SwePub
Sök i LIBRIS databas

  Extended search

WFRF:(Schanberg Laura E.)
 

Search: WFRF:(Schanberg Laura E.) > Horneff Gerd > A survey of nationa...

  • 1 of 1
  • Previous record
  • Next record
  •    To hitlist

A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis challenges and opportunities

Beukelman, Timothy (author)
Anink, Janneke (author)
Berntson, Lillemor 1957- (author)
show more...
Duffy, Ciaran (author)
Ellis, Justine A. (author)
Glerup, Mia (author)
Guzman, Jaime (author)
Horneff, Gerd (author)
Kearsley-Fleet, Lianne (author)
Klein, Ariane (author)
Klotsche, Jens (author)
Magnusson, Bo (author)
Minden, Kirsten (author)
Munro, Jane E. (author)
Niewerth, Martina (author)
Nordal, Ellen (author)
Ruperto, Nicolino (author)
Santos, Maria Jose (author)
Schanberg, Laura E. (author)
Thomson, Wendy (author)
van Suijlekom-Smit, Lisette (author)
Wulffraat, Nico (author)
Hyrich, Kimme (author)
show less...
 (publisher)
BIOMED CENTRAL LTD 2017
2017
English.
In: Pediatric Rheumatology. - 1546-0096. ; 15
  • swepub:Mat__t
Abstract Subject headings
Close  
  • Background: To characterize the existing national and multi-national registries and cohort studies in juvenile idiopathic arthritis (JIA) and identify differences as well as areas of potential future collaboration. Methods: We surveyed investigators from North America, Europe, and Australia about existing JIA cohort studies and registries. We excluded cross-sectional studies. We captured information about study design, duration, location, inclusion criteria, data elements and collection methods. Results: We received survey results from 18 studies, including 11 national and 7 multi-national studies representing 37 countries in total. Study designs included inception cohorts, prevalent disease cohorts, and new treatment cohorts (several of which contribute to pharmacosurveillance activities). Despite numerous differences, the data elements collected across the studies was quite similar, with most studies collecting at least 5 of the 6 American College of Rheumatology core set variables and the data needed to calculate the 3-variable clinical juvenile disease activity score. Most studies were collecting medication initiation and discontinuation dates and were attempting to capture serious adverse events. Conclusion: There is a wide-range of large, ongoing JIA registries and cohort studies around the world. Our survey results indicate significant potential for future collaborative work using data from different studies and both combined and comparative analyses.

Subject headings

Medical and Health Sciences  (hsv)
Medicin och hälsovetenskap  (hsv)

Keyword

Juvenile idiopathic arthritis
Registry
Observational study
Pharmacosurveillance
Pediatric rheumatology

Find in a library

To the university's database

  • 1 of 1
  • Previous record
  • Next record
  •    To hitlist

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

 
pil uppåt Close

Copy and save the link in order to return to this view