| 1. |
- Sand, Peter, et al.
(författare)
-
Family dynamics when a child becomes chronically ill: Impact of type 1 diabetes onset in children and adolescents
- 2018
-
Ingår i: Nordic Psychology. - : Informa UK Limited. - 1901-2276 .- 1904-0016. ; 70:2, s. 97-114
-
Tidskriftsartikel (refereegranskat)abstract
- © 2017 The Editors of Nordic Psychology The overall aim of the study was to explore the process of family dynamics when a child has been diagnosed with type one diabetes mellitus (T1DM). The study sample consisted of family members of 20 children with T1DM aged 3–17years. Twenty-nine parents and seven siblings participated in nine focus group interviews. Five individual interviews were conducted. Focus group discussions and individual interviews were audiotaped, transcribed, and analyzed using a grounded theory methodology. The findings are outlined in the core category, the child’s sudden loss of health, and in three related categories: preconceptions, psychological reactions, and impact on family relationships. Preconceptions about T1DM played a critical role when trying to grasp and respond to the diagnosis. Most cohabiting mothers reported a psychological reaction of shock, which the separated mothers didn’t. Fathers paid more attention to the siblings and to the lifelong disease. Mothers of older children with T1DM were more concerned about the child’s future than the mothers of the younger children. In terms of family relationships, the psychological bond to a younger child was strengthened by the diagnosis, as manifested by increased control in social situations. Adolescent siblings showed a greater degree of empathy toward the child with T1DM, whereas preadolescents and preschool siblings tended to fall into rivalry with the child with T1DM. To conclude, in a clinical setting, this knowledge could help the diabetes team in supporting the families in their early process of adaption after the diabetes onset.
|
|
| 2. |
|
|
| 3. |
|
|
| 4. |
- Sand, Peter, et al.
(författare)
-
The reliability of the Health Related Quality Of Life questionnaire PedsQL 3.0 Diabetes Module™ for Swedish children with Type 1 diabetes.
- 2012
-
Ingår i: Acta paediatrica (Oslo, Norway : 1992). - : Wiley. - 1651-2227 .- 0803-5253. ; 101:8
-
Tidskriftsartikel (refereegranskat)abstract
- Aim: The overall aim of the study was to assess reliability and accomplish a limited validation of the Pediatric Quality of Life Inventory 3.0 Diabetes Module Scales (PedsQL 3.0), Swedish version in a sample of Swedish children diagnosed with Type 1 diabetes (T1DM). A secondary aim was to assess whether the children's Health Related Quality of Life (HRQOL) was associated with children's gender and age and whether the child self- and parent proxy reports were consistent. Methods: One hundred and thirty families from four diabetes centres participated in this study. The Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL 4.0) and the PedsQL 3.0 were administered to 108 children (aged 5-18years) with T1DM and 130 parents (of children with T1DM aged 2-18years). Results: The internal consistency of the PedsQL 3.0, Swedish version, reached or exceeded Cronbach's alpha values of 0.70 for both child self- and proxy reports- and parent proxy-reports. The PedsQL 4.0 and PedsQL 3.0 were highly correlated (r=0.76), indicating convergent validity. The parents reported lower diabetes-specific HRQOL than the children themselves (p<0.01). The girls in the study reported lower psychological functioning and treatment adherence compared with the boys (p<0.05). The oldest children (between 13 and 18years of age) reported significantly lower diabetes-specific HRQOL, as compared with younger children (p<0.05). Conclusions: PedsQL 3.0 Diabetes Module can be used as a valuable tool for measuring diabetes-specific HRQOL in child populations, both in research and in clinical practice.
|
|
| 5. |
- Sundberg, Frida, et al.
(författare)
-
Health-related quality of life in preschool children with Type 1 diabetes.
- 2015
-
Ingår i: Diabetic medicine : a journal of the British Diabetic Association. - : Wiley. - 1464-5491. ; 32:1, s. 116-119
-
Tidskriftsartikel (refereegranskat)abstract
- To describe health-related quality of life in children aged < 7 years with Type 1 diabetes mellitus compared with healthy children of the same age, and to investigate how health-related quality of life was correlated with aspects of insulin treatment and glycaemic control.
|
|
