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Development and eva...
Development and evaluation of the EOL-ICDQ as a measure of experiences, attitudes and knowledge in end-of-life in patients living with an implantable cardioverter defibrillator
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- Thylén, Ingela (författare)
- Östergötlands Läns Landsting,Linköpings universitet,Avdelningen för kardiovaskulär medicin,Hälsouniversitetet,Kardiologiska kliniken US
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- Wenemark, Marika (författare)
- Linköpings universitet,Avdelningen för samhällsmedicin,Hälsouniversitetet
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- Fluur, Christina (författare)
- Östergötlands Läns Landsting,Kardiologiska kliniken US
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- Strömberg, Anna (författare)
- Östergötlands Läns Landsting,Linköpings universitet,Avdelningen för omvårdnad,Hälsouniversitetet,Kardiologiska kliniken US
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- Bolse, Kärstin, 1947- (författare)
- Högskolan i Halmstad,Centrum för forskning om välfärd, hälsa och idrott (CVHI),Halmstad University, Sweden
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- Årestedt, Kristofer, 1968- (författare)
- Linköpings universitet,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Linköping Univ Hosp,iCARE,Division of Nursing Sciences, Linköping University, Linköping, Sweden,Avdelningen för omvårdnad,Hälsouniversitetet
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(creator_code:org_t)
- 2013-12
- 2014
- Engelska.
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Ingår i: European Journal of Cardiovascular Nursing. - London, United Kingdom : Oxford University Press (OUP). - 1474-5151 .- 1873-1953. ; 13:2, s. 142-151
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Abstract
Ämnesord
Stäng
- Background: Due to extended indications and resynchronization therapy, many implantable cardioverter defibrillator (ICD) recipients will experience progressive co-morbid conditions and will be more likely to die of causes other than cardiac death. It is therefore important to elucidate the ICD patients' preferences when nearing end-of-life. Instead of avoiding the subject of end-of-life, a validated questionnaire may be helpful to explore patients' experiences and attitudes about end-of-life concerns and to assess knowledge of the function of the ICD in end-of-life. Validated instruments assessing patients' perspective concerning end-of-life issues are scarce. Aim: The purpose of this study was to develop and evaluate respondent satisfaction and measurement properties of the Experiences, Attitudes and Knowledge of End-of-Life Issues in Implantable Cardioverter Defibrillator Patients' Questionnaire' (EOL-ICDQ). Methods: The instrument was tested for validity, respondent satisfaction, and for homogeneity and stability in the Swedish language. An English version of the EOL-ICDQ was validated, but has not yet been pilot tested. Results: The final instrument contained three domains, which were clustered into 39 items measuring: experiences (10 items), attitudes (18 items), and knowledge (11 items) of end-of-life concerns in ICD patients. In addition, the questionnaire also contained items on socio-demographic background (six items) and ICD-specific background (eight items). The validity and reliability properties were considered sufficient. Conclusions: The EOL-ICDQ has the potential to be used in clinical practice and future research. Further studies are needed using this instrument in an Anglo-Saxon context with a sample of English-speaking ICD recipients.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
Nyckelord
- Cognitive interviewing
- end-of-life questionnaire
- implantable cardioverter defibrillator
- proactive communication
- psychometric testing
- respondent satisfaction
- Health and Caring Sciences
- Hälsovetenskap
- MEDICINE
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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