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Träfflista för sökning "WFRF:(Svalastog Anna Lydia 1966 ) srt2:(2010-2014);hsvcat:5"

Sökning: WFRF:(Svalastog Anna Lydia 1966 ) > (2010-2014) > Samhällsvetenskap

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Numrering	Referens	Omslagsbild	Hitta
1.	Svalastog, Anna Lydia, 1966-, et al. (författare) Distortion, confusion, and impasses : could a public dialogue within Knowledge Landscapes contribute to better communication and understanding of innovative knowledge? 2014 Ingår i: Croatian Medical Journal. - University of Zagreb : Diamond Open Access model. - 0353-9504 .- 1332-8166. ; 55:1, s. 54-60 Tidskriftsartikel (refereegranskat)abstract In contrast to former discussions focusing on dialogue between science, policy makers, and the public, the aim of this paper was to focus on the broader com-municative situation related to the innovative knowledge in general and bio-objects in particular and to introduce the concept of Knowledge Landscapes to conceptually capture the present communicative situation.
2.	Svalastog, Anna Lydia, 1966- (författare) Making it Transparent. On Naming, Framing and Administrating Biobank Research on Native People in Sweden 2013 Ingår i: New genetics and society (Print). - Taylor & Francis Group : Informa UK Limited. - 1463-6778 .- 1469-9915. ; 32:3, s. 209-242 Tidskriftsartikel (refereegranskat)abstract Despite more than 50 years of genetic research on Sámi people in Sweden, there has been very little engagement with the ethical issues related to this research. My aim is to investigate the ethical challenges in biobank research on Sámi people, to identify ethical challenges that have been overlooked and to find ethical solutions. In my historical research inquiry of published material and interviews with people that have participated in this research, my research questions have been: How are blood samples from Sámi people collected, codified, governed and analyzed? What ethical strategies have been utilized? My main findings are: Sweden acquired biobank collections from Sámi people that are not registered or cannot be traced through the biobank register at the Swedish National Board of Health and Welfare. These collections entail ethical challenges concerning how the donors are identified, how the material is categorized, the regional ethical committees, governance and Sámi representation. My suggestions focus on transparency and traceability, competence and native peoples' rights and representation in biobank-related activities.

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Typ av publikation: tidskriftsartikel (2)

Typ av innehåll: refereegranskat (2)

Författare/redaktör: Svalastog, Anna Lydi ... (2); Allgaier, Joachim (1); Martinelli, Lucia (1); Gajovic, Srecko (1)

Lärosäte: Uppsala universitet (2)

Språk: Engelska (2)

Forskningsämne (UKÄ/SCB): Samhällsvetenskap (2)Ta bort avgränsningen

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