| 1. |
- Rexhepi, Hanife, 1984-, et al.
(författare)
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Cancer patients’ information seeking behavior related to online electronic healthcare records
- 2021
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Ingår i: Health Informatics Journal. - : Sage Publications. - 1460-4582 .- 1741-2811. ; 27:3, s. 1-12
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Tidskriftsartikel (refereegranskat)abstract
- Patients’ online access to their EHR together with the rapid proliferation of medical information on the Internet has changed how patients use information to learn about their health. Patients’ tendency to turn to the Internet to find information about their health and care is well-documented. However, little is known about patients’ information seeking behavior when using online EHRs. By using information horizons as an analytical tool this paper aims to investigate the information behavior of cancer patients who have chosen to view their EHRs (readers) and to those who have not made that option (non-readers). Thirty interviews were conducted with patients. Based on information horizons, it seems that non-reading is associated with living in a narrower information world in comparison to readers. The findings do not suggest that the smallness would be a result of active avoidance of information, or that it would be counterproductive for the patients. The findings suggest, however, that EHRs would benefit from comprehensive linking to authoritative health information sources to help users to understand their contents. In parallel, healthcare professionals should be more aware of their personal role as a key source of health information to those who choose not to read their EHRs.
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| 2. |
- Memedi, Mevludin, 1983-, et al.
(författare)
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Automatic Spiral Analysis for Objective Assessment of Motor Symptoms in Parkinson's Disease
- 2015
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Ingår i: Sensors. - : MDPI AG. - 1424-8220. ; 15:9, s. 23727-23744
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Tidskriftsartikel (refereegranskat)abstract
- A challenge for the clinical management of advanced Parkinson's disease (PD) patients is the emergence of fluctuations in motor performance, which represents a significant source of disability during activities of daily living of the patients. There is a lack of objective measurement of treatment effects for in-clinic and at-home use that can provide an overview of the treatment response. The objective of this paper was to develop a method for objective quantification of advanced PD motor symptoms related to off episodes and peak dose dyskinesia, using spiral data gathered by a touch screen telemetry device. More specifically, the aim was to objectively characterize motor symptoms (bradykinesia and dyskinesia), to help in automating the process of visual interpretation of movement anomalies in spirals as rated by movement disorder specialists. Digitized upper limb movement data of 65 advanced PD patients and 10 healthy (HE) subjects were recorded as they performed spiral drawing tasks on a touch screen device in their home environment settings. Several spatiotemporal features were extracted from the time series and used as inputs to machine learning methods. The methods were validated against ratings on animated spirals scored by four movement disorder specialists who visually assessed a set of kinematic features and the motor symptom. The ability of the method to discriminate between PD patients and HE subjects and the test-retest reliability of the computed scores were also evaluated. Computed scores correlated well with mean visual ratings of individual kinematic features. The best performing classifier (Multilayer Perceptron) classified the motor symptom (bradykinesia or dyskinesia) with an accuracy of 84% and area under the receiver operating characteristics curve of 0.86 in relation to visual classifications of the raters. In addition, the method provided high discriminating power when distinguishing between PD patients and HE subjects as well as had good test-retest reliability. This study demonstrated the potential of using digital spiral analysis for objective quantification of PD-specific and/or treatment-induced motor symptoms.
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| 3. |
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| 4. |
- Paçacı, Görkem, et al.
(författare)
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Towards a visual compositional relational programming methodology
- 2012
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Ingår i: Diagrams 2012. ; , s. 17-19
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Konferensbidrag (refereegranskat)abstract
- We present a new visual programming method, based on Combilog, a compositional relational programming language. In this paper we focus on the compositional aspect of Combilog, the make operator, visually implementing it via a modification of Higraph diagrams, in an attempt to overcome the obscurity and complexity in the textual representation of this operator.
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| 5. |
- Liu, Yuqi, et al.
(författare)
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Integration of Multi-scale Spatial Digital Twins in Metaverse Based on Multi-dimensional Hash Geocoding
- 2024
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Ingår i: IMX '24. - : Association for Computing Machinery (ACM). - 9798400705038 ; , s. 56-63
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Konferensbidrag (refereegranskat)abstract
- With the popularization of the metaverse, virtual reality mapping technology based on digital twins has generated a large amount of spatial data. These data are multidimensional, multi-scale, mobile, and distributed. In order to fully utilize these data, we propose a non mutation multidimensional hash geocoding that can organize and store data with geographic features, and achieve data mapping at different scales from macro to micro. The mapping between them can achieve joint utilization of data of various scales. On this basis, we propose a block network secure storage mapping model for spatial digital twins, which can securely and reliably organize and map spatial data. This article also looks forward to the possible emergence of digital twins of different dimensions and scales in the future metaverse, and proposes an adaptive 3D reconstruction method based on this to adapt to digital twins models of different scales in the metaverse. On the basis of our work, we will further promote the development of the spatial digital twin metaverse.
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| 6. |
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| 7. |
- Kujala, Sari, et al.
