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Heart Failure and P...
Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries
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Lu, C. W. (author)
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Wang, J. K. (author)
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Yang, H. L. (author)
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show more...
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Kovacs, A. H. (author)
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Luyckx, K. (author)
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Ruperti-Repilado, F. J. (author)
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Van de Bruaene, A. (author)
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Enomoto, J. (author)
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Sluman, M. A. (author)
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Jackson, J. L. (author)
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Khairy, P. (author)
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Cook, S. C. (author)
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Chidambarathanu, S. (author)
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Alday, L. (author)
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Oechslin, E. (author)
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Eriksen, K. (author)
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- Dellborg, Mikael, 1954 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för medicin,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Medicine,University of Gothenburg Centre for person-centred care (GPCC)
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Berghammer, M. (author)
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Johansson, B. (author)
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Mackie, A. S. (author)
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Menahem, S. (author)
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Caruana, M. (author)
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Veldtman, G. (author)
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Soufi, A. (author)
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Fernandes, S. M. (author)
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White, K. (author)
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Callus, E. (author)
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Kutty, S. (author)
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Apers, S. (author)
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- Moons, Philip, 1968 (author)
- Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences
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(creator_code:org_t)
- Ovid Technologies (Wolters Kluwer Health), 2022
- 2022
- English.
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In: Journal of the American Heart Association. - : Ovid Technologies (Wolters Kluwer Health). - 2047-9980. ; 11:9
- Related links:
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https://gup.ub.gu.se...
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https://doi.org/10.1...
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Abstract
Subject headings
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- BACKGROUND: Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient-report outcomes in adults with congenital heart disease. METHODS AND RESULTS: As part of the APPROACH-IS (Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease-International Study), we collected data on HF status and patient-reported outcomes in 3959 patients from 15 countries across 5 continents. Patient-report outcomes were: perceived health status (12-item Short Form Health Survey), quality of life (Linear Analogue Scale and Satisfaction with Life Scale), sense of coherence-13, psychological distress (Hospital Anxiety and Depression Scale), and illness perception (Brief Illness Perception Questionnaire). In this sample, 137 (3.5%) had HF at the time of investigation, 298 (7.5%) had a history of HF, and 3524 (89.0%) had no current or past episode of HF. Patients with current or past HF were older and had a higher prevalence of complex congenital heart disease, arrhythmias, implantable cardioverter-defibrillators, other clinical comorbidities, and mood disorders than those who never had HF. Patients with HF had worse physical functioning, mental functioning, quality of life, satisfaction with life, sense of coherence, depressive symptoms, and illness perception scores. Magnitudes of differences were large for physical functioning and illness perception and moderate for mental functioning, quality of life, and depressive symptoms. CONCLUSIONS: HF in adults with congenital heart disease is associated with poorer patient-reported outcomes, with large effect sizes for physical functioning and illness perception.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
Keyword
- adult congenital heart disease
- heart failure
- patient-reported
- outcomes
- quality of life
- quality-of-life
- perceptions
- depression
- mortality
- anxiety
- Cardiovascular System & Cardiology
Publication and Content Type
- ref (subject category)
- art (subject category)
Find in a library
To the university's database
- By the author/editor
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Lu, C. W.
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Wang, J. K.
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Yang, H. L.
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Kovacs, A. H.
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Luyckx, K.
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Ruperti-Repilado ...
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show more...
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Van de Bruaene, ...
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Enomoto, J.
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Sluman, M. A.
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Jackson, J. L.
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Khairy, P.
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Cook, S. C.
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Chidambarathanu, ...
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Alday, L.
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Oechslin, E.
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Eriksen, K.
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Dellborg, Mikael ...
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Berghammer, M.
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Johansson, B.
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Mackie, A. S.
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Menahem, S.
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Caruana, M.
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Veldtman, G.
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Soufi, A.
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Fernandes, S. M.
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White, K.
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Callus, E.
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Kutty, S.
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Apers, S.
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Moons, Philip, 1 ...
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show less...
- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cardiac and Card ...
- Articles in the publication
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Journal of the A ...
- By the university
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University of Gothenburg