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- Henoch, Ingela, 1956, et al.
(author)
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The Swedish Version of the Frommelt Attitude Toward Care of the Dying Scale : Aspects of Validity and Factors Influencing Nurses' and Nursing Students' Attitudes.
- 2014
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In: Cancer Nursing. - : Lippincott Williams & Wilkins. - 0162-220X .- 1538-9804. ; 37:1, s. E1-E11
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Journal article (peer-reviewed)abstract
- BACKGROUND:: Nurses' attitudes toward caring for dying persons need to be explored. The Frommelt Attitude Toward Care of the Dying (FATCOD) scale has not previously been used in Swedish language. OBJECTIVES:: The objectives of this study were to compare FATCOD scores among Swedish nurses and nursing students with those from other languages, to explore the existence of 2 subscales, and to evaluate influences of experiences on attitudes toward care of dying patients. METHODS:: A descriptive, cross-sectional, and predictive design was used. The FATCOD scores of Swedish nurses from hospice, oncology, surgery clinics, and palliative home care and nursing students were compared with published scores from the United States, Israel, and Japan. Descriptive statistics, t tests, and factor and regression analyses were used. RESULTS:: The sample consisted of 213 persons: 71 registered nurses, 42 enrolled nurses, and 100 nursing students. Swedish FATCOD mean scores did not differ from published means from the United States and Israel, but were significantly more positive than Japanese means. In line with Japanese studies, factor analyses yielded a 2-factor solution. Total FATCOD and subscales had low Cronbach α's. Hospice and palliative team nurses were more positive than oncology and surgery nurses to care for dying patients. CONCLUSIONS:: Although our results suggest that the Swedish FATCOD may comprise 2 distinct scales, the total scale may be the most adequate and applicable for use in Sweden. Professional experience was associated with nurses' attitudes toward caring for dying patients. IMPLICATION FOR PRACTICE:: Care culture might influence nurses' attitudes toward caring for dying patients; the benefits of education need to be explored.
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| 2. |
- Ekbom, Inger, et al.
(author)
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Trappan-modellen : Praktik och framtida studier
- 2021
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Conference paper (other academic/artistic)abstract
- Barns fysiska och psykiska hälsa kan påverkas allvarligt både på kort och lång sikt av att uppleva våld. Att barn som upplever våld ges möjlighet till beprövade stöd och hjälpinsatser kan därför inte nog betonas. Trappanmodellen är en svensk stödmetod för krissamtal med barn som upplevt våld i sin familj som är brett använd främst inom socialtjänsten i Sverige. Att arbeta enligt Trappan modellen innebär att man erbjuder barn individuella krissamtal i tre steg, kontakt, rekonstruktion och kunskap. Genom Trappansamtalen får barn en möjlighet att berätta om sina upplevelser och tankar. Trappan modellen växte fram i ett projekt som Rädda Barnen drev 1996-1999. Målsättningen med projektet var att synliggöra barn som upplevt våld och att utveckla en modell för krissamtal för dessa barn. Boken ”och han sparkade mamma – Trappanmodellen i möte med barn som bevittnar våld ” skriven av Ami Arnell och Inger Ekbom, kom ut första gången på Rädda Barnens förlag 1999. Boken finns nu i en tredje omarbetad upplaga och idag arrangeras utbildning i Trappan modellen med högskolepoäng av Ersta Sköndal Bräcke högskola. Inger Ekbom, socionom och leg. Psykoterapeut kommer under dagen att berätta hur metoden är uppbyggd och hur den är tänkt att användas. Därefter kommer Susanne Björk studierektor för utbildningen och fil dr Maria Ingemarson beskriva en planerad förstudie som är tänkt att utgöra grunden för en tydlig definition av Trappans programteoretiska modell och ett genomförande av en större systematisk utvärdering av själva metoden och dess effekter. Förstudien har en kartläggande och en undersökande ansats och planeras innefatta litteraturstudier, frågeformulär till verksamheter i Sverige som har utbildats i Trappan samt semistrukturerade intervjuer med professionella metodutövare.
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| 3. |
- Hjorth, Elin
(author)
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Experiences of care and everyday life in a time of change for families in which a child has spinal muscular atrophy
- 2020
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Doctoral thesis (other academic/artistic)abstract
- This thesis focuses on children with severe spinal muscular atrophy (SMA) and their families. Although the disease is severe, and the families are faced with challenges in everyday life related to the progressive muscle weakness that SMA causes, knowledge of their experiences of the situation is limited. The overall purpose of this thesis was therefore to explore how families, with a child who has SMA, experience the care received and their everyday life.The thesis encompasses two projects: a two-nationwide survey with 95 bereaved and non-bereaved parents (response rate of 84%) and an ethnographical study with two families (17 interviews and participant observations at six occasions).The findings showed that parents were generally pleased with the care their children received. However, there were some shortcomings, especially that staff lacked knowledge about the diagnosis, leading the parents to feel that they themselves had to take initiatives for measurements and treatments (Paper II).Further, the parents reported deficiencies in coordination between care providers (Papers I–II). The parents emphasised the importance of having a good relationship with staff (Paper II), to find ways to cope with everyday life and get practical support in everyday activities, as well as social support in dealing with disease and grief (Paper III). With the new medicine for SMA, the families’narratives were rewritten, and the families were facing slow improvements; small events that made a big difference. Hope was negotiated and struggled with indifferent ways by different family members, but contributed to how they dealt with the disease and the outlook on the future (Paper IV).Many of the experiences described by the families can be useful for professionals in modifying their work to support these families in accordance with their needs.
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