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Development of an i...
Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process
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- Algurén, Beatrix, 1977 (författare)
- Jönköping University,Gothenburg University,Göteborgs universitet,Institutionen för kost- och idrottsvetenskap,Department of Food and Nutrition, and Sport Science,The Jönköping Academy for Improvement of Health and Welfare,Department of Food and Nutrition, and Sport Science, Faculty of Education, University of Gothenburg, Göteborg, Sweden, and International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA
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- Ramirez, Jessily P (författare)
- International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA
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- Salt, Matthew (författare)
- International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA
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- Sillett, Nick (författare)
- International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA
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- Myers, Stacie N (författare)
- International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA
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- Alvarez-Cote, Albie (författare)
- International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA
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- Butcher, Nancy J (författare)
- Child Health Evaluative Sciences, Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada
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- Caneo, Luiz F (författare)
- Heart Institute, University of Sao Paulo Medical School, Sao Paulo, Brazil
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- Cespedes, Jaime A (författare)
- Fundacion Cardioinfantil- Instituto de Cardiologia, Universidad del Rosario, Bogota, Colombia
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- Chaplin, John, 1955 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics,Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Göteborg, Sweden
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- Ng, Kee Chong (författare)
- KK Women & Children's Hospital, Singapore
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- Garcia-Garcia, Juan J (författare)
- Hospital Sant Joan de Déu, Barcelona, Spain
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- Hazelzet, Jan A (författare)
- Department of Public Health, Erasmus Medical Centre, Rotterdam, The Netherlands
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- Klassen, Anne F (författare)
- Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada
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- Turquetto, Aida Luiza R (författare)
- Heart Institute, University of Sao Paulo Medical School, Sao Paulo, Brazil
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- Mew, Emma J (författare)
- Child Health Evaluative Sciences, The Hospital for Sick Children Research Institute, Toronto, Ontario, Canada
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- Morris, Michael (författare)
- Samuel Morris Foundation, Sydney, New South Wales, Australia, and Sydney Children's Hospital Networks, Sydney, New South Wales, Australia,Mindful Metrics, LLC, Cincinnati, Ohio, USA
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- Offringa, Martin (författare)
- Child Health Evaluative Sciences, Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada
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- O'Meara, Matthew (författare)
- NSW Health, Sydney, New South Wales, Australia
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Papp, James M (författare)
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- Rodrigo, Carlos (författare)
- Pediatrics, Germans Trias i Pujol University Hospital, Badalona, Catalunya, Spain, and Universitat Autònoma de Barcelona Facultat de Medicina, Bellaterra, Catalunya, Spain
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- Switaj, Timothy L (författare)
- U.S. Army, Boston, Massachusetts, USA
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- Mayer, Catalina Valencia (författare)
- Fundación CINDA - Universidad El Bosque, Bogotá, Colombia
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- Jenkins, Kathy J (författare)
- Boston Children’s Hospital, Boston, Massachusetts, USA
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(creator_code:org_t)
- 2020-12-11
- 2021
- Engelska.
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Ingår i: Archives of Disease in Childhood. - : BMJ. - 0003-9888 .- 1468-2044. ; 106:9, s. 868-876
- Relaterad länk:
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https://adc.bmj.com/...
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https://doi.org/10.1...
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https://gup.ub.gu.se...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- Objective To develop an Overall Pediatric Health Standard Set (OPH-SS) of outcome measures that captures what matters to young people and their families and recognising the biopsychosocial aspects of health for all children and adolescents regardless of health condition. Design A modified Delphi process. Setting The International Consortium for Health Outcomes Measurement convened an international Working Group (WG) comprised of 23 international experts from 12 countries in the field of paediatrics, family medicine, psychometrics as well as patient advisors. The WG participated in 11 video-conferences, through a modified Delphi process and 9 surveys between March 2018 and January 2020 consensus was reached on a final recommended health outcome standard set. By a literature review conducted in March 2018, 1136 articles were screened for clinician and patient-reported or proxy-reported outcomes. Further, 4315 clinical trials and 12 paediatric health surveys were scanned. Between November 2019 and January 2020, the final standard set was endorsed by a patient validation (n=270) and a health professional (n=51) survey. Results From a total of 63 identified outcomes, consensus was formed on a standard set of outcome measures that comprises 10 patient-reported outcomes, 5 clinician-reported measures, and 6 case-mix variables. The four developmental age-specific packages (ie, 0–5, 6–12, 13–17, 18–24 years) include either five or six measures with an average time for completion of 20min. Conclusions The OPH-SS is a starting point to drive value-based paediatric healthcare delivery from a global perspective for enhancing child and adolescent physical health and psychosocial well-being.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
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- Av författaren/redakt...
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Algurén, Beatrix ...
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Ramirez, Jessily ...
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Salt, Matthew
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Sillett, Nick
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Myers, Stacie N
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Alvarez-Cote, Al ...
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visa fler...
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Butcher, Nancy J
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Caneo, Luiz F
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Cespedes, Jaime ...
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Chaplin, John, 1 ...
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Ng, Kee Chong
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Garcia-Garcia, J ...
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Hazelzet, Jan A
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Klassen, Anne F
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Turquetto, Aida ...
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Mew, Emma J
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Morris, Michael
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Offringa, Martin
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O'Meara, Matthew
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Papp, James M
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Rodrigo, Carlos
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Switaj, Timothy ...
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Mayer, Catalina ...
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Jenkins, Kathy J
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- MEDICIN OCH HÄLSOVETENSKAP
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