| 1. |
- Lidman, Git, et al.
(författare)
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How children with cerebral palsy master bimanual activities from a parental perspective.
- 2018
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Ingår i: Scandinavian journal of occupational therapy. - : Informa UK Limited. - 1651-2014 .- 1103-8128. ; 25:4, s. 252-259
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Tidskriftsartikel (refereegranskat)abstract
- During childhood, children learn the daily life activities they want and need to do. Children with unilateral spastic cerebral palsy often have difficulties performing activities requiring two hands.To describe parental reasoning on how children with unilateral spastic cerebral palsy learn to master the performance of bimanual activities in everyday life.Sixteen parents participated in focus groups, a qualitative research approach with its own methodological criteria and research methods.One overall theme emerged from the analysis: 'Finding harmony between pleasure and effort is the key to learning'. This overall theme arose as a synthesis of four themes: 'awakening of the inner drive', 'trying on one's own', 'enabling things to work' and 'it must be worth the effort´. The parents described when an activity woke their children´s inner drive to perform. Their children also strived to develop their own way to perform an activity, sometimes with the support of others, still, some activities were not possible to learn.Occupational therapists and others in the children's environment have an important mission to support the children to find their own harmony between pleasure and effort and their individual key to success in learning bimanual everyday activities.
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| 2. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Are there cross-cultural differences of ADL ability in children measured with the AMPS?
- 2012
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Ingår i: 9th COTEC congress of Occupational Therapy 24-27 May. Stockholm Sweden.
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Konferensbidrag (refereegranskat)abstract
- Introduction: Studies of self-care assessments for children have shown cultural differences in age-norms. No study has evaluated if there are cross-cultural differences in ADL motor and process skills in children measured with The Assessment of Motor and Process Skills (AMPS). Aim: To investigate if there were systematic differences in ADL ability measured with the AMPS between children from the Nordic countries and North America and to evaluate the applicability of the age norms for children from both regions. Method: Values from a total of 4613 typically developed children, 3-15 years old, were compared with ANOVA. Results: No differences of relevance between children from the two geographical regions were found, and the age-norm values were found to be applicable to both regions. Conclusion: The AMPS may be considered free from cultural bias and useful in clinical practice as well as in research both in a Nordic and a North American context.
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| 3. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Are there cross-cultural differences of ADL ability in children measured with the Assessment of Motor and Process Skills (AMPS)?
- 2012
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Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa UK Limited. - 1103-8128 .- 1651-2014. ; 19:1, s. 26-32
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Tidskriftsartikel (refereegranskat)abstract
- Abstract: Introduction: In many studies of self-care assessments for children, cultural differences in age-norm values have been shown. No study has evaluated whether there are cross-cultural differences in ADL motor and/or process skills in children when measured with the Assessment of Motor and Process Skills (AMPS). Aim: To investigate if there were systematic differences in ADL ability measured with the AMPS between children from the Nordic countries and North America and to evaluate the applicability of the existing international age-normative values for children from these two regions. Methods: Values from a total of 4 613 children, 3-15 years old, without known disabilities, from these geographical regions were compared with ANOVA. The difference in logits between each region and the mean values for each age group were calculated. Results: No differences of relevance in age-related ADL ability measures between children from the two geographical regions were found, and the age-norm values are applicable to both regions. Implications: The AMPS may be considered free from cultural bias and useful in both clinical practice and research concerned with children in both the Nordic countries and North America.
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| 4. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Is autonomy related to the quality of performance of everyday activities in children with spina bifida?
- 2012
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Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 34:6, s. 514-21
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To investigate the relationship between the level of autonomy and the quality of performance of everyday activities in a population-based cohort of children with spina bifida and to study the agreement between the children's and the parents' ratings of autonomy. Methods: 50 dyads of children (aged 6-14) with spina bifida and their parents rated the children's level of autonomy with an adapted, Swedish version of the Autonomy Scale from the Arc's Self-Determination Scale. Each child's quality of performance of everyday activities was assessed with the Assessment of Motor and Process Skills (AMPS). Results: The autonomy levels of the children with spina bifida were rated to be lowest in daily routines and highest in leisure activities. Binary logistic regression analyses revealed that age, motor skills and process skills were all significantly related to the autonomy level, but that process skills appeared to predominate in this respect. Concerning the perception of the autonomy level, little agreement was found between each child and his/her parent. Conclusions: It is important to understand and support the development of process skills as expressed in task performance in children with spina bifida and to pay attention to both the parent's and the child's opinion when setting goals and plans for interventions. [Box: see text].
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| 5. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Is autonomy related to the quality of performance of everyday activities in children with spina bifida?
- 2012
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Ingår i: 9th COTC congress of Occupational Therapy 24-27 MAy , Stockholm Sweden.