(författare)
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Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
- 2024
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Ingår i: International Journal of Medical Informatics. - : Elsevier. - 1386-5056 .- 1872-8243. ; 181
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Tidskriftsartikel (refereegranskat)abstract
- INTRODUCTION: Poor usability is a barrier to widespread adoption of electronic health records (EHR). Providing good usability is especially challenging in the health care context, as there is a wide variety of patient users. Usability benchmarking is an approach for improving usability by evaluating and comparing the strength and weaknesses of systems. The main purpose of this study is to benchmark usability of patient portals across countries. METHODS: A mixed-methods survey approach was applied to benchmark the national patient portals offering patient access to EHR in Estonia, Finland, Norway, and Sweden. These Nordic countries have similar public healthcare systems, and they are pioneers in offering patients access to EHR for several years. In a survey of 29,334 patients, both patients' quantitative ratings of usability and their qualitative descriptions of very positive and very negative peak experiences of portal use were collected. RESULTS: The usability scores ranged from good to fair level of usability. The narratives of very positive and very negative experiences included the benefits of the patient portals and experienced usability issues. The regression analysis of results showed that very positive and negative experiences of patient portal use explain 19-35% of the variation of usability scores in the four countries. The percentage of patients who reported very positive or very negative experiences in each country was unrelated to the usability scores across countries. CONCLUSIONS: The survey approach could be used to evaluate usability with a wide variety of users and it supported learning from comparison across the countries. The combination of quantitative and qualitative data provided an approximation of the level of the perceived usability, and identified usability issues to be improved and useful features that patients appreciate. Further work is needed to improve the comparability of the varied samples across countries.
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| 8. |
- Grünloh, Christiane, 1980-, et al.
(författare)
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"why do they need to check me?" patient participation through ehealth and the doctor-patient relationship : Qualitative study
- 2018
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Ingår i: Journal of Medical Internet Research. - : J M I R Publications, Inc.. - 1438-8871. ; 20:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: Roles in the doctor-patient relationship are changing and patient participation in health care is increasingly emphasized. Electronic health (eHealth) services such as patient accessible electronic health records (PAEHRs) have been implemented to support patient participation. Little is known about practical use of PAEHR and its effect on roles of doctors and patients. Objective: This qualitative study aimed to investigate how physicians view the idea of patient participation, in particular in relation to the PAEHR system. Hereby, the paper aims to contribute to a deeper understanding of physicians' constructions of PAEHR, roles in the doctor-patient relationship, and levels and limits of involvement. Methods: A total of 12 semistructured interviews were conducted with physicians in different fields. Interviews were transcribed, translated, and a theoretically informed thematic analysis was performed. Results: Two important aspects were identified that are related to the doctor-patient relationship: roles and involvement. The physicians viewed their role as being the ones to take on the responsibility, determining treatment options, and to be someone who should be trusted. In relation to the patient's role, lack of skills (technical or regarding medical jargon), motives to read, and patients' characteristics were aspects identified in the interviews. Patients were often referred to as static entities disregarding their potential to develop skills and knowledge over time. Involvement captures aspects that support or hinder patients to take an active role in their care. Conclusions: Literature of at least two decades suggests an overall agreement that the paternalistic approach in health care is inappropriate, and a collaborative process with patients should be adopted. Although the physicians in this study stated that they, in principle, were in favor of patient participation, the analysis found little support in their descriptions of their daily practice that participation is actualized. As seen from the results, paternalistic practices are still present, even if professionals might not be aware of this. This can create a conflict between patients who strive to become more informed and their questions being interpreted as signs of critique and mistrust toward the physician. We thus believe that the full potential of PAEHRs is not reached yet and argue that the concept of patient empowerment is problematic as it triggers an interpretation of "power" in health care as a zero-sum, which is not helpful for the maintenance of the relationship between the actors. Patient involvement is often discussed merely in relation to decision making; however, this study emphasizes the need to include also sensemaking and learning activities. This would provide an alternative understanding of patients asking questions, not in terms of "monitoring the doctor" but to make sense of the situation.
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| 9. |
- Franco, Alejandro A., et al.
(författare)
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Boosting Rechargeable Batteries R&D by Multiscale Modeling: Myth or Reality?
- 2019
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Ingår i: Chemical Reviews. - : American Chemical Society (ACS). - 0009-2665 .- 1520-6890. ; 119:7, s. 4569-4627
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Tidskriftsartikel (refereegranskat)abstract
- This review addresses concepts, approaches, tools, and outcomes of multiscale modeling used to design and optimize the current and next generation rechargeable battery cells. Different kinds of multiscale models are discussed and demystified with a particular emphasis on methodological aspects. The outcome is compared both to results of other modeling strategies as well as to the vast pool of experimental data available. Finally, the main challenges remaining and future developments are discussed.
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| 10. |
- Kavathatzopoulos, Iordanis
(författare)
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Information Technology as a tool for democratic skills
- 2007
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Ingår i: Forms of democracy in education. - 9789607860750 ; , s. 155-162
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Konferensbidrag (refereegranskat)abstract
- Democracy does not depend only on political conditions and processes in society. Psychological conditions and processes of participating persons or citizens are also important. Dialog, for example, is necessary for democracy. But dialog does not occur among people who are absolutely convinced about the truth of their ideas. A personal critical attitude toward own beliefs is a necessary precondition for dialog and democracy. How can IT train for self-criticism, systematic searching and critical thinking? This paper presents two IT-tools, a micro-world simulation of society and a decision support system, which can be used to stimulate autonomous thinking. Autonomous thinking is unconstraint, self-critical, systematic and holistic problem solving and decision making. Both these tools can be used in distance education for democracy using the Internet.
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