol & Haematol, Lund, Sweden.
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- Haglind, M. (författare)
- Department of Anaesthesia and Intensive Care, Linköping University Hospital, Linköping, Sweden,Reg Vastra Gotaland, Sahlgrenska Univ Hosp, Queen Silvia Childrens Hosp, Gothenburg, Sweden.
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- Höök, Angelica (författare)
- Department of Paediatric Oncology and Haematology, Skåne University Hospital, Lund, Sweden,Linköping Univ Hosp, Dept Anaesthesia & Intens Care, Linköping, Sweden.,Region Östergötland, ANOPIVA US
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- Wille, J. (författare)
- Department of Paediatric Oncology and Haematology, Skåne University Hospital, Lund, Sweden,Skane Univ Hosp, Dept Paediat Oncol & Haematol, Lund, Sweden.
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- Öhlén, Joakim, 1958 (författare)
- Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences
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(creator_code:org_t)
- 2021-05-04
- 2021
- Engelska.
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Ingår i: BMJ Open. - : BMJ Publishing Group Ltd. - 2044-6055. ; 11:5
- Relaterad länk:
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https://doi.org/10.1...
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https://hb.diva-port... (primary) (Raw object)
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https://bmjopen.bmj....
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https://uu.diva-port... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://gup.ub.gu.se...
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Abstract
Ämnesord
Stäng
- Introduction This study protocol outlines the evaluation of the pictorial support in person-centred care for children (PicPecc). PicPecc is a digital tool used by children aged 5-17 years to self-report symptoms of acute lymphoblastic leukaemia, who undergo high-dose methotrexate treatments. The design of the digital platform follows the principles of universal design using pictorial support to provide accessibility for all children regardless of communication or language challenges and thus facilitating international comparison.Methods and analysis Both effect and process evaluations will be conducted. A crossover design will be used to measure the effect/outcome, and a mixed-methods design will be used to measure the process/implementation. The primary outcome in the effect evaluation will be self-reported distress. Secondary outcomes will be stress levels monitored via neuropeptides, neurosteroids and peripheral steroids indicated in plasma blood samples; frequency of in-app estimation of high levels of distress by the children; children's use of analgesic medicine and person centeredness evaluated via the questionnaire Visual CARE Measure. For the process evaluation, qualitative interviews will be carried out with children with cancer, their legal guardians and case-related healthcare professionals. These interviews will address experiences with PicPecc in terms of feasibility and frequency of use from the child's perspective and value to the caseworker. Interview transcripts will be analysed using an interpretive description methodology.Ethics and dissemination Ethical approval was obtained from the Swedish Ethical Review Authority (reference 2019-02392; 2020-02601; 2020-06226). Children, legal guardians, healthcare professionals, policymaking and research stakeholders will be involved in all stages of the research process according to Medical Research Council's guidelines. Research findings will be presented at international cancer and paediatric conferences and published in scientific journals.Trial registration ClinicalTrials.gov; NCT04433650.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Annan hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Other Health Sciences (hsv//eng)
Nyckelord
- clinical trials
- paediatric oncology
- pain management
- qualitative research
- methotrexate
- neuropeptide
- neurosteroid
- acute lymphoblastic leukemia
- adolescent
- Article
- blood sampling
- child
- child care
- childhood cancer
- clinical protocol
- comparative study
- controlled study
- crossover procedure
- digital imaging
- digital technology
- distress syndrome
- drug megadose
- evaluation study
- feasibility study
- female
- health care personnel
- human
- interpersonal communication
- intervention study
- major clinical study
- male
- patient care
- pictorial support in person centred care for children
- questionnaire
- randomized controlled trial
- self report
- universal design
- Sweden
- Communication
- Cross-Over Studies
- Humans
- Patient-Centered Care
- Människan i vården
- The Human Perspective in Care
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Till lärosätets databas
- Av författaren/redakt...
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Nilsson, Stefan, ...
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Wiljén, Angelica
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Bergquist, Jonas
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Chaplin, John, 1 ...
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Johnson, E.
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Karlsson, Katari ...
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visa fler...
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Lindroth, T.
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Schwarz, A.
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Stenmarker, Marg ...
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Thunberg, G.
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Esplana, L.
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Frid, E.
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Haglind, M.
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Höök, Angelica
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Wille, J.
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Öhlén, Joakim, 1 ...
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- Om ämnet
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Kardiologi
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Annan medicin oc ...
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och Övrig annan medi ...
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskap
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och Omvårdnad
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskap
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och Annan hälsoveten ...
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BMJ Open
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Högskolan i Borås
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Uppsala universitet
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Linköpings universitet
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Göteborgs universitet