| 1. |
- Jegermalm, Magnus, et al.
(författare)
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Caregiving and volunteering among older people in Sweden - prevalences and profiles
- 2009
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Ingår i: Journal of Aging & Social Policy. - : Haworth Press. - 0895-9420 .- 1545-0821. ; 21:4, s. 352-373
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Tidskriftsartikel (refereegranskat)abstract
- This study examines the role of older people in Swedish society by exploring the prevalence of their informal caregiving and volunteering and by analyzing the profiles of these contributors of unpaid work. Data were collected by means of telephone interviews in a Swedish representative survey conducted in 2005. Our analysis reveals three distinct profiles of people involved in unpaid activities. One of these consists of those involved both in informal helpgiving and volunteering, a group that has been labeled “super helpers” or “doers” in earlier research. It is important for social policy planners to recognize these groups of older people and better understand the dynamics of their unpaid work in order to ascertain whether they might need support as providers and to enhance their well-being. There does not seem to be any simple contradiction between the parallel existence of a universal welfare model of the Swedish kind and an extensive civil society in which older people play important roles as active citizens.
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| 2. |
- Jegermalm, Magnus
(författare)
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Direct and Indirect Support for Carers : patterns of Support for Informal Caregivers to Elderly People in Sweden
- 2002
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Ingår i: Journal of gerontological social work. - 0163-4372 .- 1540-4048. ; 38:4, s. 67-84
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Tidskriftsartikel (refereegranskat)abstract
- This study examines what support services are offered to informal caregivers and whether the support is aimed directly or indirectly at the caters. Data were collected by means of two mail questionnaires in a Swedish county. The first questionnaire was aimed at each municipality in the region. The second questionnaire was sent to a random sample of 284 voluntary organizations in the region. Only the municipalities proved to have relief services, day care centers and two forms of payment for carers. The voluntary organizations' support for carers was focused on support groups and training as well as services for elderly care recipients. The results indicated that the support services for carers were both direct and indirect and that the municipalities and the voluntary organizations largely offer different kinds of support.
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| 3. |
- Jegermalm, Magnus
(författare)
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Support for Carers of Older People : the Roles of the Public and Voluntary Sectors in Sweden
- 2003
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Ingår i: Social Policy & Administration. - : Wiley. - 0144-5596 .- 1467-9515. ; 37:7, s. 756-771
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Tidskriftsartikel (refereegranskat)abstract
- This study examines the support services offered to informal caregivers, whether directly or indirectly, in Sweden over the period of a special investment initiative between 1999 and 2001. Data were collected in a Swedish county using two separate mail questionnaires in 1999 and 2001. The first questionnaire was addressed to each municipality in the region. The second questionnaire was sent to a random sample of voluntary organizations in the area. The findings showed that only the municipalities provided direct forms of relief service, day care and financial support. The voluntary organizations’ support for carers focused on support groups and training as well as services for older care users themselves. There was a significant increase between 1999 and 2001 in the number of municipalities providing information material and training for carers and using professional caregiver consultants. On the one hand, the Swedish public social care system appears to be following the international pattern in paying more attention to informal caregivers and investing in support services for them. On the other hand the findings did not show any growth in support provided by the voluntary organizations. Here Swedish welfare is dissimilar to other European countries, where it is increasingly common for voluntary organizations to play an important role as providers of support for carers.
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| 4. |
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| 5. |
- Segnestam Larsson, Ola, 1971-, et al.
(författare)
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Micro Conditions for Co-production : Values, Levels, and Satisfaction with Co-production in a Non-profit Welfare Organization
- 2021
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Ingår i: Voluntary and Public Sector Collaboration in Scandinavia. - Cham : Palgrave Macmillan. - 9783030723149 - 9783030723170 - 9783030723156 ; , s. 319-337
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Bokkapitel (refereegranskat)abstract
- Research indicates that macro or meso conditions influence co-production between the voluntary and public sectors. By comparing departments, this chapter focuses on the micro conditions and co-production in a non-profit organization. Data was gathered by a survey of and a focus group with department and project managers in one of the largest non-profit welfare organizations in Sweden. Secondary material from an employee survey complements the analysis. The main findings include an intriguing web of relationships between micro conditions and co-production. Smaller departments and projects, as well as departments with lower employee satisfaction, valued and implemented co-production more. Possible explanations based on the focus group and suggestions for future research are identified and discussed.
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| 6. |
- Stenwall, Ewa, et al.
