| 1. |
- Petersson, Suzanne, et al.
(författare)
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A sisyphean task : experiences of perfectionism in patients with eating disorders
- 2017
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Ingår i: Journal of Eating Disorders. - : BioMed Central. - 2050-2974. ; 5:3, s. 1-11
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Tidskriftsartikel (refereegranskat)abstract
- Background: Despite the theoretical links between eating disorders and perfectionism, the definition of perfectionismin practice is complicated. The present study explored descriptions and experiences of perfectionism described by atransdiagnostic sample of patients.Methods: In-depth, semi-structured interviews were carried out with 15 patients. The interviews were analyzed byThematic Analysis. A comparison between the patients’ scorings on the Eating Disorder Inventory-Perfectionism scalewas also performed.Results: Seven themes were found: The origins of perfectionism, Top performance, Order and self-control, A perfectbody, Looking good in the eyes of others, A double-edged coping strategy, and A Sisyphean task. The women inthis study did not emphasize weight and body as the main perfectionistic strivings. Core descriptions were instead order,self-control and top performances. All of the participants described the awareness of reaching perfectionismas impossible. Scorings of self-oriented perfectionism was significantly higher compared to socially prescribedperfectionism. No differences in the narratives related to perfectionism scores or eating disorder diagnoseswere found.Conclusions: The results showed that psychometric measures do not always capture the patients’ definitionsof perfectionism, but regarding that perfectionism serves as a means to regulate affects and may lead into anexacerbation of the eating disorder, and the development of obsessive-compulsive symptoms, it is importantto investigate the personal definitions of perfectionism.
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| 2. |
- Klarare, Anna, et al.
(författare)
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Belonging to a community of care : Mothers’ experiences of online peer support groups for parents having lost a child with congenital heart defects
- 2020
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Ingår i: Death Studies. - : Taylor & Francis Group. - 0748-1187 .- 1091-7683. ; 46:7, s. 1741-1749
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to study mothers’ experiences of online peer support groups after the death of a child. Participants (N = 8) were recruited through a newsletter for the Swedish association for families/children with heart defects, and two closed support groups on Facebook (900 and 100 members) and interviewed by telephone. Transcripts were analyzed with qualitative content analysis. The groups were available around the clock, regardless of support need, and mothers joined both to receive and provide support. Participation in online peer support groups may provide a sense of belonging to a caring community and serve as a valuable complement to healthcare.
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| 3. |
- Saboonchi, Fredrik
(författare)
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Den skapande människans tolerans
- 2012
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Ingår i: Tolerera. - Stockholm : Jon Brunberg Förlag. - 9789163700309 ; , s. 17-37
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Bokkapitel (populärvet., debatt m.m.)
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| 4. |
- von Vogelsang, Ann-Christin, et al.
(författare)
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Health-Related Quality of Life 10 Years After Intracranial Aneurysm Rupture : A Retrospective Cohort Study Using EQ-5D
- 2013
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Ingår i: Neurosurgery. - : Lippincott Williams & Wilkins. - 0148-396X .- 1524-4040. ; 72:3, s. 397-405
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Experiencing an aneurysmal subarachnoid hemorrhage (SAH) could affect health-related quality of life (HRQoL) several years after the onset. Long-term studies are scarce, and there is a lack of knowledge of whether HRQoL is affected > 5 years after the onset and, if so, in what dimensions. In the general population, HRQoL decreases with age and with the occurrence of a disease and differs between sexes. Factors that may influence HRQoL after aneurysmal SAH include neurological outcome, perceived recovery, aneurysm treatment, and family support.OBJECTIVE: To measure HRQoL and to explore factors affecting HRQoL 10 years after aneurysmal SAH.METHODS: A consecutive sample of all patients admitted for intracranial aneurysm rupture at a neurosurgical clinic in Stockholm (n = 217, 79.5% of eligible) were followed up from 2007 to 2008, approximately 10 years after aneurysm rupture. HRQoL was measured with EQ-5D, and the results were compared with a general population sample from the Stockholm Public Health Survey 2006 matched by age and sex.RESULTS: Compared with the general population, the aneurysm sample reported significantly more problems in 4 of 5 EQ-5D dimensions—mobility, self-care, usual activities, and anxiety/depression—and had significantly lower EQ-5Dindex and EQ visual analog scale values. Within the aneurysm sample, HRQoL was most affected in respondents with worse Glasgow Outcome Scale values at hospital discharge, respondents with comorbidities, and respondents with low perceived recovery.CONCLUSION: Aneurysmal SAH affects HRQoL to a large extent, even 10 years after the onset, indicating a need for long-term follow-up and support after the onset
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