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Konferensbidrag (refereegranskat)abstract
- Aim: Investigate the relationship between the autonomy and the quality of performance of everyday activities in children with spina bifida. Methods: 50 dyads of children (aged 6-14) with spina bifida and their parents rated the children’s level of autonomy with a Swedish version of the Autonomy Scale. Each child’s quality of performance was assessed with the Assessment of Motor and Process Skills (AMPS). Results: The autonomy levels of the children with spina bifida were lowest in goal related activities. Logistic regression analyses revealed that age, motor skills and process skills were all significantly related to autonomy but that process skills appeared to predominate in this respect. Little agreement was found between each child’s and his/her parent’s ratings. Conclusions: It is important to understand and support the development of process skills in children with spina bifida and to pay attention to both the parent’s and the child’s opinion about autonomy.
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| 6. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Performance of activities in daily living in children born with spina bifida
- 2008
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Ingår i: Folke Bernadotte Stiftelsen konferens om delaktighet "En hel del" 18-19 september 2008.
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Konferensbidrag (refereegranskat)abstract
- PERFORMANCE OF ACTIVITIES IN DAILY LIVING IN CHILDREN BORN WITH SPINA BIFIDA Background Dependency in daily living in children with spina bifida has most commonly been described as a problem due to motor dysfunctions and little is known about the impact on the performance of daily living activities due to executive dysfunction. The aim of this study was to evaluate the quality of the performance of daily activities in children with spina bifida. This study is the first in larger research plan aimed to study the correlation between skills of activity performance and perceived participation in school and everyday life among children born with spina bifida. Materials and Methods A cross-sectional study of children from the western region of Sweden with spina bifida (n=50) born between1993-1999, was carried out at the Regional Rehabilitation Centre for children and adolescents in Gothenburg to evaluate performance of activities in daily living using the Assessment of Motor and Process Skills (AMPS). The study group consisted of both children with and without hydrocephalus. The AMPS is an observational method designed to allow a simultaneous evaluation of the motor and process skills necessary for a competent performance. The results from the study group were analysed and compared to age-matched normative values and to match-pairs of typically developed Scandinavian children, in the latter case considering minimal clinical important differences (> 0,5 logits). Results The results showed that 60% of the children with spina bifida had lower ADL-motor skills and 48% had lower ADL-process skills than the age norms (± 2SD). Results from the match-pair comparisons shows that the study group had skill values that were lower and of clinical meaningful importance on motor skills in 80% of the cases and on process skills in 66% of the cases. There were significant differences in both motor skills and process skills in the study group between the children with and those without hydrocephalus with the former group demonstrating lower measures. Conclusions Children with spina bifida have, to a large extent, decreased ability to perform activities of daily living relating to impairment of both motor and process abilities. These findings suggests that to reach autonomy in daily life, children born with spina bifida need support from parents and professionals to find, to learn and to use strategies not only to know “how to do things” but also “how to get things done”
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| 7. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Performance of everyday occupations in children with spina bifida assessed with Assessment of Motor and Process Skills; a population based study.
- 2010
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Ingår i: 15 congress of the World Federation of Occupational therapists.
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Konferensbidrag (refereegranskat)abstract
- Introduction: “I suppose he can do it, it’s somehow just never done.” This phrase is often heard within the clinic when parents whose children were born with spina bifida are asked how well their children perform everyday occupations. Resent research has shown the children with spina bifida often have deficits in cognitive and executive functions, but the consequents of those dysfunctions in everyday life has not been described. No prior study has, to the best of our knowledge, evaluated the difference in the quality of the performance of everyday occupation between children with spina bifida and typically developed children. Objectives: To evaluate the quality of the performance of everyday occupations in children with spina bifida. Methods: The study is population-based. Fifty children with spina bifida, of 65 children in a geographic cohort of western Sweden, aged 6 to14 years, were evaluated with Assessment of Motor and Process Skills (AMPS). Results: Most of the children with spina bifida had difficulties performing even well-known, self chosen everyday tasks in an effortless, efficient, and independent way, relating to deficits in both motor and process skills. Compared with age-normative values, 60 % of the children with spina bifida were found to have motor ability measures below 2SD and 48 % process ability measures below 2SD. The motor skills hardest to accomplish involved motor planning and the process skills hardest to accomplish were adaptation of performance and initiations of new steps, thus actually getting the task done. Conclusion: The results of this study imply that even if the child with spina bifida seems to know how to do things, he/she still might have problems getting them done, efficiently, on his/her own. To reach autonomy in life, children with spina bifida may need particular guidance to learn not only how to do things but also how to get things done. Contribution to the practice: Occupational therapy for children with spina bifida should focus on the occupational performance, and not just on each performance component.
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| 8. |
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| 9. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Quality of performance of everyday activities in children with spina bifida: a population-based study.
