| 1. |
- Hansson, Sara Lina, et al.
(författare)
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Experienced consequences of being diagnosed with ADHD as an adult - a qualitative study
- 2015
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Ingår i: Bmc Psychiatry. - : Springer Science and Business Media LLC. - 1471-244X. ; 15:31
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Tidskriftsartikel (refereegranskat)abstract
- Background: Despite increasing knowledge of attention deficit hyperactivity disorder (ADHD) across the life span, there is still little research on adults' own experiences of being diagnosed with ADHD. The aim of the present study was to explore and describe patients' experiences and perceptions of being diagnosed with ADHD in adulthood. The study can be seen as an attempt to validate the diagnosis from a patient perspective. Methods: Twenty-one adults diagnosed with ADHD were individually interviewed. The interviews were open-ended and exploratory, analysed with a qualitative phenomenographical approach, and the results were described in categories. Results: Positive experiences were dominant, but there was a complex intra-and inter-individual variation of experiences. Descriptions focused on the diagnosis, on identity, and on life. The diagnosis was described as explaining a previously inexplicable life history, but was also questioned, both as a phenomenon and in relation to the individual (the diagnosis in focus). It was experienced as providing self-knowledge and increased value, but could also cause devaluation and concern about identity (identity in focus). It meant help to achieve a better life, but was also perceived to restrict possibilities and cause disappointment over lack of professional help. It could lead to a wish for an earlier diagnosis that could have spared suffering, as well as to a changed view of the participants' relatives (life in focus). All but one of the interviewees expressed important positive consequences of being diagnosed with ADHD. About half of them acknowledged negative aspects of being diagnosed, but none regretted going through the neuropsychiatric evaluation. Conclusions: From a patient perspective, there are major positive consequences of being diagnosed with ADHD, compared to the undiagnosed situation. Knowledge of the individual's combination of experiences is important for professionals, as these experiences can affect well-being and interfere with treatment. Negative experiences in particular might need to be addressed in the treatment work.
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| 2. |
- Danielsson, Louise, 1979, et al.
(författare)
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To sense and make sense of anxiety: Physiotherapists' perceptions of their treatment for patients with generalized anxiety.
- 2013
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Ingår i: Physiotherapy theory and practice. - : Informa UK Limited. - 1532-5040 .- 0959-3985. ; 29:8, s. 604-615
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Tidskriftsartikel (refereegranskat)abstract
- The generalized anxiety is characterized by long-term psychological and physiological discomfort. Pharmacological and psychotherapeutic interventions have been extensively examined, whereas knowledge is scant regarding other professional perspectives. This article focuses on the physiotherapeutic perspective on anxiety, exploring physiotherapists' perceptions of their treatment for patients with generalized anxiety. Semi-structured interviews were conducted with 10 physiotherapists working in psychiatry or primary health care. Data were analysed using qualitative content analysis, resulting in one main category and five subcategories. The main category "To sense and make sense of one's anxiety" reflects the idea that physiotherapy works through immediate, tangible bodily experiences to help a person understand and handle his or her anxiety better. Five subcategories reflected different aspects of this main category: (1) the body is the arena of anxiety, (2) to get in touch with oneself, (3) to get down-to-earth with oneself, (4) to make sense of bodily sensations, and (5) to gain trust in one's capability to handle anxiety. In conclusion, the gradual bodily awareness of sensations, to sense and make sense of anxiety in physiotherapy treatment, becomes an opportunity to find ways to withstand and to manage symptoms of anxiety, encouraging an embodied self-trust. The emphasis on the immediately lived body involves the potential to learn how to endure anxiety instead of running away from it, to discern and to understand different sensations, leading to an integration of anxiety as being part of oneself rather than overflowing oneself.
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| 3. |
- Friberg, Febe, 1950, et al.
(författare)
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Can a teaching and learning perspective deepen understanding of the concept of compliance? A theoretical discussion.
