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| 2. |
- Tunon, Håkan, et al.
(författare)
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Ethical codes of conduct for research related to Indigenous peoples and local communities – core principles, challenges and opportunities
- 2016
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Ingår i: Ethics in Indigenous research : past experiences - future research. - Umeå : Vaartoe - Centre for Sami Research. - 9789176014578 ; :7, s. 57–80-
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Bokkapitel (refereegranskat)abstract
- Codes and guidelines related to the rights of and respect for Indigenous and local communities and their knowledge have been developed during the last decades. A milestone is the UN Convention on Biological Diversity (CBD) where the parties have agreed “to respect, preserve and maintain knowledge, innovations and prac-tices of Indigenous and local communities embodying traditional lifestyles”. This study analyses core ethical principles in 13 codes and guidelines. Of 18 principles listed six were identified as core principles. A discussion on challenges and oppor-tunities in implementing these is made with the reference to the Swedish setting and to a Saami context. The codes are created with good intentions and contribute to raising general ethical awareness. However, in Sweden awareness of the relevant guidelines is low among researchers, in ethical committees of universities as well as in local communities. There is also a risk that the elements in the guidelines will be administrative items to tick off rather than favouring a good working relationship between the research team and the local community.
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| 3. |
- Heijne, Camilla von, 1970-
(författare)
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När livet vänder
- 2017. - 1
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Ingår i: Välkommen hit, välkommen hem. - Uppsala : Litteraturcentrum Uppsala. - 9789198454901 ; , s. 58-59
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Bokkapitel (populärvet., debatt m.m.)
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| 4. |
- Saldert, Charlotta, 1966, et al.
(författare)
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Conversation partner training with spouses of persons with aphasia : A pilot study using a protocol to trace relevant characteristics
- 2013
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Ingår i: Aphasiology. - Abingdon : Routledge. - 0268-7038 .- 1464-5041. ; 27:3, s. 271-292
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Tidskriftsartikel (refereegranskat)abstract
- Background: Conversation partner training can be effective in improving communication in aphasia. However, there is a need for further research about effects of specific training programmes as well as about the relevant characteristics of the conversation partners who are to be candidates for training.Aims: This pilot study explores the applicability of an adaptation of a conversation partner training programme. In addition, a protocol for assessment of variables relating to the person with aphasia and the conversation partner that may be involved in changes in conversational interaction is examined.Methods & Procedures: Three dyads with persons with aphasia and their spouses participated in this explorative study with a case-series design. The training outcome was monitored with measures of perceived functional communication and analysis of multiple video-recorded natural conversations obtained at baseline, post intervention, and at a 12-week follow-up. Repeated measures of comprehension, word fluency, and psychological well-being were obtained as well as descriptive measures of the executive function and a profiling of attitudes and behaviour in communication in the spouses.Outcomes & Results: All three persons with aphasia and two of the spouses reported a slight improvement in the measure of perceived functional communication. This perception of improvement was also reflected in blinded, independent assessments of ability to support communication in conversations for the two spouses who reported improvement. The profiling of the third spouse indicated problems in attitudes to communication and also in aspects of executive function, and may account for the lack of intervention effects seen in the third dyad.Conclusions: The results show that intervention with the adapted training programme may be effective. It might be argued that the outcome measures as well as other measures fulfil their purpose. The profiling of relevant traits in the conversation partner may be useful, although the prognostic validity of the instruments needs to be further evaluated. © 2013 Copyright Taylor and Francis Group, LLC.
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| 5. |
- Karlsson, Eva M., 1957-
(författare)
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Livet nära döden : Situationer, status och social solidaritet vid vård i livets slutskede
- 2008
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Palliative home care is largely intended for patients diagnosed as having terminal cancer. The purpose of the care is to alleviate the symptoms and improve the patient’s well-being as life comes to a close. A further objective is to help the patient to die with as much dignity and grace as possible.The aim of this dissertation is to show how palliative home care is shaped, reshaped and linked together through the interactions of the care-related actors, and also to examine how people registered within palliative home care are construed as individuals and patients in the tension between normative conceptions about what a patient is or ought to be and the belief in the individual as an autonomous subject. Empirical data has been collected by means of observations and interviews. During the fieldwork I accompanied the staff on their visits to patients’ homes and took part in different formal and informal staff-related activities.In spite of palliative home care being supposedly based on a holistic ideal, it is clear that it is the medical order that dominates the care. According to this, the medical knowledge of the actors within the caring situation also forms the basis of their hierarchical position.Palliative care’s historiography, descriptions of the good or natural death, formal and informal meetings and the ideology of the good home are all examples of factors involved in the creation and interconnection of palliative home care. Such care is also created in relation to “other care”, where a negative presentation of “other care” serves to highlight palliative home care as “good care”.Ideas of “the good” permeate palliative home care. However, in the staff’s eagerness to do good there is the risk that they will disregard the patient’s will and wishes and instead do what they think is best for the patient.
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| 6. |
- Lerner, Henrik, et al.
(författare)
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Vad är traditionell och lokal kunskap?
- 2010
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Ingår i: Nycklar till kunskap. - Stockholm : Kungl. Skogs- och Lantbruksakademien & Centrum för biologisk mångfald. - 9789185205936 ; , s. 41-57
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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