| 1. |
- Persson, Lena, 1951-, et al.
(författare)
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Acute leukaemia and malignant lymphoma patients' experiences of disease, treatment and nursing care during the active treatment phase : an explorative study
- 1995
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Ingår i: European Journal of Cancer Care. - : John Wiley & Sons Inc.. - 0961-5423 .- 1365-2354. ; 4:3, s. 133-142
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Tidskriftsartikel (refereegranskat)abstract
- Five acute leukaemia or high malignant lymphoma patients at a hospital in southern Sweden were interviewed about their daily living problems, their coping strategies and their opinions about the nursing care they received during the active phase of their treatment. In addition the EORTC QLQ-C30, the Global Life Quality and the Sense of Coherence scales were administered. The data were analysed from a hermeneutic phenomenological perspective and interpreted to indicate that the patients sensed a threat to their lives, loss of control and having to live in uncertainty stemming from the disease and the treatment. They had problems with such things as fatigue, diarrhoea, nausea and vomiting, loss of appetite, sore mouth, and high temperature. However they seemed to minimise the importance of these problems and instead focused on gaining control of the situation, developing their knowledge of the disease and relying on the support of their family. Contradictions appeared in their statements about the quality of care; the information given was said to be good but difficult to understand, though the quality of the nursing care was judged to be high it had to be asked for i.e. help was received on request. In conclusion the entire situation of the patients perspective of both from the family and the nurses, needs to be studied in further research in order to fully understand the patients´ coping strategies and how nursing care can support them.
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| 2. |
- Persson, Lena, 1951-, et al.
(författare)
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Spouses' view during their partners' illness and treatment
- 1998
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Ingår i: Cancer Nursing. - : Lippincott Williams & Wilkins. - 0162-220X .- 1538-9804. ; 21:2, s. 97-105
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Tidskriftsartikel (refereegranskat)abstract
- Nine spouses of people who had suffered from acute leukaemia or highly malignant lymphoma were interviewed about their experiences of everyday life throughout their partner’s illness and treatment, and their view of the professional care provided. The transcribed texts were subjected to phenomenological-hermeneutic analysis. The spouses felt they were in a situation of overall severe crisis i.e. experiencing feelings of distress, restrictions and limited or lack of support. The analysis revealed three family types: the couple acting as a unit, the couple acting independently on equal terms, and the couple acting separately with the spouse in a subordinate position. The spouses´ evaluation of the entire experience varied according to the family type and the spouses´ personal resources, which influenced the availability and utilization of their social network and the support of health care staff. Contentment was related to the couple acting as a unit or the couple acting independently on equal terms and taking control over the situation, actively asking for support and requiring the staff to meet their needs. Discontentment was related to subordination of the spouse to the partner or to health care staff, and failure to obtain support within the couple or from others. Empowering the spouses may mean helping them develop their skills, providing opportunities and authority and gaining access to resources based on knowledge of the family type, the consent of the partner and the spouses´ freedom to make choices. This may well lead to increased efficiency and have positive effects for the patients, the spouses and for them both as a couple.
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| 3. |
- Persson, Lena, 1951-
(författare)
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Att vara anhörig till den som drabbas av akut leukemi
- 1997
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Konferensbidrag (refereegranskat)abstract
- Syftet med studien var att beskriva den anhöriges syn på sin egen situation i samband med att deras partner drabbats av AL eller HML, genom behandlingen och efter det att sjukdomen gått i remission. Syftet var vidare att undersöka hur den anhöriges egna behov möttes och deras upplevelse av sjukvården.
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| 4. |
- Persson, Lena, 1951-
(författare)
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Life stories narrated by people who have had acute leukemia or highly malignant lymphoma
- 1999
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Konferensbidrag (refereegranskat)abstract
- Eighteen former patients in remission after acute leukemia or highly malignant lymphoma were interviewed about their daily life experiences prior to the diagnosis, during treatment and in their current life. The transcribed texts were analyzed from a phenomenological-hermeneutic perspective, expanded by their medical and social history as related in interviews. Living through the disease and treatment meant having been through a severe traumatic crisis that implied an overwhelming threat to their lives physically and existentially. The analysis revealed three groups, according to their evaluation of the entire experiences; Believed in life, fought for it and came through with increased strength; Life goes on, adapted to it and found a balance in existence; Life was over, felt out of control and lost the belief in life. The two first groups ascribed meaning to the experience they had been through, and evaluated it as something inevitable part of life. The third group was not through the crisis and evaluated their situation with bitterness. Their situation had similarities with post-traumatic stress syndromes. This shows the importance of offering long-term help in crisis management.
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| 5. |
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| 6. |
- Persson, Lena, 1951-, et al.
(författare)
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Survivors of acute leukaemia and highly malignant lymphoma : retrospective views of daily life problems during treatment and when in remission
- 1997
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Ingår i: Journal of Advanced Nursing. - 0309-2402 .- 1365-2648. ; 25:1, s. 68-78
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Tidskriftsartikel (refereegranskat)abstract
- Fifty-four former patients, in remission after acute leukaemia or highly malignant lymphoma, responded to a questionnaire covering physical problems, view of help received, who was most helpful during the treatment phase, and the impact of the disease and treatment on their current life. Energy loss and nutritional problems were most troublesome during the treatment phase, signifying many other physical problems. Patients with acute leukaemia had more problems, and thought the care was worse than did patients with highly malignant lymphoma. Serious physical problems correlated with low satisfaction with practical help received, indicating that the nurses failed to meet the needs of those suffering the most. Reduced psychological and sexual energy persisted in remission, showed no correlation with the extent of physical problems during the treatment phase, but correlated with current existential problems and sensitivity to infections, with a great need for intimate help and counselling and with a low Sense of Coherence. Family relationships were said to have improved, while work and finances were negatively affected. The results indicate that nursing care should actively focus physical problems, especially the energy loss and nutritional problems. The overwhelming fatigue hinders the patient to take care of physical aspects for her/him self, and may be overlooked by nurses since their motor capability seem intact. The long term effect of the illness means reduced psychological and sexual energy and high degree of existential problems and sensitivity to infections, which indicates the importance of follow-up care and perhaps especially for counselling for the long-term reactions with disturbed equilibrium.
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| 7. |
- Persson, Lena, 1951-
(författare)
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Survivors of acute leukaemia and highly malignant lymphoma- retrospective views of daily life problems during treatment and remission.
- 1996
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Konferensbidrag (refereegranskat)abstract
- The purpose of this study was to investigate retrospectively the experience of the treatment and nursing care provided to AL and HML patients in remission, and how the disease and treatment affected their current life. A further purpose was to investigate the relationship between the patients´ previous experiences of the nursing care and their current situation. This study showed that energy loss and nutritional problems predominate during the treatment phase. They should perhaps be the central focus for nurses in the care of AL and HML patients, because the extent of these problems also indicated the presence of other physical problems. The overwhelming fatigue hinders the patient from doing things and from physically taking care of her/himself, and may be overlooked by the nurses since the patients motor capability may seem intact. Regular systematic assessment and properly adapted nursing care may lead to early detection and nursing intervention. This, may in turn decrease the emotional strain of having a life-threatening disease. When in remission, data indicated reduced psychological and sexual energy, existential problems along with sensitivity to infections, which implies the need for systematic follow-up care, including counselling. The much reduced psychological and sexual energy and the serious existential problems together with sensitivity to infections may lead to a persistent crisis reaction. It makes sense to establish strategies for identifying and treating this syndrome within a context of comprehensive follow-up care including prior emotional adjustment, the presence of environmental support and the offer of planned counselling.
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