| 1. |
- Chetpakdeechit, Woranuch, et al.
(författare)
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Social life aspects of young adults with cleft lip and palate: grounded theory approach.
- 2009
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Ingår i: Acta odontologica Scandinavica. - : Informa UK Limited. - 1502-3850 .- 0001-6357. ; 67:2, s. 122-8
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVES: The findings of many questionnaire and inventory studies suggest that people with cleft lip and/or palate report a decreased quality of life. Common problems include dissatisfaction with the external appearance of the lips and nose, speech problems, depression, and anxiety. This qualitative study aimed to explore the subjective perceptions and values of young adults with clefts, particularly with regard to their social lives. MATERIAL AND METHODS: Twelve persons participated in an in-depth interview. Among those, seven had a repaired isolated cleft palate involving only the hard/soft palate. Five had a repaired bilateral cleft lip and palate that had been a continuous lesion of the lip, the alveolar process, and the palate. A grounded theory approach was used to conduct and analyze the interviews. RESULTS: The study revealed seven important categories--hoping to be like other people, being treated differently from others, experiencing deviation from others, regarding oneself as being different from others, lack of recognition, low self-esteem, and receiving recognition from significant others--with hoping to be like other people as the core category. CONCLUSION: Young adults with either cleft lip and palate or isolated cleft palate who received recognition from significant others reported increased self-esteem and greater ability to cope with their social lives.
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| 2. |
- Hallberg, Ulrika, et al.
(författare)
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Living with Crouzon syndrome: transition from childhood to adulthood
- 2011
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Ingår i: Scandinavian Journal of Disability Research. - : Stockholm University Press. - 1745-3011 .- 1501-7419. ; , s. 199-211
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Tidskriftsartikel (refereegranskat)abstract
- Objective. The aim of this qualitative investigation is to study the subjective experiences of transition from childhood to adulthood in individuals with Crouzon syndrome. Material and methods. Telephone interviews were carried out with eight informants and data were analysed according to grounded theory. Results. A core category emerged labelled facing barriers when developing self-image, which illuminates the different barriers the child had to face when trying to develop a self-image during the transition from childhood to adulthood. Facing barriers should not be confused with the actual barriered development. These barriers are further illuminated in five descriptive categories. Conclusions. These children face a variety of stressful barriers when developing their self-image during the transition from childhood to adulthood. The produced psychological outcome seems to be related to a complex interaction among multiple variables, including variables related to the individual with Crouzon syndrome, treatment variables, parent and family variables and social variables.
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| 3. |
- Stavropoulos, Dimitrios, et al.
(författare)
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Living with Crouzon syndrome: How do young adults with Crouzon syndrome handle their life situation?
- 2011
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Ingår i: International Journal of Paediatric Dentistry. - 1365-263X. ; 21:1, s. 35-42
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Tidskriftsartikel (refereegranskat)abstract
- Background. Recent research has been focused on those attributes that appear to buffer a person against the stresses and strains of living with a visible difference. Aim. To provide some insight on how young adults with Crouzon syndrome handle their life. Design. Telephone interviews were carried out with eight Crouzon syndrome individuals (six males, two females, mean age 25.4 years) and data were analysed according to the qualitative method of grounded theory. Results. The informants’ main concern was to make the best of their situation, showing that even in adverse conditions, as in Crouzon syndrome, several individuals do find ways to live with their difference and to succeed in various aspects of life, using strategies they construct. Such strategies, as identified from the present investigation, were labelled: committed to an engaging activity, avoiding exposed situations, actively launching oneself, struggling with normalizing facial appearance, and lowering the expectations of finding a love partner. Conclusions. The adaptation of successful coping strategies seemed to be crucial in the quest of attainment of higher self-esteem. The more the participants in the study used the coping strategies they had developed over time, the better they handled their life situation, which led to enhanced well-being.
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