- 2005
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Ingår i: Scandinavian journal of caring sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 19:3, s. 274-9
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Tidskriftsartikel (refereegranskat)abstract
- Patients' noncompliance is regarded as a major problem in health care and efforts have been made to understand the mechanisms behind compliance and noncompliance. The concept of compliance has been analysed and criticized because of the limited way it defines the roles of patients and health professionals and for being supportive of the authority of health professionals. Attempts have been made to change the paternalistic meaning of the concept of compliance and alternative terms have been introduced. However, there is a lack of studies about the teaching and learning component of compliance. The aim of this theoretical article was to examine the meaning of the concept of compliance as is it used in health care, and relate it to a patient-centred, teaching and learning perspective. It is argued that instead of focusing on noncompliant patient behaviour, it would be more powerful to focus on the way the patients experience and understand and on how to create conditions for developing understanding, as this in turn might influence the behaviour or way of acting. It is suggested that the teaching part of compliance could be carried out by 'to follow and let oneself be followed', which means a teaching and learning situation where the health professional follows the patient, guided by patient experiences, and need for understanding. At the same time it means that following the patient's experiences creates possibilities for the health professional to reason and act in a way that the patient can follow. The concept of 'play' is used when putting 'to follow and let oneself be followed' into effect. To this end, the health professional needs to develop a considered pedagogical standpoint.
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| 4. |
- Gosman-Hedström, Gunilla, 1947, et al.
(författare)
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Strokerummet - en webbplats för lärande : Thematic stroke room - a website for learning
- 2010
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Ingår i: Vård i Norden. - : SAGE Publications. - 0107-4083. ; 30:2, s. 42-45
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Tidskriftsartikel (refereegranskat)abstract
- The widespread use of web-based resources has dramatically increased access to scientifically based information of use to both health professionals and the general public. Scientific results are, however, often hard for people outside the scientific community to understand. Moreover, access to large amounts of information of various kinds often places insurmountable demands on the readers to understand, assess and select what is relevant and trustworthy. This article describes the development of «Thematic Room Stroke- care, social care and rehabilitation» at Vårdalinstitutet, the Swedish Institute for Health Sciences. This is a Swedish project resulting from close cooperation between an editing committee and about 30 researchers. It aims to present research findings on a website that healthcare teams, patients and their families and the public can easily access and use. A syllabus and texts connected with each theme may be downloaded for use in local study circles. The idea is to stimulate the participants’ interest in learning independently and create a forum for dialogue and discussion in different contexts. Professionals use the website material regularly for classes and informing patients. It is hoped that an interactive forum to determine how the information is understood and used will provide important feedback on how the virtual Thematic Room Stroke may be further improved
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| 5. |
- Hansson Scherman, Marianne, 1944, et al.
(författare)
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Drug compliance and identity: reasons for non-compliance. Experiences of medication from persons with asthma/allergy.
- 2004
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Ingår i: Patient education and counseling. - : Elsevier BV. - 0738-3991. ; 54:1, s. 3-9
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to describe patient experiences of medication. Patients with asthma/allergy were interviewed in depth twice with 8 years between. The interviews were analysed according to the phenomenographic approach and three categories, one with four sub-categories, were identified: 'access to medicine is important to relieve discomfort and to avoid fear', 'medicine damages your body and your identity without curing the illness' (because 'you can become immune or addicted', 'the ability of your body to heal itself is weakened', 'your body's own signals are camouflaged' and 'you become stigmatised') and 'production and distribution of medicine is a profit-seeking commercial undertaking which is not primarily aimed at curing the patient'. Medication experiences were stable over time. Sociological and biological survival must be compared in an open discussion along with the patient's and health professional's different reasons for how they take or prescribe medication.
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| 6. |
- Hansson Scherman, Marianne, 1944, et al.
(författare)
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Refusing to be ill: a longitudinal study of patients' experiences of asthma/allergy.
- 2002
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Ingår i: Disability and rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 24:6, s. 297-307
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: The purpose of this study was to search for a deeper understanding of the ways patients with asthma/allergy experience their illness situation. METHOD: Thirty patients with a history of airway symptoms on allergen exposure and a positive skin prick test were included in the study. They took part in open-ended interviews in their homes twice at an interval of eight years, according to the phenomenographic approach. RESULTS: Fourteen different categories of experience were identified: 'knowing for oneself, 'body related', 'environment related', 'psychosomatic', 'magic', 'fatalism', 'compliance with medication', 'alternative medicine', 'health care', 'provocation', 'avoidance', 'normalization', 'normification' and 'pursuing life'. The analysis also showed that these categories, to varying degrees, were an expression of a desire to retain an ordinary healthy identity and its value. The longitudinal results showed that with time the patients distanced themselves from the medical perspective and found their own ways of thinking and acting in relation to their ill health, which is seen as strengthening for the identity. CONCLUSIONS: The different, individual ways patients with asthma/allergy developed in relation to the illness situation have a preserving effect on the identity, which ought to be considered in patient education and rehabilitation.
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| 7. |
- Karlsson Espmark, Ann-Kristin, 1952, et al.
(författare)
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Hearing confirms existence and identity--experiences from persons with presbyacusis.