(författare)
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Relatives' experiences of encountering the older person with acute confusional state : experiencing unfamiliarity in a familiar person
- 2008
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Ingår i: International Journal of Older People Nursing. - : Wiley. - 1748-3735 .- 1748-3743. ; 3:4, s. 243-251
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Tidskriftsartikel (refereegranskat)abstract
- Aims and objectives. The aim was to understand the lived experience of close relatives encountering older persons with acute confusional state. Background. Little is known about relatives of patients with acute confusional state and their experiences while encountering a family member exhibiting acute confusional state. Design. A descriptive phenomenological research approach was used. Methods. Data were collected by interviewing 10 close relatives of older people with acute confusional state at two hospital wards. Results. Relatives experience the encounter as encountering a familiar person who has suddenly become unfamiliar, struggling to separate the familiar from the unfamiliar and trying to understand the causes of acute confusional state and the behaviour of the person. Six constituents illuminate the phenomenon: 'change in the other person', 'rapid and unexpected changes', 'experiencing insecurity in the encounter', 'trusting or mistrusting the other person', 'experiencing loss' and 'experiencing exposure'. Relevance to clinical practice. It is important for professional carers to support relatives on how to encounter the person with acute confusional state, and to co-operate with relatives to gain knowledge about the unique person behind the acute confusional state. Conclusion. Relatives' difficulties in dealing with strong emotions evoked within the encounter, experiencing limitation and lack of trust is essential knowledge for professional carers in all care settings.
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| 7. |
- Stenwall, Ewa, et al.
(författare)
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The older patient's experience of encountering professional carers and close relatives during an acute confusional state : An interview study
- 2008
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Ingår i: International Journal of Nursing Studies. - : Elsevier BV. - 0020-7489 .- 1873-491X. ; 45:11, s. 1577-1585
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Tidskriftsartikel (refereegranskat)abstract
- Background: Acute confusional state (ACS) is a common and difficult condition among older patients with a variety of opinions about how to act when encountering patients with ACS. Few studies to our knowledge have been found exploring the encounter from the perspective of older patients and their experiences. Objectives: The aim of this study was to understand the experiences of older patients with ACS when encountering professional carers and close relatives. Design: In order to understand older patients’ experiences of encounters during their ACS a latent qualitative content analysis was used. Settings: The data collection took place at two geriatric wards in an emergency hospital in a metropolitan area. Participants: The inclusion criteria included being aged 65 years or older and having suffered from ACS, according to the DSM-IV criteria, and having regained lucidity. Participants were being cared for at one of two geriatric wards. Patients diagnosed with dementia were excluded. About 150 patients were screened, 67 patients fulfilled the inclusion criteria and seven patients were included in the study, four females and three males, aged between 78 and 98 years. Methods: Data were collected by interviews. Results: Three themes were found, namely; ‘Feeling lonely within the perceived reality of ACS’, with three sub-themes: the unequal encounter, keeping a distance and being an outsider; ‘striving towards understanding’ with two sub-themes: searching for answers and it takes time to understand; and ‘feelings of participation in the encounter’ with two sub-themes: a mutual understanding and feeling safe and supported. Conclusions: Within the encounter the older patients with ACS are searching for answers to what is happening and why. The patients feel dependent on the persons they encounter and their willingness to understand and communicate. The patients also feel lonely, unnecessarily questioned and untrustworthy; but they can also feel safe, trusted and understood.
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| 8. |
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| 9. |
- Jegermalm, Magnus, 1962-, et al.
(författare)
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Helpful citizens and caring families : patterns of informal help and caregiving in Sweden in a 17-year perspective
- 2012
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Ingår i: International Journal of Social Welfare. - : Wiley-Blackwell. - 1369-6866 .- 1468-2397. ; 21:4, s. 422-432
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Tidskriftsartikel (refereegranskat)abstract
- This article reports on an analysis of informal help and caregiving in Sweden with, for the first time, a focus on patterns of change over 17 years regarding scope, type of caregivers and the recipients of help. The discussion is based on results from a national survey repeated four times between 1992 and 2009. In the 1990s, the figures were stable, but from the late 1990s to 2009, there seems to have been a dramatic increase in the extent of informal help giving. Concerning types of helpers, the patterns implied involvement not only from family members, but also from other types of helpers. Two interpretative perspectives were used in the analysis: the first from recent welfare state changes and the substitution argument; the second from the present debate on civil society and its possible and changing role. These perspectives represent two partly complementary approaches to the understanding of the dynamics of informal involvement in contemporary Swedish society.
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| 10. |
- Jegermalm, Magnus, 1962-, et al.
(författare)
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Links between informal caregiving and volunteering in Sweden : a 17-year perspective
- 2013
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Ingår i: European Journal of Social Work. - : Informa UK Limited. - 1369-1457 .- 1468-2664. ; 16:2, s. 205-219
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Tidskriftsartikel (refereegranskat)abstract
- This article analyses informal caregiving and volunteering in organizations over 17 years in Sweden, with a focus on links between these two forms of unpaid activities. The discussion is based on results from a national survey that was repeated four times in the period 1992–2009. Links were found between the different types of activities. In all four studies a substantial group of the population was involved both in informal caregiving and volunteering. This group of ‘active citizens’ are commonly also engaged in informal social networks. This ‘double active’ group had increased over time and they provide a substantial amount of hours of involvement. Patterns outlined in this article demonstrate that unpaid activities represent a multifaceted phenomenon, and that the boundaries between informal caregiving and volunteering as forms of engagement may be more fluid than has previously been acknowledged. The results challenge the literature in which informal caregiving is viewed as a major obstacle to volunteering. At the same time, however, informal caregiving in general was found to be increasing. There might be reasons to be cautious about the possible risk that too much pressure on citizens for informal caregiving might jeopardize the type of double involvement that is outlined in this article.
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