- 2009
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Ingår i: Acta paediatrica (Oslo, Norway : 1992). - : Wiley. - 1651-2227 .- 0803-5253. ; 98:10, s. 1674-1679
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Tidskriftsartikel (refereegranskat)abstract
- Aim: The aim of this study was to evaluate the quality of the performance of everyday activities in children with spina bifida. Methods: Fifty children with spina bifida (of 65 children in a geographic cohort), aged 6 to 14 years, were evaluated with Assessment of Motor and Process Skills. Results: Compared with age-normative values, 60% of the children with spina bifida were found to have motor ability measures below 2 SD and 48% process ability measures below 2 SD. Most of the children with spina bifida had difficulties performing well-known everyday activities in an effortless, efficient and independent way, relating to both motor and process skills. The motor skills hardest to accomplish involved motor planning and the process skills hardest to accomplish were adaptation of performance and initiations of new steps, thus actually getting the task done. Conclusion: To reach autonomy in life, children with spina bifida may need particular guidance to learn not only how to do things but also how to get things done.
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| 10. |
- Peny-Dahlstrand, Marie, 1953, et al.
(författare)
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Relationen mellan autonomi och aktivitetsutförande hos barn ryggmärgsbråck
- 2012
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Ingår i: Abstract bok för konferensen; HAB 2012, "Fånga framtiden- möjligheter för ökad aktivitet och delaktighet. Örebro 17-19 april 2012. ; :13:e forskningskonferensen
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Konferensbidrag (refereegranskat)abstract
- Relationen mellan autonomi och aktivitetsutförande hos barn ryggmärgsbråck Bakgrund Autonomi, dvs förmågan att vara sin egen aktör i livet, utvecklas gradvis under uppväxten och anses som en viktig personlig förutsättning för delaktighet. Autonomi beskrivs ha två komponenter, dels exekutiv/utförandemässig autonomi och dels beslutsfattande autonomi. Nyare studier har visat att individer som föds med ryggmärgsbråck förutom de tidigare kända motoriska och urologiska konsekvenserna, ofta också har en kognitiv profil där exekutiva svårigheter som att initiera och problemlösa är vanliga. Andra studier har visat att barn och ungdomar med ryggmärgsbråck inte utvecklar autonomi i takt med typiskt utvecklade jämnåriga och att de som vuxna har låg grad av delaktighet i samhällslivet. Få forskningsstudier har sökt samband mellan autonomi/delaktighet och förmågan att initiera och driva igenom aktiviteter hos barn med ryggmärgsbråck. Syfte Syftet var att undersöka graden av autonomi i vardagssituationer hos barn med ryggmärgsbråck och undersöka om det fanns en relation mellan barnets grad av autonomi och hans/hennes färdighet att utföra aktiviteter. Ett andra syfte var att undersöka samstämmigheten mellan barnens och föräldrarnas uppfattning om barnets autonomi. Metod Deltagare i studien var 50 av de 65 barn födda med ryggmärgsbråck 1993-1999 som bodde i Västra Götaland, Halland och Värmland 061231 och deras föräldrar. Autonominivån hos barnet skattades av barnet själv och dess förälder, var för sig, med en anpassad svensk version av ”Autonomiskalan”. Barnens färdighet att utföra aktiviteter bedömdes via observation med instrumentet ”Assessment of Motor and Process Skills” (AMPS) vilket ger två utförandefärdighetsvärden, ett för motorisk färdighet och ett för processfärdighet. Relationen mellan barnets färdighetsvärden och deras autonominivå analyserades med logistisk regression. Graden av samstämmighet mellan barnets och föräldrarnas skattning analyserades med tre olika analysmetoder. Resultat Studien visade att barnen med ryggmärgsbråck hade låg autonomi i vardagssituationer som var målinriktade och krävde egen initiering och att både motoriska och processfärdigheter hade relation till barnets autonominivå, men att processfärdigheterna (dvs. att initiera och driva en aktivitet från start till mål) hade den starkaste relationen. Samstämmigheten mellan det enskilda barnets och hans/hennes förälders skattning var genomgående låg och barnet skattade i vissa fall sin autonomi lägre vad föräldern gjorde. Slutsats: För att kunna ge rätt stöd för förbättrad autonomi och delaktighet är det av yttersta vikt att utvecklingen av utförandefärdigheter, framförallt processfärdigheter, hos barn med ryggmärgsbråck bedöms och beskrivs. Nedsatt förmåga att initiera och ”få något gjort” är sannolikt mer hämmande för barnet än vad de motoriska funktionsnedsättningarna är. Det faktum att barnet med ryggmärgsbråck ofta har en annan uppfattning än sin förälder om sin autonomi pekar på vikten av att uppmärksamma bådas uppfattningar vid habiliteringsplanering.
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