- 2003
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Ingår i: International journal of audiology. - 1499-2027. ; 42:2, s. 106-15
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of the present qualitative study was to describe how elderly persons with presbyacusis experience living with that type of hearing loss. The ultimate goal is for these experiences to be used in personal-adjustment counselling in audiological rehabilitation. The study included seven men and seven women with mild-to-moderate hearing impairment of the typical presbyacusis type. Open-ended interviews were conducted with each person. The interviewees were analysed according to the phenomenographic approach, and 10 categories emerged: 'Conversation takes away or maintains identity', 'It's other people's fault that I can't hear', 'Other people make you realize you can't hear', 'Society makes you think you shouldn't mind about your hearing loss', 'It's natural to hear badly when you are old', 'You should hear well all your life', 'You want to keep a feeling of continuity in your daily life in spite of your hearing loss', 'You don't need to hear everything', 'You want to hear so you feel that you're alive', and 'You want to hear so you understand and keep yourself informed'. All these categories deal with identity or existence and form the basis for how the hearing impairment is experienced and managed. The subjects protected their identity in various ways, but above all by blaming their poor hearing on old age, and managing it with simple everyday strategies that did not break the feeling of continuity in everyday life. Not until they experienced the lack of sound as a lack of contact with life was there any interest in help in the form of hearing technology. There is a need for information about the possibility of rehabilitating presbyacusis, as hearing is important not only for communication and spatial orientation, but also as affirmation of our existence as human beings.
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| 8. |
- Rydeskog, Anna, et al.
(författare)
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Elderly people's experiences of resistance training
- 2005
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Ingår i: Advances in Physiotherapy. - : Informa UK Limited. - 1403-8196 .- 1651-1948. ; 7:4, s. 162-69
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the present qualitative phenomenographic study was to identify and describe elderly people's own experiences of resistance training. Eight women and seven men aged 63-87 years were interviewed. The results showed that resistance training was seen as an occupation, a way to get out, as unfamiliar, suitable and controllable. It was experienced to create togetherness and mental acuity and as not being permissible without other elderly people. The training felt good. It was experienced as affecting the body by relieving pain, preventing physical deterioration and illness, and by improving physical function, appearance and the ability to manage daily life. The experienced effects on the mind were increased appetite for life, calmness and enhanced self-esteem. Many different types of training are available to the physically capable elderly, but according to the experiences from the subjects in the present study, resistance training could be a very suitable type of training for the elderly with functional disorders as it is possible to perform despite physical limitations.
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| 9. |
- Willén, Carin, 1948, et al.
(författare)
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Group training in a pool causes ripples on the water: experiences by persons with late effects of polio.
- 2002
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Ingår i: Journal of rehabilitation medicine : official journal of the UEMS European Board of Physical and Rehabilitation Medicine. - 1650-1977. ; 34:4, s. 191-7
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of the present qualitative study was to describe how persons with late effects of polio experienced dynamic exercise in water in a group. Semi-structured interviews with 15 participants were carried out and analysed according to the phenomenographic approach. The results showed great variation in the way the participants experienced the group training. Fourteen different categories appeared focusing on three different aspects: the self, the training situation and the world around. It appears that the experienced effect of group training in water goes beyond improving physical functions.
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| 10. |
- Zidén, Lena, 1954, et al.
(författare)
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A life-breaking event: early experiences of the consequences of a hip fracture for elderly people
- 2008
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Ingår i: Clinical rehabilitation. - : SAGE Publications. - 0269-2155 .- 1477-0873. ; 22:9, s. 801-11
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Tidskriftsartikel (refereegranskat)abstract
- Objective: To explore and describe the consequences of an acute hip fracture as experienced by home-dwelling elderly people shortly after discharge from hospital.Design: Semi-structured interviews using the phenomenographic method.Subjects and setting: Eighteen subjects were interviewed in their own homes one month after discharge.Results: The interviewees described experiences of changes in their relation to the body, themselves, to others and to their whole life situation. These experiences were described as being limited in movement, having lost confidence in the body, becoming humble and grateful, respecting oneself and one's own needs, becoming more dependent on others, gaining more human contact and being treated in a friendly way by others, being secluded and trapped at home, feeling old, closer to death and having lost their zest for life, and taking one day at a time and being uncertain about the future.Conclusion: Experienced consequences of a hip fracture were multidimensional and involved dramatic changes in the interviewees' life situation, including existential thoughts and reappraisal of the years of life that remained. The results indicate that the fracture seemed not only to break the bone but also to cause social and existential cracks, as experienced in the early phase after the injury.
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