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- Linehan, Christine, et al.
(author)
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COVID-19 IDD : A global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers
- 2020
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In: HRB open research. - London : F1000 Research Ltd. - 2515-4826. ; 3
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Journal article (peer-reviewed)abstract
- Background: This protocol outlines research to explore family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers. Evidence suggests that people with intellectual and developmental disabilities experience disparities in healthcare access and utilisation. This disparity was evident early in the pandemic when discussions arose regarding the potential exclusion of this population to critical care.Methods: An anonymous online survey will be conducted with caregivers, both family members and paid staff, to explore their perceptions of the impact of COVID-19 in terms of demographics, living arrangements, access to services, social distancing, and carer wellbeing. The survey will be developed by the research team, many of whom are experts in intellectual disability within their own jurisdictions. Using back-translation our team will translate the survey for distribution in 18 countries worldwide for international comparison. The survey team have extensive personal and professional networks and will promote the survey widely on social media with the support of local disability and advocacy agencies. Statistical descriptive and comparative analyses will be conducted. Ethical approval has been obtained for this study from University College Dublin's Human Research Ethics Committee (HS-20-28-Linehan).Dissemination: Study findings will be prepared in a number of formats in order to meet the needs of different audiences. Outputs will include academic papers, lessons learned paper, practice guidelines, reports, infographics and video content. These outputs will be directed to families, frontline and management delivering disability services, national-level policy makers, healthcare quality and delivery authorities, national pandemic organisations and international bodies.
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| 2. |
- Ahlström, Gerd, et al.
(author)
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Ageing people with intellectual disabilities and the association between frailty factors and social care : A Swedish national register study
- 2022
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In: Journal of Intellectual Disabilities. - Thousand Oaks, CA : Sage Publications. - 1744-6295 .- 1744-6309. ; 26:4, s. 900-918
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Journal article (peer-reviewed)abstract
- The aim of this study was to describe the social care provided for different age groups of people with intellectual disability, 55 years or above, and to investigate the association between such care and frailty factors for those with diagnosed level of intellectual disabilities. Descriptive and logistic regression analyses were used. Commonest forms of social care among the 7936 people were Residential care, Daily activities and Contact person. Home help and Security alarm increased with age. The frailty factors significantly associated with increased social care were age, polypharmacy and severe levels of intellectual disabilities. Persons most likely to be in residential care were in the age group 65–79 with polypharmacy and severe disability. The results indicate a need for further research of how frailty factors are considered in social care and longstanding medication, especially then severe intellectual disability hinders communication. A national strategic plan for preventive interventions should be developed to ensure the best possible healthy ageing. © The Author(s) 2021.
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| 3. |
- German Millberg, Lena, 1958-, et al.
(author)
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Academic learning for specialist nurses: a Grounded Theory study
- 2014
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In: Nurse Education in Practice. - Oxford : Elsevier. - 1471-5953 .- 1873-5223. ; 14:6, s. 714-721
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Journal article (other academic/artistic)abstract
- The aim was to explore the major concerns of specialist nurses pertaining to academic learning during their education and initial professional career. Specialist nursing education changed in tandem with the European educational reform in 2007. At the same time, greater demands were made on the healthcare services to provide evidence-based and safe patient-care. These changes have influenced specialist nursing programmes and consequently the profession. Grounded Theory guided the study. Data were collected by means of a questionnaire with open-ended questions distributed at the end of specialist nursing programmes in 2009 and 2010. Five universities were included. Further, individual, pair and group interviews were used to collect data from 12 specialist nurses, 5-14 months after graduation. A major concern for specialist nurses was that academic learning should be "meaningful" for their professional future. The specialist nurses' "meaningful academic learning process" was characterised by an ambivalence of partly believing in and partly being hesitant about the significance of academic learning and partly receiving but also lacking support. Specialist nurses were influenced by factors in two areas: curriculum and healthcare context. They felt that the outcome of contribution to professional confidence was critical in making academic learning meaningful.
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| 4. |
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Häst och lärande – ett område under utveckling : Bidrag från Fjärde Nordiska Forskningsseminariet om Hästunderstödda Insatser 16-17 september 2022
- 2024
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Reports (pop. science, debate, etc.)abstract
- Texterna i denna arbetsrapport bygger på presentationer vid Det Fjärde Nordiska Forskningsseminariet om Hästunderstödda Insatser som ägde rum den 16–17 september 2022 på Stall Kungsgården, Drottningholm, Stockholm. Seminariet organiserades i ett samarbete mellan Stiftelsen Hippocampus (Stall Kungsgården), Marie Cederschiöld högskola och Organisationen för hästunderstödda insatser. Seminariets titel Häst och lärande – ett område under utveckling var temat för seminariet som samlade cirka 70 nordiska deltagare. I den här rapporten presenteras 9 av de 13 bidragen i reviderad form.Redaktörerna för den här rapporten, Henrik Lerner, Henrika Jormfeldt och Gunilla Silfverberg, har alla tre forskat kring hästunderstödda insatser inom hälso- och sjukvården.KAPITELLärande och häst. Gunilla SilfverbergSynen på hästen – en nyckelfaktor i HUI och annan hästverksamhet. Susanne LarssonExpanding the toolbox and stories to share - animal assisted therapy learning by doing. Aurora Brønstad, Anne-Grethe T. Berg, Ingela Enmarker och Tobba SudmannKursen djur i vård på sjuksköterskeprogrammet: hur kunskap om hästunderstödda insatser kan berika lärandet. Henrik LernerIf it’s safe and it’s successful, then it’s ok: om upplevelsebaserat lärande som en nyckelfaktor i hästunderstödda insatser. Mia HarriHäst och människa tillsammans – lärande under aktivitet riktad till personer med intellektuell funktionsnedsättning. Marie Gustavsson och Charlotte LundgrenFallstudier och utforskande partnerskap – en modell för lärande och systematisk kunskapsutveckling inom hästunderstödda insatser. Margareta Håkanson, Kristina Nietsche och Lena SundénNärståendes bidrag till professionellt lärande i en hästunderstödd intervention för personer med schizofreni eller liknande psykossjukdom. Linda Fridén, Sally Hultsjö, Marie Lydell och Henrika JormfeldtSamordningsprocess hästunderstödda insatser 2021–2022. Karolina Lagerlund och Elin Leeapple
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